gave my GI my gluten-free report today

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yogaprof
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Date Joined Apr 2006
Total Posts : 1665
   Posted 9/11/2008 4:45 PM (GMT -7)   
I hadn't seen my GI since I gave up gluten. I made an appt just to fill him in. He was shocked, thrilled, and amazed at how good I look and well I am doing. He even took the name of my naturopath to find out about his testing and lab. I wasn't sure what his reaction would be, but it was good to connect and let him know that with ALL the tests, drugs, and surgeries we went thru together I finally am better due to diet. he said he will keep writing me a script for glycolax and beyond that, we are done seeing each other. what an amazing ride! yp
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/11/2008 5:44 PM (GMT -7)   
Hi Sounds like you are doing good . I hope it continues, I am so happy to hear some good news .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 9/11/2008 8:22 PM (GMT -7)   
Boy that is amazing! It says a lot that your GI wanted to get the name of your naturopath and the lab and tests he uses. That's wonderful!

So glad you are doing so very well!!! yeah
Mom to 16 year old boy diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more SCD recipes, too! (cooking challenged)


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/11/2008 8:55 PM (GMT -7)   
Good to hear both your success and the doctor's openness to the idea that it was diet that made the difference. Someone else reported using diet to gain remission and their doctor said "You may think that that was what did it." Really though, it is a result that you wish worked for everybody.

CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 9/11/2008 10:48 PM (GMT -7)   
sweet!!! fantasitc news. reminded me of when i saw my gastro after not seeing him for about 8 months fixing myself on the maker's diet. he had the same response of shock and at the same time relief that i was able to find something to "fix" me. however he wasnt about to put his patients on the makers diet. i guess you cant win them all...
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/11/2008 11:31 PM (GMT -7)   
Wow, yp, that's fantastic! Congratulations!
Co-Moderator Crohn's Forum.


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 9/12/2008 2:34 AM (GMT -7)   
YP, that's wonderful news!! Blessings, Julie
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 11mg/day, Imuran 50mg, Miralax as needed, Prevacid 30mg, Vit B12
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


onebloodonelife
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Date Joined Feb 2006
Total Posts : 842
   Posted 9/12/2008 8:20 AM (GMT -7)   
That's great to hear! Especially since I remember when you were going through the countless tests, etc. with no response, so I'm very glad that you found something that helps.
Crohn's Disease for two years and counting (diagnosed March 8th, 2006)
Imuran: no more! Got the GI's okay to stop taking it :)
Humira: once every week temporarily (hoping to stop a flare)
Dicyclomine and hyoscamine for intestinal cramping and spasms
www.myspace.com/onebloodonelife


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 9/12/2008 10:28 AM (GMT -7)   
thanks you guys! I wasn't sure whether my doc would be happy or if he would not believe me, so I am glad for his reaction.
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


pontiac98
Regular Member


Date Joined Oct 2006
Total Posts : 60
   Posted 9/12/2008 11:11 AM (GMT -7)   

great for you. the dr was planning on putting me on mp6 or something like that

over a year ago. i went on the SCD diet and i went for a colonoscopy in april of 2008

and i was cleared of any cronh's . he was amazed. i did taper off the diet, and now

i experience severe bloating which makes me look 9 mons preg. i am going to go

back on the diet , i feel real good when im on it.

 

 


diag with cd at 15 y/o. 2ft 8 ins of lg.intest removed at 18. now 43 currently on pentasa,cipro, flagyl,protonix and dr. wants me on 6mp. dx with menopause at 38. on hrt creams. panic attacks only when driving on expressways.
 


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/13/2008 12:26 PM (GMT -7)   
I'm so happy you found something that works. It was about time!!!!
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/13/2008 4:13 PM (GMT -7)   
yp, out of interest, what symptoms were you having before you started the gluten-free diet? And what symptoms are you having now?
Co-Moderator Crohn's Forum.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 9/13/2008 9:07 PM (GMT -7)   
hey Ivy6, I had constipation, which I manage with glycolax and metamucil, but my main symptom was really severe pain in my upper right. It hurt constanting with each breath and I was taking pain meds. I was also really tired much of the time, and had no appetite. I couldn't eat any fresh veggies. now my energy level is great, I eat everything (except gluten) and the pain is so mild I only know it is there if I push on myself. I never need meds and feel super.
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.

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