As many of you know, the last 6 months of our lives have been hell after my husband was diagnosed with C-diff, and then crohn's, and had a 2 month hospital stay, lost 40 pounds, and came home on 80 mgs of prednisone, left foot drop, remicade, and vancomycin.
Well this past weekend, he had a colonoscopy and the doc said he'd seen tremendous healing - the last time he did a colonoscopy, he could'nt finish it, had to stop at the transverse colon, because he said it looked like hamburger meat, and he was scared of a perforation. Well this time he finished the colonoscopy, and said he found no sign of crohn's in the terminal ileum or cecum. He found some inflammatory pseudo polyps which he said were a sign of healing.
In his notes, he says, "Objectively, the patient is showing a marked response to remicade". My husband finally has energy, is pooping mushy stools twice a day, and I'm slowly starting to add things back into his very bland, very low fiber diet. Also, his nerves have started to heal, and along with physiotherapy, his foot drop is slightly better. My husband is now on 10 mgs of pred, and will soon be tapering to 5. Also, he's finally stopped the vancomycin, and is doing well without it (so the c-diff is finally gone, I hope).
I thought this would help folks here who are having a really rough time - it is possible to return to a normal life with crohn's. We just are figuring this out - for 6 months, I've been hoping and praying for some semblance of normalcy to come back to our lives, and it looks like it's going to happen. 2 month hospital stays, scare of MS, neuropathy, foot drop, sebaceous cyst that needed operation, warts that wouldn't go away, and need pulsed dye laser treatment - all this in the last 6 months, and we're finally seeing the light at the end of the dark tunnel. So, hang in there, even all bad things come to an end it seems.
Hoping remission soon comes to all of you who are suffering. Hang in there, the good times will soon find you.