Seeing my GI tomorrow...stem cell questions :O

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abseeley
Regular Member


Date Joined Jun 2008
Total Posts : 49
   Posted 9/14/2008 6:28 PM (GMT -7)   
Im going to see my GI again tomorrow for the first time in a few months, and im going to ask him about a stem cell treatment, my crohns is pretty bad but no where near as bad as some of the other tales of woe ive heard on the boards. My doc is on ottawa ontario the same place where
http://www.canada.com/ottawacitizen/news/city/story.html?id=1bdbc884-9c9f-4c93-8976-22fe8618798c
this guy recently successfully had the treatment performed. So im thinking my odds are better then some people who are no where near that at least. Anyone have any idea to his reaction im thinking "well the drugs are helping and even though your not 100% its too big a risk" but im willing to plea and beg :) thoughts?

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/14/2008 7:16 PM (GMT -7)   
I'm curious myself really. I 'd like to do stem cell treatment, but I don't think there is anything being done about it in my area. Let us know what your doctor says about it.
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/15/2008 9:24 AM (GMT -7)   
Most definitely update us on what your GI says...very curious.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/15/2008 2:34 PM (GMT -7)   
Yes keep us updated and wishing you the best. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


abseeley
Regular Member


Date Joined Jun 2008
Total Posts : 49
   Posted 9/15/2008 6:51 PM (GMT -7)   
OH MAN!
so i talked to him today and i was like there was this article about the stem cell transplant in the paper from ottawa, and hes like oh yes i did that hes doing great and im like WOAAAAH YOU DID THAT! i knew he was good i didnt know he was THAT good darn! We had a chat about it though and he said hes not offering it to patients right now, and only is as a last ditch attempt at tinkering with their immune system but there is the very inherent risk of...well death so he says right now hes not even thinking about it for me, he says my crohn's is still pretty mild (not even taking steroids yet still 5 ASA) and he says if it starts to get worse he will just put me on roids and go from there.

He said in a nutshell it is like the immunosupressive method in that you kinda tinker with the immune system, except you entirely wipe it out and start fresh.

neat

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/16/2008 6:30 PM (GMT -7)   
Hi Yes that is what they do glad your not bad enough to have to have it done. Sounds like your Dr. is well equipped with knowledge. Certainly interesting that the man who had it done is doing good. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

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