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songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 9/15/2008 1:26 PM (GMT -7)   
Well Ive been on Humira since July and now weaned off Prednisone and am flaring again!
 
I really thought it was working....now Im like...what will they try now? what will they do? I feel like Ive been on everything, what other options are there?

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Dx'd w/Crohn's colitis in May05--spread to ileum & small intestine as of April08. Past meds: Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Pred, Asacol, Prevacid, and the list goes on. Currently on Humira every 2wks,  Pentasa, Tapering Prednisone now.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/15/2008 1:57 PM (GMT -7)   
Hi Maybe another short trial of pred. Do you think something might have started this flare like a cold or added stress ,how long you been on the Hum.? Sometimes we wish we had more answers. I did check your med list and you have taken a lot of meds.I will certainly be watching to see what your Dr. decides. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/15/2008 9:23 PM (GMT -7)   
How long have you been on the pentasa? I know when I first started taking it, it didn't do anything and I had a terrible flare regardless which hospitalized me. I started to notice a difference after about a month and half(from then to now), but I really think part of the effectiveness is due to the 'jumpstart' they gave me with the IV steroids and the bedrest as well as a pretty bland diet for about three weeks--I am introducing new things now...had lettuce and onions today so here's to hoping I'm not sending myself back to the hospital.
Maybe you could check into natural supplements as well? The results for those aren't instantaneous either, but I've noticed a difference with those too.
Let us know what your doctors say though? I hope you feel well soon.
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 9/15/2008 10:23 PM (GMT -7)   
Have you discussed weekly Humira shots with your doctor? It seems like many need it more than one shot every other week.
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--methylpred - finally off 6/15/08, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-yr-old girl

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