stopping and starting humira question...

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patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 9/16/2008 7:08 AM (GMT -7)   
SO. After being told by my doc that Humira was unobtainable for me, I found the Patient Access Network Foundation, and not only did they pay for it, but they over-nighted the injections to my house on a Saturday. Who'd a thunk.

Now the Humira is sitting in my fridge, and I can't bring myself to do the injection. I just don't want any more of this immuno-suppressive crap in my body. I'm scared of it, and I start panicking any time my husband mentions it.

I've only been gluten free for a few weeks, but it really does seem to be making a difference. I want to give this diet time to prove itself, but I'm scared of the consequences of stopping the Humira treatment so early on (i've only been on Humira for the 4 loading doses and 2 booster shots). I'm also worried because I don't know if my symptoms have improved because of the Humira, or because of the diet. I'm leaning toward the diet, obviously. I was supposed to do the Humira LAST saturday (sept 6), but this past week I've been fine and even better than normal...Aye.

Has anyone stopped Humira and then decided to give it another try later on? I know the antibody risk is there... if I stop now is it off limits from here on out or is there a chance I could keep it in my arsenal for worst-case-scenarios? I'm too chicken to take the Humira, but I'm scared of NOT taking it and in so doing crossing it off the list of possibilities later on. Any advice?

Thanks guys!

P.S. Our Mesa Verde vacation was great! I had a couple moments of panic, but nothing too terrible, and no accidents or close-calls. :-) It was BEAUTIFUL country, and just what I needed.

P.S.S. If I decide NOT to continue the Humira, is there a legit way to get this Humira in my fridge to someone who needs it? I feel like a dragon sitting on a treasure that I don't even want... the guilt is amazing.
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Currently running on Humira and Hope.
(miscarried at 13 weeks, now waiting to heal before trying again)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/16/2008 4:35 PM (GMT -7)   
I'm in a situation where I'm being forced by the govt to stop Humira and then - maybe - restart it later.

The doctors sound quite confident that I can restart it without having a reaction, but have no idea if it will work as well as it has until now. Apparently most of the trials have focussed on maintaining the med, not on stopping and restarting.

Hope this helps.

Ivy.
Co-Moderator Crohn's Forum.

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