I have my 1st appointment with SSDI tomorrow.

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redspot321
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Date Joined Jan 2006
Total Posts : 303
   Posted 9/16/2008 8:09 AM (GMT -7)   
Anyone have any Idea what the 1st appointment is about?

Any suggestions? My CD is Out of control despite 40 of pred and Humira.....
29 YO Male
 
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08


CrohnsPatient
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Date Joined Feb 2008
Total Posts : 314
   Posted 9/16/2008 9:26 AM (GMT -7)   
I just want to say that DONT let others discourage you, some think that age, duration and such has to do with whether your approved or not, but its particularly what your doctors files say, and what you doctor believes is best for you. I was only 17 when I was put on disability, and i didnt need a lawyer or court or any of that, i applied, and within a month maybe a month and a half had a years back pay and my first months check....everyones expereince is different...Lots do have horror stories though.

I'd ask others to be more empathetic with you then others, and TRY to refrain from 100 percent horror stories on here, lets here some good stories, lets here some stories about someone about to lose there house when disability saved them! How bout it everyone?! (might get one 'good' response) lol

redspot321
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Date Joined Jan 2006
Total Posts : 303
   Posted 9/16/2008 2:44 PM (GMT -7)   
I have 100% of my medical records from ALL of my physicians and ALL of my inpatient records in hand. I have them indexed so I can pull any result, note, or scan in an instant. I have all of my CTscans (eight) on CD ROM.

A letter from my GI stating I should not work for "several months or until my crohns is stable" This could be a problem since SSA wants at least 12 months of disibility.



Also, Im working right now!!! Is this a major no go? Its either work or lose EVERYTHING!!!!!!!!!!!!!!

Any experience with this?
29 YO Male
 
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08


redspot321
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Date Joined Jan 2006
Total Posts : 303
   Posted 9/16/2008 5:51 PM (GMT -7)   
smhair  Anyone?!
 
Good bad indifferent?
29 YO Male
 
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08


Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 9/16/2008 6:36 PM (GMT -7)   
I never had to go to an appointment but did see an SSDI doctor. That was all it took. I was told to just be honest when asked questions and thats what I did. I am sure you will do fine. Good luck..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


FitzyK23
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Date Joined May 2005
Total Posts : 4219
   Posted 9/16/2008 8:23 PM (GMT -7)   
I personally don't know anything about disability but asked my hubby who works in insurance. It was his understanding that SSDI does not kick in until 6 months after you have stopped working. If that is true, working while applying probably won't work. I told him that I didn't think it made sense because how would you live for those 6 months. He said that he has seen people get SSI during that time but not really sure how the two differ and what that is. More commonly people use their short term disability through their employer for the six months. But I still didn't think it made sense for the people that don't have that option. I guess if you are still working they don't consider you disabled. I beg to differ and argue that you can be disabled and fight through it out of necessity. Again, I have no familiarity with the laws, just going on his limited knowledge. But its probably something you should find out asap and then fill the rest of us in.
 
Oh, and then he said something about relying on emergency savings for the six months.  HA! He should be so optimistic.  We are definitly a pay check by pay check family right now while I'm in school.


26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


redspot321
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Date Joined Jan 2006
Total Posts : 303
   Posted 9/17/2008 4:15 AM (GMT -7)   
FitzyK23 said...
 
Oh, and then he said something about relying on emergency savings for the six months.  HA! He should be so optimistic.  We are definitly a pay check by pay check family right now while I'm in school.

I hear you! My wife is a full time student. And od course Im out sick 1-2 x a month.
 
CD is fun! tongue
29 YO Male
 
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/17/2008 6:56 AM (GMT -7)   
I don't have any advice, but wanted to wish you good luck!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 9/17/2008 11:59 AM (GMT -7)   
I got laughed at!!

I guess you have to be out of work for 6 months, loose your house, car, etc.....then you can apply.

I also got the lecture about having 6 months of savings. When your chronically ill for years and have had multiple sick days and surgeries that savings dwindles away.
29 YO Male
 
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/17/2008 12:10 PM (GMT -7)   
I am so sorry! It is very common to be denied the first time. Everything that I have heard is it is best to go in with an attorney. I guess they have ways to help get things moved thru the system better. Hopefully, you can try again. I know what you mean about savings, yeah right, let's see us save 6 mos worth with our health.

HUGS!!!
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 9/17/2008 12:46 PM (GMT -7)   
Yea, I dont think a lawyer can help. Those are the rules. Its not that they didnt think I was not sick enough, its just you must have no job.
29 YO Male
 
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/17/2008 1:18 PM (GMT -7)   
tsitodawg,

I just wanted to tell you that was awesome advice you gave. I was sorta bothered by the previous post about everyone having to be positive. So many poor folks have gone thru hades and back trying to get it and I think everyone should know the good and the bad to applying. Luckily I am still able to work, have actually had about 10 surgeries myself, with 2 of them being bowel resections, and know that one day I will eventually have to give up and go on it myself. So I also read as much info as I can get on it so that I am prepared for that day. Thanks again for your helpful advice on this situation.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/17/2008 2:36 PM (GMT -7)   
Tsitodawg - the reason we are saying that you have to lose everything is because you have to be out of work for 6 months before applying. So, you are right, you can still have money in the bank and a house and a car but I personally could not afford that without my paycheck. The reason financial planners tell you to have 6 months worth of savings is so that you can survive until disability kicks in. Another great option is the short term disability you mentioned through your employer. However, many people do not have this option. In which case it is 6 months of no income and then START applying for disability.

Red - although I'm sorry you got bad news, I'm glad I was able to warn you before hand. I'll have to let hubby know that as usual, he was right.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 9/18/2008 2:33 AM (GMT -7)   
hey guys, i see some clarification is in order.... i think that there is some confusion about TWO differant systems with similar names... SSDI or social security disability insurance is what we pay into while working. there are no limits of what you can have or own as far as anything i have evre READ. not HEARD!

SSI is supplemental security income.. totaly differant in scope and eligibilty.. mainly for people that have no work history, no income and no hope of getting any. for instance, a retarded child, or adult , an old farmer that never paid into SS and has no other income, etc... there ARE limits for SSI, for instance a vehicle has to be below a certain value , cant live in a mansion etc.. and they take into account ALL family income, whereas SSDI does not.

all this may not be totally correct , but to the best of my recolection it is accurate.

btw i was approved on the first try and did not have to see a dr that i recall, course i was pretty drugged up all those months.. my drs did help with the forms and sent letters and documentation. the best advise i can give is DOCUMENTATION! all the time every time.
randynoguts 



     http://www.geocities.com/randynogutsweb/


da2218
New Member


Date Joined Sep 2008
Total Posts : 1
   Posted 9/18/2008 3:57 PM (GMT -7)   

Hi Redspot

You did the right thing, you obtained all your records on your own!

I filed on July 31st and just today received my first SSI check.

SSI is what they give you while they are determining your SSDI claim (if you qualify).

In my case I qualifyed because I had no income (last day of work was April 26, 2008) coming in, and had no substaintial accounts, investments, 401, etc etc. You can have a small amount of accounts (not really sure what the dollar amount is), but if you exceed it you will not qualify for SSI.

I was diagnosed with HIV in June 2003, my health has been downhill from there, Psoriosis, Psoriatic Arthritis etc etc etc.

But when I left my job in April (because of my illnesses) I went online and found an attorney  and she sent me a packet called "Social Security Secrets" and because of her I was just advised that I was just approved SSDI"s medical board. Now that just means that SSDI medically agrees that I am to sick to work, the next and final step is my local SS office who determines Yes or No that I will receive disability benefits (they are the financial portion of SSDI). But according to this attorney that I contacted, it's as good as approved... The hardest part is getting the stamp of approval from SSDI's medical board.

But I think she will agree that you went about this the right way, the key she told me is to find all medical documents will your illnesses.

Hope this was helpful


Post Edited By Moderator (Ides) : 9/18/2008 5:26:18 PM (GMT-6)


Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 9/18/2008 4:27 PM (GMT -7)   
da2218 - Welcome to Healing Well. I had to edit your post because it contained parts contrary to our Forum Rules.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 12/17/2010 4:37 PM (GMT -7)   
hey, I went onto sdi first and applied for ssdi the same day, then I listened verbatim to what tsitodawg told me and gave me advice that worked perfectly, I was approved at 8 months, this is very critical, your dr's absolutely need to be on the same page as you. my lawyers sent them a questionaire form and asked them to write a narrative about your disease at prognosis, the questionaire was really difficult for them to fill out, because they needed to know 1-10 level of pain, 1-10 level of fatigue, and other very personnal q's. they were both very happy for me to fill out that portion of the q, then there were 5 q's that I could not answer, those were the codes for our disease, and stage of disease, then my gi filled out the narrative, and sent to lawyers. nov 8th, accepted nov.18th. never a mention about what you own, only that you can't work. now here is interesting part. I am an artist, but doing my artwork and being self employed without ins. was to scarry, because I was starting to flare like it was possible that surgery was close, i've had 4 surgeries, so I know, anyway I needed a job that payed decent and provided me and wife and daughter with ins. anyway I got a job being a casino dealer at local indian casino, I lasted 5 years, but i always did my artwork for extra income, but i took my name off of our business, but on the acceptance letter, they stated that if in the future I could go back to family business, let them know of income, they will deduct. I can do that work, not like I should but at least I'm home and if I don't feel good or have to run to br or lay down from gas pains I can, at least my ssdi almost pays our mortgage, bummer tho i was told I have to be disabled for 2 years before I can get medicare, will they make acceptance, dawg you know if I can appeal that part.

prof
Veteran Member


Date Joined Feb 2003
Total Posts : 1195
   Posted 12/18/2010 12:03 PM (GMT -7)   
It did take me awhile and I did get an attorney. A few suggestions:

always answer those questions as it is the worst day of your disease! No sugar coating....

I never WENT to the SSD office. You all know we may "look" fine but we can feel like crap. I did phone interviews only.

have your records and ALL doctors on board willing to write you "can't" work.

good luck. I had a wonderful woman I met here when I went thru the process and she was my angel! Aks questions... we are here to help!
Prof

dragonfly137927
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Date Joined Sep 2006
Total Posts : 2527
   Posted 12/18/2010 11:04 PM (GMT -7)   
I am sorry to not be able to help you as far as an appt. I had a phone interview about 2 weeks after I applied ...I apped in Dec of 2007 and was later approved in March of 2008. My Dr's and all said I should get a lawyer so I spoke with a free appt with my aunts SSDI lawyer and he went on vacation and when he came back he was going to start my case however while he was gone I was approved so he waived all fees that would have been assoc with my case. GL to you
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/19/2010 8:48 AM (GMT -7)   
Do you guys realize this post is over 2 years old?? I would suggest you make a new post so you get more attention.
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Protonix, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 12/19/2010 10:15 AM (GMT -7)   
you know I read a post that you should act like it the worst day of your life, be careful about that, just be yourself, you shouldn't have to over play your diseae, they look for people to over play their medical issues, I told the truth on my medical forms. keep it fairly simple with good info about your daily life, bm's, gas pains, don't pull any punches. cd is being more and more accepted for a permanent disability, you did not choose this medical condition. try to get on sdi, they will pay you 60% of last highest quartwer of the year before, I get $2100 a month on sdi for a year, that is the max for sdi. tax free. but you don't get back pay from ssdi, i only got 4 grand back pay because I've was collecting sdi. I made more money that way than waiting for back pay, double I made. most important is your dr's. some charge for filling out forms some don't, mind didn't, my shrink wanted $800 for his form, I told my lawyer tell him to piss off, we won't need his report, I knew my gi and gp would give me what I wanted, and they did.
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