I totally feel you about the Drs not understanding, or not listening...I went for 3 years without being properly dx'd. I am blessed to now have a GI that actually has Crohns disease himself, so nothing goes in one ear and out the other with him. Its also very frustrating to have to explain to people that Crohns disease does not mean you just poop a lot lol. Theres a lot more too it, horrible pain, fatigue ect ect... I'm so tired of having to explain to people at work why I feel so crappy. Seems like they dont believe me too, or they wonder why one day I'm fine and the next day I can barely function.
The only medication that has left me with no pain at all is Prednisone, I was put on 100mg a day for around 3 months, when they started to taper me down I got very sick around 40mg...So..I get to have surgery on Friday to remove the diseased section. I'm also on Humira, I havent been able to notice any difference at all with it though, my body is depending on the Prednisone until after the surgery, so I guess I'll see if the Humira keeps it under control after that.