Joint pain, please help!

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Jusdebbie
Regular Member


Date Joined Jul 2007
Total Posts : 70
   Posted 9/16/2008 11:33 AM (GMT -7)   
Hi guys,
 
Its been forever since i have written here.  My chrons and its effect on my stomach has been much better since my 2 weeks on iv steroids in the hosptal in January.  But man what a roller coaster it was to get off everything.  I have been back on Colozal since about April just because i know i need to stay on something.  However, i am almost in agony daily with many joints.  Its hips, knees, wrists, low back, and sometimes other places too.  I am an avid exerciser which isnt helping me but easing off doesnt help either.  Do you guys suggest any (easy to tolerate) medicine?  Maybe instead of the colozal something that offers pain relief?  I was on remicade and refuse to go back on that or steroids.  I just get so achy its hard to function at times.  I cant even sit/stand at my sons football games for more than an hour as i begin to throb.  Oh, i did try ibuprofen and it helped for a few weeks but then it too lost its effect.  I also have kidney problems so it wasnt the best for me.  Thanks for any advice.

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/16/2008 1:38 PM (GMT -7)   
First off, have you seen a Rhuematologist? If not that should be your first step. You might need something stronger than over the counter meds. But you probably should avoid the NSAIDs. They are not recommended for CDers, as they can really do a number on our guts. You can try Tylenol, but personally, it doesn't do much for me. My Rhuemy couldn't do much for me med wise since everything just started up my CD, so he recommended acupuncture. It isn't a cure, by any means, but it does help some. But I would start with a full work up because you might have something else going on.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 9/16/2008 2:37 PM (GMT -7)   
Yes i agree you need to see a rheumy doctor. I have crohn's and osteoarthritis and RA arthritis. I do pain meds for the arthritis's.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 9/16/2008 2:45 PM (GMT -7)   
Do see a dr. Never take NSAID's. It oculd be crohn's related arthitis, which does no damage, but hurts bad; or it could even be Fibromyalgia or Ankylosing spondilitis. Both Fibro and AS come with CD. A good rheumy or PC should eb able to find out.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
 
Stephanie
When I am weak, then am I strong


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 9/17/2008 10:00 AM (GMT -7)   

Jusdebbie, I also have very bad joint pain, which my rheumy and GI just say is Crohn's related arthritis and we are having a very hard time finding something to help that won't hurt my stomach.  We tried other NSAIDs, steroids, Crohn's meds, etc. since the ultracet isn't taking care of it anymore, but nothing helps the joints and all of it hurts my stomach or gives me ulcers.  I am scheduled right now to get cortisone shots in my ankles again, which helped for a little while last time. 

I am going to ask my rheumy about Lidoderm patches because I tried some before and they seemed to help a lot, but they are just limited to whatever area you put them on.  Still, I think that will be better than taking meds that make me sick. 

As much as it hurts starting out, once I get through about 20 minutes of pilates, it seems like it helps loosen everything up.  I was also an avid exerciser but have really had to cut back (almost completely) lately, which is killing me.  Do what you can, but take it easy on your joints, and maybe that will loosen everything up without doing more harm.    


Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 9/17/2008 12:43 PM (GMT -7)   
Hey, I'm also a multiple arthritis victim. Osteo & the CD arthritis, in fact. Its a rare week when something AIN'T hurting sadly..
I finally bit the bullet & went to a pain clinic last august. Been doing pretty good on Lyrica & Tramadol, plus Celebrex ( Which I tolerate better than Alleve & OTC NSAIDS but I'm still not impressed with it.). Has this helped? Just got back from an approx. 10 mile bike ride. Oh it hurts, but I can stand it.

Sincerely,
Matthew

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/17/2008 4:21 PM (GMT -7)   
Some people find that eating a small knob of ginger every day helps. It is also thought that boosting your intake of GLAs through seeds etc can help.

For instance, you could drink some ginger tea or eat some candied ginger for a snack each day, and throw some ground LSA on your breakfast cereal.

But yes, I agree with the others, it would be good if you could get to see a rheumatologist for proper diagnosis and treatment.

I.
Co-Moderator Crohn's Forum.


Jusdebbie
Regular Member


Date Joined Jul 2007
Total Posts : 70
   Posted 9/18/2008 3:05 AM (GMT -7)   
I did see a rheumy and she basically ruled out it being anything other than chrons related.  My GI doc just suggested trying azulfadine instead of colozal.  Said that it could possibly help the joint pain.  Any opinions?  Thanks for all your responses.

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/18/2008 10:06 AM (GMT -7)   
My Rhuemy has tried all the arthritis type drugs on me. They caused gastritis, so those are out. He would love it if one of my GI's would put me on a biologic, but technically my CD isn't active enough. They don't consider the joint issues to be active CD, even though the Rhuemy does. So his only option left was acupuncture. I was a wicked skeptic, but it wasn't something that was going to cause any long term harm and so I gave it a shot. It took a few sessions before there was any benefit and if I miss a week, I notice it, but it does help. It is only a stabilization thing, not a treatment. It gives me some relief as long as I keep it up, but if I am away or miss a treatment because I'm too busy, I slide backward. My insurance doesn't cover it either, so it can be costly.

I do go to a community clinic, which is cheaper than individual treatment, but less private. That is a personal choice. You can do a web search for community acupuncture clinic and see if there is one in your area. The cost at the one I go to is a sliding scale based on how often you go $15 - $35 a session. I go once a week and pay $15. Which for me is just a little more than a co-pay would be. Plus, I get to sit down for an hour and take a nap. which is bliss!
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/18/2008 2:03 PM (GMT -7)   
I have had a collection of sore spots, but they are the muscles and tendons near the joint. I have found references that have found that TNF prevents the tendon cell repair mechanism from working. As a result, I am taking a probiotic (helps reduce inflammation in the gut - presumably the source of the TNF) and turmeric. The turmeric (capsules) is also an anti-inflammatory and has been shown to reduce a number of immune system inflammation molecules, including TNF. The formula that I found in the local drug store is a combination of turmeric and bromelain and is sold as a remedy for joint pain. It seems to be helping, but it is a bit soon to be sure (only started a couple of days ago).

Betagirl
Veteran Member


Date Joined Jan 2003
Total Posts : 1928
   Posted 9/19/2008 4:41 AM (GMT -7)   
I have joint pain in my hips and knees that comes on pretty bad sometimes. I have a Rx for celebrex. I only take 1 pill as needed. If I'm going to be exercising (I run or ride a bike) I take one preemptively to ward off the pain I know will come. My GI said that since it's COX-II the damage to the gut is minimal, if any. Yes, COX-II's have warnings and some have been pulled. But that was for people taking them at excessive doses. I don't have much concern about that, and it's never affected my Crohn's but works very well on the joints.
"Only the meek get pinched...the bold survive."


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 9/19/2008 9:27 AM (GMT -7)   
By the way, in my post I mentioned Lidoderm patches, but apparently they aren't FDA approved for arthritis.  Instead, they had me try Voltaren gel, which is fairly new from what I've heard.  Just started it yesterday and it seems to help for a few hours, but then it wears off.  You're supposed to apply it 4 times a day.  That may be an option for those who can't stomach the arthritis meds.

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 9/19/2008 12:58 PM (GMT -7)   
I have some of the patches here at home. Actually, last spring I got triggerpoints when I picked up the physical activity. My pain doc said cutting a patch in half works on the triggerpoints. I don't know about for joint pain. I take CElebrex like Beta but I doubt its that helpful against CD arthritis ( It does help the Osteo though, so it has some uses..). I've tried many RX NSAIDS, most I couldn't tolerate or didn't work.
I've tried Capcaisin(sp?) products years ago for the CD joint pain & they made my pain worse. I've also experimented with Glucsomine/Chondritin products with mixed results.
All this being said is what helps or hurts me might NOT do the same for you.. BTW, I saw a Rheumy who treated my CD arthritis. Why won't yours????

Matthew

rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 9/19/2008 1:40 PM (GMT -7)   
I have the same question as Matthew.  My rheumy is treating (or started to, until we got sidetracked) what seems to be CD related arthritis with methotrexate.  However, he also mentioned the possibility of Remicade/Humira. When I told him that the gi office said I was nowhere near that stage his reply was maybe not for the CD, but they are also for the CD arthritis.  But first you have to fail the oral meds.   
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin,levothyroxine, sertraline, lyrica, methotrexate, down to 2.5mg prednisone and miserable.     


Jusdebbie
Regular Member


Date Joined Jul 2007
Total Posts : 70
   Posted 9/19/2008 2:58 PM (GMT -7)   
I was on remicade for the CD and i truly think as much as i hated it, it did help the pain.  However, i am not going back on that again.  I tried acupuncture but maybe i didnt give it enough of a chance.  I might try (sp?) Reiki next or possibly accupressure.  Im not fond of needles or side effects if you can tell!

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/19/2008 5:15 PM (GMT -7)   
If it is the TNF that is causing the joint pain (tendon pain in my case), then you would expect remicade/humira etc. to help the pain. That's why I am using turmeric capsules - I don't need the big guns for any other reason, so a botanical that does the same thing (inhibit TNF production) is really interesting. I can feel an improvement already, but I don't know just how much improvement this will give me.

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 9/20/2008 5:16 PM (GMT -7)   
If I have a really BAD arthritis flare from my CD, I will consider the Remicade, though my insurance might be an issue..
More likely they'd put me on Methotrexate though. I'm not looking forward to either med!

Matthew
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