About the (maybe) partial obstruction

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d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 9/17/2008 12:47 PM (GMT -7)   
It seems they want me to have surgery.  They are expediting an appointment for me to meet with the surgeon.  Maybe it is that my balloon dilation did not work and the stricture got more narrow.  I have not eaten in 4 days.  Liquid diet.  I tried ice cream today and got quite nauseous.  I wish they would give me pred or something to help at least calm it enough so I can eat.  Then again, maybe it is too narrow for me to eat.
 
I am weak, tired and frustrated.  I so wanted to avoid another surgery.  I so really hate crohn's!
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
 
Stephanie
When I am weak, then am I strong


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/17/2008 1:28 PM (GMT -7)   
(((Stephanie))) I am so sorry you are looking at another surgery. That is one of my biggest fears having to have another resection (I too have had 2). Hopefully though this gets you feeling better. Will definetly keep you in my prayers. I agree enough is enough.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


penelope-marie
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 9/18/2008 3:18 AM (GMT -7)   
I wish you good luck. Is there any way you can find out if the stricture is narrower because of scarring or because or inflammation - because inflammation can be brought down. Also I have found that ice cream is really terrible for me and can cause a big flare up i suppose it is the combination of dairy fat and sugar. exactly what makes it nice.
had crohns for 15 years took pentasa then nothing but diet but stricture appeared 3years ago and problems since.


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 9/18/2008 3:37 AM (GMT -7)   
My spine itches from the very tip top to the very very end. It's miserable.
Could this be Chrons? I had IBS really bad about 5 years ago. Could this be
a form of IBS? I can kinda go. Not satisfactory at all.
Pamela
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome,.Prolapsed Bowel and Bladder, Attention Deficity Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety,


d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 9/18/2008 9:09 AM (GMT -7)   
Thank you Nanners. I defintely need prayer.

Penelope, usually ice cream is the one thing I can count on. My dr told me after the dilation that I have deep inflammation. It does not show up in my SED rate, plus lots of scar tissue. I've not found a way to stop the inflammation. We try to avoid pred & entocort as I don't respond well to either of them. They are set aside for emergencies only.

Pamela, I've not encountered that, with the exception of fibromyalgia itching.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
 
Stephanie
When I am weak, then am I strong


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/18/2008 10:37 AM (GMT -7)   
Hi If you have to have it done then I hope they speed it up really fast. Are you taking boost or ensure? Just hoping you don't have to go too long without food. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 9/18/2008 12:12 PM (GMT -7)   
Thanks Gail. Right now I am using Carnation Instant Breakfast. Between last night and this afternoon I have been able to get down 1 can of Chicken Noodle Soup. I'm only eating about 1/3 of a can at a time though. Not to mention it doesn't take much to fill me up after 5 days with no solid food. I wanted to lose a couple of lbs, but would have preferred a different approach! (lol)

My husband and I decided I should try to eat like a bird. A little bit, often. Of course I need to get to the point where I can eat to do this. Even with only the soup I am getting twinges though, so I would still be afraid to eat any real food, soft or not. My tongue is so disgustingly coated, yucky!

I am hoping I can put off surgery until the end of Oct. though. We run our own shop, and my husband runs a painiting/roofing bus. If I have to go in before that we would have to close up our shop and that owuld stress my poor husband no end. I'd hate to put that on him. He is so understanding and supportive.

Thanks again Gail. Your support means alot.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
 
Stephanie
When I am weak, then am I strong


d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 9/19/2008 9:37 AM (GMT -7)   
It seems that I have a consult with a surgeon on Oct. 1st. At least it will be likely I can wait until the end of October. Oh! I got a scrambled egg down this morning! First real food in 5 days!!
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
 
Stephanie
When I am weak, then am I strong

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