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Betagirl
Veteran Member


Date Joined Jan 2003
Total Posts : 1928
   Posted 9/17/2008 2:39 PM (GMT -7)   
Hi there

I'm having a conundrum. Long story short, I've been on BCP's for 14 years (since I was 18) and they have all but killed my sex drive. Grant it I have a RVF, which probably contributes some psychological component to my not wanting to do the deed, but the RVF is under control. Heck, could be closed for all I know. The decreased drive has been around longer than the RVF.

I went to my gynecologist today for my 6 month pap since I had an abnormal pap with severe dysplasia and had to have a LEEP about a year ago. My 4 month pap was ok, so hopefully this one will be ok and I can resume the annual review. I mentioned my non-existent sex drive and she said that that is likely due to my long term BCP use, and that a) it would take me going off the pill for a long time (at least a year probably) to see if this will reverse itself; b) it may never reverse itself (awesome!); c) any contraceptive that uses hormones (patch, shot, etc.) will have the same problem with me. So when does the fun start?

She recommended the Mirena IUD. I asked specifically about the CD and my immune system being out of wack. She didn't seem to think it's an issue. But from doing some reading, the IUD is contraindicated for people with poor immune system functioning and for people with abnormal cells in their cervix. So I'm kind of scratching my head about why this was even presented as an option.

I was curious if there are any gals with an IUD, and what your experience has been? I'm not very excited about the idea. We have no children, and really don't plan on having kids. I'd prefer not to get my tubes tied (I'm 32).

Thanks for reading and for any tips!
"Only the meek get pinched...the bold survive."


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 9/17/2008 2:45 PM (GMT -7)   
Did you see the article loobyloo just posted? It might have some helpful information.
Currently in remission!


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/17/2008 2:50 PM (GMT -7)   
Beta,

I just wanted to lend support. I am totally in your boat. BC since about 14, low sex drive, have done patch and pills. Zero desire for kids but considering our young age don't want either of us getting spayed/neutered. IUD scares me too much. I hate condoms and find them irritating. The shot is too scary since it lasts for a year. And I don't trust the Catholic method and as said before, dont want kids at all!
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 9/17/2008 3:35 PM (GMT -7)   
Betagirl -- I had a conversation about my Ob about the the Mirena too. From what I understand the biggest risk of an IUD is infection due to immune issues and meds. My Ob was not concerned at all, just saying that he could put me on a prophylactic course of antibiotics right before/after placing the device. My plan is to go in sometime in the next couple of months since my annual medical deductible is met.

As for sex drive, I can relate. I think a lot of mine is my fistula/psychological, but it could be hormone related. I was off the pill for a year when the interest left, but I think I'm older too. To note, I never have periods with or without the pill. So, my Ob is also hoping that the Mirena will provide a small amount of hormone. I started the pill back up again a couple months ago to see if it changed interest level to no avail. Maybe the right person would change that! ;-) I'm not even dating so I am not worrying too much right now.
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--methylpred - finally off 6/15/08, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-yr-old girl


Betagirl
Veteran Member


Date Joined Jan 2003
Total Posts : 1928
   Posted 9/17/2008 6:35 PM (GMT -7)   
Thanks for the info, inflamed, I'll check out that link. Fitzy - LOL @ the spayed/neutered comment. I was thinking that earlier. sr5599 - thanks for the info about the antibiotics. My concern is PID or something similar. My only CD med right now is Humira, which I'm testing coming off of. My GI would like to see me off of it by next year, so we'll see. So I'm technically not immune suppressed like I have been in the past. But lord knows the CD has a mind of its own :)
"Only the meek get pinched...the bold survive."


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 9/17/2008 8:22 PM (GMT -7)   
I read the other link today about IBD and fertility. I think I read something about the risk of IUD being only the first few weeks after placement. You'd have to ask an Ob, but that's what stuck in my mind. I've decided I am just going to really note any discomfort after it's placed and how those feelings might differ from my typical Crohn's pain.
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--methylpred - finally off 6/15/08, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-yr-old girl


SallyC
Regular Member


Date Joined Nov 2004
Total Posts : 158
   Posted 9/18/2008 10:54 AM (GMT -7)   

Hi!

I just had the mirena put in about 3 weeks ago. Not long, I know, but so far so good. I didn't have any spotting or cramping and my period was normal if maybe even a little lighter. I have four kids and at this time do not want anymore anytime soon. I was told that I may have some side effects for the first 3-6 months but really if I have any problems they can remove it. My nurse did say she wishes she could get it but because she hasn't had any children they won't put one in. Didn't ask her why. I take 6mp and my doctor never said I couldn't get it because of my crohns. I am nursing twins so my sex drive is low anyway so Im not sure if that is effected. Let me know what you decide. Maybe try getting a secong opinion?

Good Luck,

Sally


Sally
 
Diagnosed with UC in July of 2003 then diagnosed with Crohns in August of 2006.


Betagirl
Veteran Member


Date Joined Jan 2003
Total Posts : 1928
   Posted 9/19/2008 4:30 AM (GMT -7)   
Thanks Sally!
"Only the meek get pinched...the bold survive."


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 9/19/2008 6:10 AM (GMT -7)   
Hey beta.....I'm actually in Chicago until later this morning!  I had to spend a week working at our office here and wish I had thought to send post to you
 
As far as the IUD....I don't have one, but my sis tried it briefly.  She had issues with major cramping.  Was that her UC or her history of menstrual issues, we don't know.  I just know she had wicked cramping and had it taken out quickly.
I had tried the depo shot and it did not make things any better (actually all it did was make me gain weight extremely fast---fat crohnnies don't need that!) smilewinkgrin
 
I'm with you on the no drive left.  Sometimes I feel like it's actually in reverse!  I'm 42 and we know we are past the time to have kids, but I am not putting myself through surgery for something that is not truly a necesssity.  I am just hoping I have early onset menopause cool .  What is the usual age for menopause????  My mom had kids until she was 40, sis had endometriosis and many surgeries and other sis had 4 kids and many surgeries---I don't have a good family history of normal menopause to know what to expect.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


SallyC
Regular Member


Date Joined Nov 2004
Total Posts : 158
   Posted 10/7/2008 5:59 PM (GMT -7)   
Hey!
Didn't know if you were still thinking of the mirena but wanted to give you an update.

I just went into one of the worst flares in the 5 years I have had this disease. The only time I get this sick is after the birth of a child. I thought for sure it was from the mirena. My GI of course said no way and my OB is off until tomorrow. I went and saw a different doctor in his office today and she put my mind at ease. She has crohns and understands why I would think this but she had even called the makers of Mirena and was assured it was safe for those with crohns. She did tell me if I continue to flare that in the future we may want to remove it. Long story short, after a lengthy discussion with her I have decided to give it more time. It helps that my flare by some sort of miracle or maybe the entocort, is almost non existant right now. As far as increased infection she said that has to do with if you test positive for a sexually transmitted disease.

Besides all of that I absolutely love the Mirena as my period is supposed to start Saturday and I do not have one symptom of pms! Yeah!

Keep me posted on what you decided to do.

Sally
Sally
 
Diagnosed with UC in July of 2003 then diagnosed with Crohns in August of 2006.


mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 10/7/2008 6:54 PM (GMT -7)   

Hi there,

I have the mirena as well, and have had it for a few months, I havent had any problems with it, however, putting it in, was a different story, it hurt real bad, a lot of heavy cramping, i have a child, but did not deliver vaginally, i had a cesarean, I think the reason for there needing to be child birth involved, is because it is quite a procedure, and so is giving birth so I hear.

My periods are pretty much nonexistent, which is fine by me, my cramping and stuff started before I got the mirena, so i know its not because of the iud.

 


30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.
-----------------------------------------------------


prof
Veteran Member


Date Joined Feb 2003
Total Posts : 1195
   Posted 10/7/2008 9:10 PM (GMT -7)   

My gyn had suggested Mirena for me....  Try it what do you  have to lose.

Can't take it now.....  since I was Dx. with breast cancer ALL birth control pills etc. out.  Anyway... was going top use it for PMS pain etc... 

 

Prof


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