Please, please help me figure out what is going on

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kam#7
Regular Member


Date Joined Jun 2008
Total Posts : 125
   Posted 9/18/2008 4:27 PM (GMT -7)   
I am hoping that one of you has had this combo of symptoms and can tell me what you did about them...I am miserable and I need some feedback...please :-(

about 1 week ago I finsihed a 10 day course of cipro for a UTI. I just had my follow-up urine culture and it showed everything is fine...

For almost a week now, I have had a feeling of pressure on my bladder and pressure in my rectum. The whole area feels "full" and uncomfortable.

I continue to have symptoms of a UTI - I constantly feel like I have to pee and not a lot comes out when I do urinate. But almost every time I sit on the toliet, I start spasming and have D. Big, uncontrollable spasms...feels like my head will explode - type spasms. It almost feels like my butt, bladder and vag are going to explode and become one big hole...(sorry for the visual)

My poop is mostly liquid at this point and seems to have a lot of mucus in it - looks like an oil slick in the toliet (sorry again for being so graphic).

If I try and pass gas without being in the bathroom, I end up pooping my pants - lovely.

Other symptoms - tired, tired, tired. I have also been running a temp in the 99.2-99.8 range - which is high for me - I NEVER run fevers over 100.

You can see the meds I take below - they only new one (about 3 months ago) is Imuran. Doc has checked my blood and everything looks good.

He told me to head to the gynecologist tomorrow.

ANY thoughts would be sooooo appreciated - thank you so much for reading this.
35 year old female - Diagnosed w/Crohn's 2002 - Surgery 2004

Currently taking: Pentasa, Entocort, Imuran, Immodium, Zoloft, Wellbutrin, Seroquel


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/18/2008 4:39 PM (GMT -7)   
The first symptoms you described sound a little bit like a kidney stone. Is there any possibility that you might have one?
I'm really not sure about the rest...let us know what the doctor says? I hope you feel better...
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 9/18/2008 6:10 PM (GMT -7)   
If I were in your shoes, the only thing I can think of would be to have a scan (CT or MRI) to check for any possible abscesses or fistulas. The pain part is what worries me more than the D... and if the abscess is bumping up against your bladder that might explain the UTI symptoms continuing despite being treated...

Kidney stones are a possibility too, like LMills said. Also maybe gallstones? I'm not sure how they find those, though...

I wish I had an "AH-HAH" type of answer, sorry. I really would get a scan of some kind though.
Good luck with everything... ((hugs))
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Currently running on Humira and Hope.
(miscarried at 13 weeks, now waiting to heal before trying again)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/18/2008 6:20 PM (GMT -7)   
Hi I really don't know but what is your Dr. sending you to a gyno for? Sure hope you get things feeling better soon. Keep in touch and let us know what is going on.Maybe he just wants you checked out to see if they can find the problem . lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


kam#7
Regular Member


Date Joined Jun 2008
Total Posts : 125
   Posted 9/18/2008 6:53 PM (GMT -7)   
Thank you for all of your responses. I thought about kidney stones, but aren't they brutally painful? I am feeling tons of pressure, but not intense pain. Also, if I had an abscess or fistula, wouldn't there be an infection that my doc would be able to see in my urine?

Anyone else out there have this horrible pressure?

Thanks again. ((((hugs))))
35 year old female - Diagnosed w/Crohn's 2002 - Surgery 2004

Currently taking: Pentasa, Entocort, Imuran, Immodium, Zoloft, Wellbutrin, Seroquel


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 9/18/2008 6:54 PM (GMT -7)   
For a long time I thought it was my bladder that hurt... turned out a fistula in the rectal region. not saying that's what your situation is, but it is something that came to my mind. The rectum and the bladder are quite close and it's tough to tell the difference. However, I never had any UTI symptoms - burning during urination, blood in urine, or even frequency. It just hurt like heck every time I sat on the toilet - for either reason. I also ran a fever, low-grade over severals weeks/months.

Just one idea, talk to your doc and get the tests done... Hope you feel better soon!
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--methylpred - finally off 6/15/08, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-yr-old girl


MrsK
New Member


Date Joined Jun 2008
Total Posts : 5
   Posted 9/18/2008 7:24 PM (GMT -7)   
Maybe it is a C. diff infection: they often follow a course of antibiotics. A nurse told me the telltale sign of this infection is a stool that looks something like beef consomme. :/ Low-grade fever and diarrhea are also consistent as far as I know. Ask your doc to get a lab test if he doesn't suggest it first. I hope you get some relief soon.

Edit: this site says Cipro is occasionally associated with C. diff infections.

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 9/18/2008 7:31 PM (GMT -7)   
If you had an abscess, it would not show up in your urine.....an abscess is a walled off area of infection. You do not want it to break open and leak out. You will get deathly sick. I would also ask for a ct scan or mri. It does sound like an abscess and/or fistula to me.

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/18/2008 10:12 PM (GMT -7)   
A couple of guesses - the antibiotics that showed a clear culture yet left you with continuing urgency suggests urethritis - inflammation caused by the Crohn's inflammation. The continuing D and fullness in the area as well as the fatigue and fever could all be from a flare. Antibiotics often kill off the beneficial bacteria - the ones that help control inflammation and leave the ones that cause trouble. For the spasming, the only thing that I know that might help is turmeric - but it won't work as well if it is just shooting through the gut and you will have hot poo if it is not in the gut for at least 12 hours. You could try probiotics for a few days followed by bee propolis. If you can get the D under control, definitely try the turmeric. It should help the urethritis as well as the spasms.

kam#7
Regular Member


Date Joined Jun 2008
Total Posts : 125
   Posted 9/19/2008 7:57 AM (GMT -7)   
I am off to the gynecologist today....hoping he can help

Thanks again for all of your responses. I have a list of questions to discuss with my docs

I will let you know what happens.
35 year old female - Diagnosed w/Crohn's 2002 - Surgery 2004

Currently taking: Pentasa, Entocort, Imuran, Immodium, Zoloft, Wellbutrin, Seroquel

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