Im absolutley sick to death of being sick. I just want t give up. But after ivebeen reading around this forum, I believe I am truely grateful mine isnt worse then what it is. I have never known anyone else with CD, IBS, Spastic colon, and kidney problems. Ive never had anyone to talk to that can understand. I have an absolutley wonderfull support from my mom. But mom is mom. Well I am a mom myself of 3 kids. And I swear my husban counts as a 4th kid sometimes! LOL! Anyway, Im to start taking Humera soon. Ive been on most of the other CD drugs such as asolcol, pentasa, prednisone, antibiotics, etc,etc. Ive also been on Remicaid and had such a severe reaction, I almost died. I got the 1st injection and OMG, life was almost normal for once. Then I went back for a second infusion. The reaction was severe. They said I developed antibodies to remicaid. I tried a third time with remicaid and was given steroids and benadril to ease the reaction. They had to shock me back! So I swung into such a depression and to make it worse, my GI just handed me off to some unknown because he was moving. I go tso depressed and fustrated, I quit seeing any kind of doctor. I then tried to self medicate and became a drug addict. I found a doctor to give me 900 percocet a month. I then decided to try methanphetamine. I almost killed myself. I am now a recovering addict for the last 3 years. Ill never do it again. Im trying to do what is right now and am extremely wary of what I take and what doctor I choose. Since I quit the drug use, I went into remission for almost 2and 1/2 years. Ive been having some serious flairs again. I also have severe kidney problems when my CD flairs. Ive had to have 2 lythotripsy's this year for kidney stones and am scheduled for a 3rd in October. Anyone else have kidney stones due to CD? The GI Ive been seeing is a super good GI. He has me on percocet-which I take very carefully, predisone and I had a antibiotic, and ativan for my anxiety. I am waiting to see if I can get approved for humera. I have no insurance so Im going thru a donation place to see if Im approved. Im really hoping for this humera as Ive heard that its like remicaid. I want this so bad. However, Ive heard that it could cause cancer among other serious side effects. Id like to hear of some of you who has taken the drug and what you think.
Im really frustrated. But I guess I need to work on being grateful that it isnt as bad as some of those that I read about on here. This site has been a wealth of information and Ive been telling others about it too. Thanks so much for the help here.