So many questions and alot of fear.

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savkelchr
Regular Member


Date Joined Sep 2008
Total Posts : 33
   Posted 9/19/2008 10:51 AM (GMT -7)   
Im absolutley sick to death of being sick. I just want t give up. But after ivebeen reading around this forum, I believe I am truely grateful mine isnt worse then what it is. I have never known anyone else with CD, IBS, Spastic colon, and kidney problems. Ive never had anyone to talk to that can understand.  I have an absolutley wonderfull support from my mom. But mom is mom. Well I am a mom myself of 3 kids. And I swear my husban counts as a 4th kid sometimes! LOL! Anyway, Im to start taking Humera soon. Ive been on most of the other CD drugs such as asolcol, pentasa, prednisone, antibiotics, etc,etc. Ive also been on Remicaid and had such a severe reaction, I almost died. I got the 1st injection and OMG, life was almost normal for once. Then I went back for a second infusion. The reaction was severe. They said I developed antibodies to remicaid. I tried a third time with remicaid and was given steroids and benadril to ease the reaction. They had to shock me back! So I swung into such a depression and to make it worse, my GI just handed me off to some unknown because he was moving. I go tso depressed and fustrated, I quit seeing any kind of doctor. I then tried to self medicate and became a drug addict. I found a doctor to give me 900 percocet a month. I then decided to try methanphetamine. I almost killed myself. I am now a recovering addict for the last 3 years. Ill never do it again. Im trying to do what is right now and am extremely wary of what I take and what doctor I choose. Since I quit the drug use, I went into remission for almost 2and 1/2 years. Ive been having some serious flairs again. I also have severe kidney problems when my CD flairs. Ive had to have 2 lythotripsy's this year for kidney stones and am scheduled for a 3rd in October. Anyone else have kidney stones due to CD? The GI Ive been seeing is a super good GI. He has me on percocet-which I take very carefully, predisone and I had a antibiotic, and ativan for my anxiety. I am waiting to see if I can get approved for humera. I have no insurance so Im going thru a donation place to see if Im approved. Im really hoping for this humera as Ive heard that its like remicaid. I want this so bad. However, Ive heard that it could cause cancer among other serious side effects. Id like to hear of some of you who has taken the drug and what you think.
 
Im really frustrated. But I guess I need to work on being grateful that it isnt as bad as some of those that I read about on here. This site has been a wealth of information and Ive been telling others about it too. Thanks so much for the help here.

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 9/19/2008 12:29 PM (GMT -7)   

Welcome....

I went on Humira recently and I love it. I hope it keeps working for me. I did an injection last night and no pain. (I found a fatty spot on my tummy and I ice the area well) Sometimes it does hurt but not too bad so i can deal with it.

It is great to come here and share I hope you will stay for a while. Sounds like you have had some problems but are on the way to getting better. good for you, just stay that way. :-)

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

Diagnosed w/ General Anxiety Disorder in 2005- Effexor and Clonazepam 

 


savkelchr
Regular Member


Date Joined Sep 2008
Total Posts : 33
   Posted 9/19/2008 12:34 PM (GMT -7)   
Thanks karen. Ive been dealing pretty well. I just have alot of doubts where it concerns the humera and lupus. Ive been reading here that it seems there is a definite link between women on humera and lupus. I also dont understand the constant kidney stones with the crohns. And I will be hanging around alot! smilewinkgrin

kimberlayn
Regular Member


Date Joined Jul 2007
Total Posts : 239
   Posted 9/19/2008 4:23 PM (GMT -7)   
Humira and remicade are similar in their risk for cancer. I'm waiting for approval for Humira through my insurance, they seem to be dragging their feet on it. Abbot will help paying for it if you're eligible, check their website. I'm really sorry for everything you've gone through with this, but you sound like a very strong person. To kick meth is quite an accomplishment, and if you can do that, I'm betting you can do anything you set your mind to. I hope you start feeling better soon.
diagnosed w/Crohn's 11/06. 34f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bentyl, vicodin as needed, metoprolol for orthostatic hypotension and heart palpitations. Bowel resection 9/07. Active disease back, darn it 8/08. 11 year old son with IBS-C, on Bentyl.


kam#7
Regular Member


Date Joined Jun 2008
Total Posts : 125
   Posted 9/19/2008 9:38 PM (GMT -7)   
Welcome!

I am sorry to hear about your frustration, although I can totally relate. I think you will find this board very comforting. Also, I am a recovering alcoholic - 6 years. I have found that I treat my crohn's the same way I treat my alcoholism, 1 day at time. I use the principles of my twelve step program across all aspects of my life which really helps me during tough times

Keep in touch :-)
35 year old female - Diagnosed w/Crohn's 2002 - Surgery 2004

Currently taking: Pentasa, Entocort, Imuran, Immodium, Zoloft, Wellbutrin, Seroquel


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 9/19/2008 10:55 PM (GMT -7)   
hope you feel better soon!  i'm a 35 yr old male and I have had 2 kidney stones--i'm assuming related to crohn's because i've had that for 20 years now...they hurt!!!  i've been flaring for approx a month and a half now...60 mg of pred did nothing so now doc wants me on cimzia...kind of scary...but I NEED to feel better for my 3 yr old daughter so here we go!!  good luck to you!!!!!!!!!!!!!!!!!!!!!!!!!!!!1
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