How long does it take to lose the Prednisone "weight?"

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Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 9/20/2008 4:36 AM (GMT -6)   
Good morning, everyone!  I have been steroid dependent for 2 years.  I have been on 12mg for a long time.  My GI and I are trying a SLOW Pred taper, one mg a month.  I am finally down to 10mg as of yesterday.  (10 more months to go, lol!)
 
My question is, how long before you notice the Pred weight going away, ie. big belly, moon face, etc.  Did you need to be off it completely, or did you notice the weight start to go away when you hit a certain mg?
 
Hopefully the taper will go well.  I'm just so tired of lugging around this extra weight and looking like a deformed chipmunk for the past two years.....    Blessings, Julie :-)
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 8mg/kg every 6 weeks, Prednisone 11mg/day, Miralax daily, Prevacid 30mg, Vit B12, Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


Wakabo
Regular Member


Date Joined Sep 2008
Total Posts : 41
   Posted 9/20/2008 5:14 AM (GMT -6)   
You are not alone!! I hate the prednisone weight and for me so far its been really hard to lose. The moon face though did go away after about 3 weeks but the weight I gained at my waist is still there. Hopefully someone will have some advice for you that I can use too! Take Care
JenG
 
Crohns since 1994, inflammatory arthritis
Allergic to Remicade which helped me so much for about 3 years
Allergic to Imuran
Taking Asacol and Aciphex, rowasa enemas, prempro, synthroid, xanax, darvocet, elavil, cymbalta, folic acid and vitamin D


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/20/2008 6:50 AM (GMT -6)   
I've heard 10 mg is the magic dosage to start seeing symptoms disappear. But this is just what I have heard from a lot of people so that could have been coincidence. Maybe you will start to notice soon? Let us know how you are doing on that.
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 9/20/2008 8:44 AM (GMT -6)   
it takes quite a while. you end up gaining a lot of extra water weight and such from the prednisone. i suggest hitting the gym hard, even now. go on a modified version of atkins (ie carb ceiling at say 80 grams net carbs per day instead of 15) for a few months. this should help shed the pounds. changing your diet from caloric dense food (ie processed/refined and prepared foods) to nutrient dense food (ie real food) should help too. have patience cos it is a slow process.

i never truly lost all the weight until i had surgery and from complications of not being able to eat for my 13 day stay in the hospital i lost like 30 lbs and that was what did it for me. but i dont recommend this drastic route. what i suggested above is better.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 9/20/2008 1:54 PM (GMT -6)   
Thank you all so much for your feedback. It is greatly appreciated!!:) Blessings, Julie
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 8mg/kg every 6 weeks, Prednisone 11mg/day, Miralax daily, Prevacid 30mg, Vit B12, Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


meowese
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 9/20/2008 2:22 PM (GMT -6)   
I haven't lost any of my pred weight. sadface.
Crohn's (diagnosed in 2006 and currently in remission), severe migraines, Seborrheic Derm., Hemolytic Uremic Syndrome (1994), chronic pain, ulcers/GERD and possibly Lupus. Medications: Nexium, Pentasa, Percocet and Vicodin as needed, Flintstone Vitamins (my favorite part!), calcium and magnesium supplements, vitamin D once weekly. I follow a low fiber, low residue diet.


Wakabo
Regular Member


Date Joined Sep 2008
Total Posts : 41
   Posted 9/20/2008 9:29 PM (GMT -6)   
Well meowese you are not alone not that that makes it any better :)
JenG
 
Crohns since 1994, inflammatory arthritis
Allergic to Remicade which helped me so much for about 3 years
Allergic to Imuran
Taking Asacol and Aciphex, rowasa enemas, prempro, synthroid, xanax, darvocet, elavil, cymbalta, folic acid and vitamin D


Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 9/20/2008 10:01 PM (GMT -6)   
WOW! You guys actually lose your Pred weight! ;) Ugh! I'm dreading this one. I saw about 10lbs go at first, but that was it. The moon face went after about a month. I'd cut out your sodium intake as much as possible too, because a lot of what we are dealing with is water retention. I'm right there with you. Have gained 19lbs with it this time. I've been trying to stick to healthy snack options, but that doesn't always work. You don't necessarily need to hit the gym, as much as you just need to do something. Be it walking, housework, or some other activity.

I noticed my acne, and moon face started to disipate some after I went to 5mg. But, then they bumped me back to 30mg quickly after I lost 4lbs in 2 days due to flare. Now, I'm awaiting a clinical trial. I cannot WAIT to stop the darn steroid and take my body back!
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old


natasha24
New Member


Date Joined Oct 2008
Total Posts : 1
   Posted 10/2/2008 3:31 PM (GMT -6)   
I'm an 18 year old girl recently diagnosed with Susac Disease. My specialist tells me I'm the 15th person in the world to have it, even though the internet claims around 200. I started on prednisone at the end of March. It helps to make the disease I have go away faster, rather than the 5 years it takes. I started off at 60mg and am now on 5mg. The "moon face" for me, started to go away when I went down to 10mg. It didn't completely go away, however. Personally, I didn't really notice but my family and friends did. I stayed at the same weight while my prednisone was being lowered. My moms cousin was also on prednisone for breast cancer. She told me that it took her approximately 6 months to lose the weight, and three-four weeks to completely lose the "moon face." She has a very slow metabolism and always needed to watch what she ate, so my specialist told me that the quicker your metabolism is, the faster the weight will come off.

lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 10/2/2008 10:42 PM (GMT -6)   
I started losing weight at 10mg. Thank goodness...I always puff up like marshmallow man in ghost busters. I have been on and off of prednisone consistently the past two years and know all about the wonderful weight fluctuation. But, if it's the only thing that keeps you in remission, you gotta do what you gotta do.
turboemma.blogspot.com/


wicked wendy
New Member


Date Joined Oct 2008
Total Posts : 18
   Posted 10/4/2008 2:10 AM (GMT -6)   
confused  can anyone tell me, am i the only fat chrohns sufferer. i so far have not had the weight loss side affect dispite having severe fistulating chrons and surgery.  pred just made me gain more weight and i'm finding it hard to lose can't eat traditional diet food such as salads because of chrohns. my specialist says it is a good thing not to lose weight as i may need it later on but really who wants to be the fat girl with chrohns

dramabean
New Member


Date Joined Sep 2012
Total Posts : 1
   Posted Today 5:08 PM (GMT -6)   
Hi Wendy,

No, you're not alone -- I'm also overweight and have Crohn's. I lost 30 lbs in about 2 months when I was first diagnosed, but I gained all of it (and a little extra) back after being put on Predisone. The moon-face went away about 2 weeks after I stopped taking it, but it's been a month and a half since I've been off it and have had absolutely no changes. I'm relatively careful about what I eat and I work out a few times a week, so I'm wondering if it just completely trashed my metabolism.

If you guys have any suggestions for getting the weight off (going to "real food" generally causes flare ups, so I try to stick with fruit and gluten-free sandwiches -- it's a boring diet), I'd really appreciate it; I'm starting school in a month, and I don't need my weight issues as an added stress :(.

mistycole
New Member


Date Joined Jun 2013
Total Posts : 1
   Posted 6/20/2013 1:03 PM (GMT -6)   
Hi everyone! I was wondering if any of you who are having trouble losing the weight have been tested for Cushing's syndrome? It is a simple blood test that tests the level of cortisol in your system, which is raised when you are on prednisone for long periods of time. My gastroenterologist mentioned this to me when I noticed my swelling was not going down and I also had increased bruising.

medical truth plz
New Member


Date Joined Aug 2013
Total Posts : 2
   Posted 8/7/2013 2:19 AM (GMT -6)   
Hi everyone, New to this forum
I understand your frustrations. I have been on and off unfortunately more on that off prednisone for the last approx 5 years for asthma and COPD. Unfortunately my body has developed a addiction to it as I hear many others have had to deal with. I have tried to get off of it numerous times over the last year and get to a certain point where my body gets an infection either starting from an allergy or stress or ?? and I am right back on the cycle of having to take an antibiotic and you got it...prednisone again.
The breathing part is what is so scary. Many of you understand what it is like when you cannot breath...in or out and then of course you stress which makes it even worse.
I am currently tapering under Dr.s care and down to 8.5 dropping 2.5 weekly

Looking like I am 7 mos pregnant ( not possibal 62 yrs old) horribal fat roll around my stomach the moon face etc. I am normally a fairly thin small boned woman weight about 125 now I feel horribally bloted and cannot stand this hoping it goes away soon? Got real bad this last time I had to increase because of flair up again....I hate this drug

Good luck to all of you who suffer with this life altering drug. It certainly has changed my life the only good thing is that it allows me to breath. However i am scared to death of some of the side effects such as potential diabeties, chrones, heart attack etc etc.

eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 8/10/2013 4:02 AM (GMT -6)   
hey everyone,currently back on the pred at 20mg (crossing my fingers tht 20 will wrk and i wont have to go up to 40) so with the weight loss with the pred i reakon most of mine is all of the bloody water rentention so i strted out @ 68kgs was on 40mg of roids which basically turned me into wolverine (i swear to god my eyebrows were growing up my forehead) got to 83kgs was off them for about 3-4months down to 73kgs w/o doing much exercise so the 5kgs left over is basically just me getting fat from all the food i ate while on the 40mgs SO im not eating so much now,keep telling myself to actually strt wrking out and combat that preggers belly u get from the roids but seening how my stupid stomach wont stop hurting atm dont exactly feel up to doing some sit ups.
24 yrs old



25mg methotrixate


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