New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Wakabo
Regular Member


Date Joined Sep 2008
Total Posts : 41
   Posted 9/20/2008 3:31 AM (GMT -7)   
My GI is recommending a probiotic called Florastor. Anyone been on probiotics and had any luck with them??
JenG
 
Crohns since 1994, inflammatory arthritis
Allergic to Remicade which helped me so much for about 3 years
Allergic to Imuran
Taking Asacol and Aciphex, rowasa enemas, prempro, synthroid, xanax, darvocet, elavil, cymbalta, folic acid and vitamin D


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/20/2008 4:48 AM (GMT -7)   
I was taking acidophilus and recently switched to one with acidophilus and three other probiotics in it. I have definitely noticed a difference so I'm hoping you'll have the same. You just have to give it a little bit of time and be careful about what you eat(don't want to feed the bad bacteria).
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 9/20/2008 6:22 AM (GMT -7)   
This question comes up here periodically. I don't understand medical doctors' obsession with this brand. Do they get a kick-back? confused

In previous discussions here, my recollection is most folks reported MORE gas and bloating on this product. Maybe someone will jump in who has had positive results. With CD, there are always exceptions....

Florastor has ONE strain of a probiotic called Saccharomyces boulardii--a strain of yeast. S. boulardii and FOS are two pre/probiotics which Elaine Gottschall warned *against* for Crohn's and UC after spending decades studying this on a cellular level. Articles from the alternative health community state to take an acidophilus based probiotic or a probiotic with varying strains. Most probiotics at reputable health food stores DO NOT contain S. boulardii. I know because I've checked. I'm going to put my stock in the alternative health community on this--they've been at it MUCH longer. It seems that most medical doctors are still opposed to probiotics or on the fence as to whether they are even beneficial. At least this has been our experience.

Many folks here swear by probiotics and there are many, many good brands on the market. Look for one with acidophilus and guaranteed "colony forming units" (CFU's) (survive stomach acid and make it to the intestines). Good luck!
Mom to 16 year old boy diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more SCD recipes, too! (cooking challenged)


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/20/2008 7:02 AM (GMT -7)   
I've tried several different brands including Florastor. I've had bad results from all. Increased gas, bloating, cramping..... So at my last doctors appointment I asked if there was anything I could do, and his recommendation was Align, a different brand. You have to have your pharmacist order it or order it online. I waited several months because I didn't think yet another probiotic would be the answer. But finally I ordered it and started taking it on Monday. I have noticed a difference. Its too soon to be sure that it is from the probiotic, but I'm hopeful that finally I have a something that will make me able to be out in public without leaving toxic fumes in my wake!
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


reynoldi
Regular Member


Date Joined Aug 2005
Total Posts : 244
   Posted 9/20/2008 7:51 AM (GMT -7)   
first: they could get a kick back. second: i will not take some ladies word about her research(use your own) third: ANY PROBIOTIC WILL GIVE YOU GAS.  It is building up in your intestinal tract and when the "good" and the "bad" bacteria go at it, there is going to be a by-product.
 
from what ive seen Saccharomyces boulardii is ideal in high temperatures. lactobacillus acidophilus seems to be ideal in high acidic environments.
 
Saccharomyces boulardii seems to have more data, while lactobacillus acidophilus lacks data.
 
 
 
"If thou wilt be observant and vigilant, thou wilt see at every moment the response to thy action. Be observant if thou wouldst have a pure heart, for something is born to thee in consequence of every action." -Rumi-
 
CD for 15 years diagnosed at age 11(i get the crohns cycle)


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/20/2008 8:12 AM (GMT -7)   
Reynoldi-are you referring to Elaine Gotschall? Not that it might matter to you but she IS a biochemist and has done years of research. I would say that in some cases, that counts more than some of the most informed decisions we make for ourselves. At least she has the education and years of experience as well as observance of case upon case to back her word up.

Wakabo-there is also a brand by the name of FloraQ that has been highly recommended. You might try to research that one as well. Either way, probiotics "can't hurt" or so were the words of my GI.
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 9/20/2008 9:29 AM (GMT -7)   
My research led me to Elaine Gottschall's research. We would not want me in a lab actually performing the research! skull smhair

Also, I don't agree with "ANY PROBIOTIC WILL GIVE YOU GAS". Though I understand this CAN happen initially, many people here report reduced gas and bloating immediately on a good probiotic. I know my son felt that way from day 1. I guess we're back to "individual results may vary".....

Wakabo, for the record, we use Theralac which you can google to read about. We've also used VSL#3 when he had to take an antibiotic for bronchitis. Both of these brands are a bit more costly than some, but we've been happy with them.
Mom to 16 year old boy diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more SCD recipes, too! (cooking challenged)


Illini
Regular Member


Date Joined Dec 2007
Total Posts : 298
   Posted 9/20/2008 10:54 AM (GMT -7)   
I use VSL#3 and primadophilus reuteri. Gas is not an issue. I have noticed I feel worse when I stop temporarily. I have been taking these for six months.

VSL#3 has undergone some clinical trials with good results (not yet published for Crohn's), but the cost is high. There are also a few journal articles on Lactobacillus reuteri / reuterin.

There is some positive data for S. boulardii but people might be hesitant to try it because it is a yeast. Many with Crohn's (myself included) already have antibodies against S. cerevisiae, so I am waiting for more data.

Also thought I would add:

I asked my GI before I started probiotics and Omega-3's and his response was "sure, they can't hurt; anyways I take them myself"

Also keep in mind that Crohn's is very heterogeneous, so whatever works for someone might make someone else gassy... tongue I do not think it is fair to generalize.
July 2007 Drug-Induced Liver Injury
January 2008 Crohn's Ileitis
Currently trying...
Entocort, Enteral Nutrition, Omega-3 (Flax Oil and Fish Oil), VSL#3, Vitamin E

Post Edited (Illini) : 9/20/2008 12:11:02 PM (GMT-6)


meowese
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 9/20/2008 11:04 AM (GMT -7)   
I was using Acidophilus and all I noticed was increased gas so I stopped. I have been thinking of going back on it. I was drinking these little yogurt cups and they were quite EXPENSIVE! I bought them at Whole Foods. My doctor recommended Acidophilus but also recommended that it be 'live cultures'.
Crohn's (diagnosed in 2006 and currently in remission), severe migraines, Seborrheic Derm., Hemolytic Uremic Syndrome (1994), chronic pain, ulcers/GERD and possibly Lupus. Medications: Nexium, Pentasa, Percocet and Vicodin as needed, Flintstone Vitamins (my favorite part!), calcium and magnesium supplements, vitamin D once weekly. I follow a low fiber, low residue diet.


reynoldi
Regular Member


Date Joined Aug 2005
Total Posts : 244
   Posted 9/20/2008 11:21 AM (GMT -7)   
yes i am referring to her, but that was to point out do your own research( not attack her). when introducing a new organism to the digestive track there will be a result of that(chemical by-products). as things balance out "gas" should lessen.  have a good day
 
 
"If thou wilt be observant and vigilant, thou wilt see at every moment the response to thy action. Be observant if thou wouldst have a pure heart, for something is born to thee in consequence of every action." -Rumi-
 
CD for 15 years diagnosed at age 11(i get the crohns cycle)


infoarch2
New Member


Date Joined Sep 2008
Total Posts : 19
   Posted 9/20/2008 2:45 PM (GMT -7)   
My daughter was first diagnosed with Crohn's disease November 2003. I had never heard of the diseased prior to her diagnosis. Since that discovery, I’ve numerous hours researching the disease and the various treatment options available for treating and managing the disease.

I’m currently enrolled in a MS degree in Health Informatics at the University of Missouri, and I need to write a thesis. For my thesis, I have written a survey specifically designed for patient's suffering from Crohn's disease. The survey is intended to collect data about the treatment methods used by the patients, their knowledge of the treatment options available for treating/managing the disease, and the primary sources of information they used for educating themselves about the disease and it’s treatment options.

I would greatly appreciate if you could take a few moments to fill out the survey. Your personal experience is very important and I would like to hear about it. The survey form is fully encrypted, contains no personally identifiable information, and has been approved by the University of Missouri IRB. Parents of children diagnosed with the disease can fill out the survey on behalf of their child. I will make my thesis available once I’ve completed it, which I’m projecting to be somewhere in the October-November time frame.

I have received permission from Peter Waite of Healing Well to post this survey.

The URL for the survey is:

https://www.surveymonkey.com/s.aspx?sm=dDs03O00OPwgncarZi41bg_3d_3d

Wakabo
Regular Member


Date Joined Sep 2008
Total Posts : 41
   Posted 9/20/2008 7:15 PM (GMT -7)   
Thanks everyone for the responses. My doctor also recommended Align or Florastor and I havent purchased either yet. Zanne-if you could let me know how you are doing on the Align in another week or so. Much appreciated input from everyone.
JenG
 
Crohns since 1994, inflammatory arthritis
Allergic to Remicade which helped me so much for about 3 years
Allergic to Imuran
Taking Asacol and Aciphex, rowasa enemas, prempro, synthroid, xanax, darvocet, elavil, cymbalta, folic acid and vitamin D


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 9/22/2008 11:23 AM (GMT -7)   
I've been using Florastor for almost three years with positive results. Due to its expense, I was talking with my doctor (a different one from the doc who dxed me) about other probiotics, and he gave me the best explanation I've ever heard of why I was put on Florastor in the first place. My initial case of UC was dxed after an extended c diff infection. Apparently the bacteria in Florator compete with c diff for nutrients, which helps to prevent future infections. Since most people that have had a c diff infection are prone to relapse, it is a very good preventitive measure. My new doc also gave me a sample of Align, but he said that was mainly for problems in the small intestine, but at the time we weren't really sure where my main trouble was, so we gave it a shot. It didn't help at all, but the sample was free, so no money down the drain there.

I did stop taking Florastor for a while and tried other less expensive probiotics. Every single one of them caused gas and bloating for the first few days or so. After my systems initial adaptation to the new bacteria, I got mixed results from various brands. I can't even remember which ones I tried, but I eventually went back to Florastor. I'm now trying VSL#3 at my doctor's recommendation since I've been c diff free for over two years, but my UC is now causing my great distress. I started the VSL#3 about two months ago, and slowly worked my way into using it. I'm now using 2 capsules 3/day, and I believe it has been working wonders. Ironically, I was looking for different probiotics due to cost, and the VSL#3 is probably twice the price of FLorastor! My insurance doesn't cover any of them, although my flex account will if I get a doctor's note saying I need to take it. Looks like I'll be doubling the flex account contribution next year! lol

Hopefully this info will help out.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06 - currently flaring
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Prednisone 30mg


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 9/22/2008 2:37 PM (GMT -7)   
my naturopath had me on florastor. It didn't effect me one way or the other and I stopped.
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/22/2008 2:48 PM (GMT -7)   
I'm one week in on the Align and so far so good. I have tried at least 4 other probiotics all with negative results. Ones that had to be refrigerated and shelf stable. And I gave them all at least a month or more. So I'm really pleased to be seeing any positive results at this point. I won't say that all the bloating and gas I had before is gone, but I'm probably down to 15 - 25% of what I had. I'll take it.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/22/2008 4:19 PM (GMT -7)   
I do well with Primadophilus Reuteri made by natures way, only one/day needed, aids with lactose intolerance (I know longer deal with severe lactose intolerance issues and don't have to use lactaid products), also with high cholesterol and for woman vaginal health (still fine for men to take)...it's affordable, in Canada I only pay 29.00 for 90 pills which lasts me 90 days.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 9/22/2008 6:25 PM (GMT -7)   
beartooth,

Yes, that does help! Thanks for the explanation from your doctor about Florastor! That IS a good explanation! So it's especially good for those who have or have had a c diff infection.... good to know!
Mom to 16 year old boy diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more SCD recipes, too! (cooking challenged)


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/22/2008 9:56 PM (GMT -7)   
Just some background on C. difficile - it is present in most people's gut. It becomes a problem when you are treated with antibiotics. It is able to survive most antibiotics while most beneficial bacteria are completely destroyed. Afterward, it remains dominant, taking over niches in the gut environment that have been left vacant by the beneficials that have been eliminated. The beneficials recover very slowly, if at all. That is one reason to take a probiotic that has a number of different bacteria species in it - to replace those lost and to re-occupy the niches taken over by bacteria like C. difficile. Another reason is that a number of Lactobacillus bacteria have anti-inflammatory properties and actually help to reduce Crohn's symptoms. L. casei, for example has been shown to reduce the production of TNF by inflamed gut tissue - just like Humira and Remicade, without the side effects (perhaps not quite as thorough).

Florastor is not a bacteria, but a yeast - it is supposed to reduce gut sensitivity and eliminate candida (Candida is not generally the cause of Crohn's problems, but some Cronnies have Candida). Being a yeast, it is more likely to produce CO2, resulting in gas, but other bacteria also produce CO2 and methane, so there may not be much difference.

VSL 3 is a mix of bacteria, but the large numbers of bacteria in that product, excellent though it may be, are reduced by stomach acids. You may get almost as much live bacteria in your gut by taking an enteric coated capsule containing only 5% of the number of bacteria in VSL 3.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/22/2008 10:34 PM (GMT -7)   
I like the primadophilus reuteri because it has guaranteed intestinal release...guess that's why I found it more effective than anything eles I've tried.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 9/22/2008 10:45 PM (GMT -7)   
I was doing well on the SCD right up until I tried VSL#3. The first time was fine, but the second time I had severe pain and bleeding. I cannot attribute such an excursion at the time to anything other than the VSL#3.

Up until that point, I had no exposure to L. bifidus (which is presumably renamed in VSL#3 as the genus "Bifidobacterium"). Now I think I understand why Gottschall specifically says no bifidus!

Jay25CA
Regular Member


Date Joined Jul 2004
Total Posts : 114
   Posted 9/26/2008 9:38 AM (GMT -7)   
I'd highly recommend the 6 strain powder from customprobiotics.com

Worked wonders for me
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 12:58 AM (GMT -7)
There are a total of 2,734,541 posts in 301,223 threads.
View Active Threads


Who's Online
This forum has 151337 registered members. Please welcome our newest member, hellokd10.
180 Guest(s), 1 Registered Member(s) are currently online.  Details
celebrate life


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer