My daughter was first diagnosed with Crohn's disease November 2003. I had never heard of the diseased prior to her diagnosis. Since that discovery, I’ve numerous hours researching the disease and the various treatment options available for treating and managing the disease.
I’m currently enrolled in a MS degree in Health Informatics at the University of Missouri, and I need to write a thesis. For my thesis, I have written a survey specifically designed for patient's suffering from Crohn's disease. The survey is intended to collect data about the treatment methods used by patients, your knowledge of the treatment options available for treating/managing the disease, and the primary sources of information you used for educating yourself about the disease and it’s treatment options.
I would greatly appreciate if you could take a few moments to fill out the survey. Your personal experience is very important and I would like to hear about it. The survey form is fully encrypted, contains no personally identifiable information, and has been approved by the University of Missouri IRB. Parents of children diagnosed with the disease can fill out the survey on behalf of their child. I will make my thesis available once I’ve completed it, which I’m projecting to be somewhere in the October-November time frame.
I have received permission from Peter Waite of Helling Well to post this survey. Thanks in advance for your support.
The URL for the survey is:
Thanks in advance for your support,