probably going off the remicade.

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Regular Member

Date Joined Aug 2004
Total Posts : 472
   Posted 9/22/2008 10:31 AM (GMT -6)   
well looks like Remicade train is running out... Wifie left and with her so did the great insurance. gotta go back to the crappy insurance (though I'd greatfull to be able to have it).
anyways I won't be able to afford the remicade treatments anymore so my question is this.....what do you guys find that works for moderate Crohn's? the Remicade was doing a good job of keeping it in check and i don't want to go back to the way things were before i was on it. I was hoping there had been some breakthroughs sine i started the remicade back in 2004.


Post Edited By Moderator (ivy6) : 9/23/2008 4:09:17 AM (GMT-6)

Veteran Member

Date Joined Jul 2005
Total Posts : 733
   Posted 9/22/2008 1:33 PM (GMT -6)   
I agree with Adam, it might be time to start really evaluating your diet. If you can and haven't already, I really recommend getting tested for food allergies. My insurance doesn't cover this, but I went Gluten/wheat-free at the advice of a doc and it has been almost as effective as Remicade for me. It sucks, because Remicade was easy and I didn't have to modify my diet or lifestyle, but really - going gluten-free isn't nearly as bad as I thought - and well worth it for me.
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Currently running on Humira and Hope.
(miscarried at 13 weeks, now waiting to heal before trying again)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson

Veteran Member

Date Joined Aug 2003
Total Posts : 1017
   Posted 9/22/2008 2:49 PM (GMT -6)   
have you talked to the people who make the Remicade, others on here have discussed how they sometimes give it at a lower price for those people who need it and do not have the insurance or funds to have it.
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 9/22/2008 3:21 PM (GMT -6)   
Sorry about the wife and the Insurance....
I went on Humira because since it is a RX I get from a Pharmacy it was much cheaper for me than Remicade. (I pay $40 per month 1 copay for Humira and would have paid 10% of Remicade infusions which could be a lot more...)
Check with your insurance and see if Humira is covered and ask your Doctor. I bet he/she might even get samples if you ask for them....
good luck!!!


Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

Diagnosed w/ General Anxiety Disorder in 2005- Effexor and Clonazepam 


Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 9/22/2008 7:49 PM (GMT -6)   
Oh, John. That's just awful. I am so, so sorry. It seems wicked and wrong that you should be put in this position, just for lack of high-level insurance.

What other medications have you tried? Have you used Imuran, Methotrexate, things like that?

I am really sorry this has happened to you.

Co-Moderator Crohn's Forum.

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 9/22/2008 7:57 PM (GMT -6)   
John, the court can order your former wife to keep you on her insurance as part of spousal support. It is common in divorce decrees to require a leaving spouse to insure the former spouse and kids. Your health is important enough that this might be pursuing. If she agrees it wouldn't cost you much more money than a regular non-contested divorce. You really should get legal advice though.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

Regular Member

Date Joined Aug 2004
Total Posts : 472
   Posted 9/23/2008 5:01 AM (GMT -6)   
She dropped out of life entirely, including her job. She just stop showing up one day. I looked into the whole COBRA thing and MAN is it expensive!

Ivy, I went from having a resection years ago directly to the Remicade when I started having problems again. so I haven't really tried other meds in the place of Remicade.

I've edited out your sig, as it is too long - Ivy.

Post Edited By Moderator (ivy6) : 9/23/2008 4:11:00 AM (GMT-6)

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 9/23/2008 8:42 AM (GMT -6)   
JohnD there are prescription assistance programs from the makers of Remicade and some other programs for any type of prescription that you should look into. Good luck!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

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