I have been trying to read as much as I can. I have some questions and wonder what you direction you would go. You each have had so much more expreience in this.
I don't have the common D, mostly jsut pain. The only time it really went away was when I took the Prednisone (20mg) my GI gave me a script for. He only gave it to me to "try" to see if that would take care of the pain. He told me my symptoms were not consistent with crohn's. Iw as diagnosed back in Feb with it in my decending and sigmiod colon. He sent me to my GYN who told me I was not suffering from anything female. I then went to a family practice doc who said maybe it ws my gallbladder. (wrong side) Had an US done, everythign looked great. Went back to GI he said well "take the pred and see if it works". It did, i felt WONDERFUL! The dosage was low enough I didn't have the horrible side effects I had 5yrs prior on it (pg with #4). The symptoms began to return on day TWO of weaning down. I am on 10mg till tomorrow supposed to wean down to 5mg for the week then go off.
He gave me a script for Entocort, I started it on Saturday. My pain is mostly in my back and on the left side (decending /sigmiod colon areas). It does move to the right side somewhat.
While takign the pred the swelling in my gut decreased and I felt awesome. I had the high that Veebo wants with the entocort. I felt great! I was/am still snappy and a wee bit of insomnia (minimal). The pain is constant.
I have 5 kids the oldest is 10, youngest 2. I stay home, luckily.
What direction would you go? OH and I had blood work done before I started the pred. It came back ALL NORMAL. I have them all confused. The pain is real! I am begining to doubt myself though.
I know you all have this DD worse than I do. Mine has been labled mild. I just feel that they are jsut trying to test meds on me, not seeing what is really wrong. Is that normal?
Sorry for my rambling.
Mom to 5 little ones. First dx of crohn's in 2003 (while pg with #4), then it was changed to IBS. 2/08 I was rediagnosed with crohn's. Most of my crohn's is int he sigmoid colon and decending colon. I'm responding to crohn's treatment, so they say it isn't my Endo. It is very hormonally charged though.
I'm currently taking Pentasa 4 2X daily
weaning off small dosage of Pred.