New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

i-heart-bball
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/23/2008 8:03 AM (GMT -7)   
Hello,
 
I have not officially been diagnosed with Crohn's Disease but my mother believes I may have it. For the past 3 years I have been suffering from loss of appetite, fatigue, really bad constipation, when my bowels do move they are really painful, I have a fullness feeling often even though I don't eat, bloating, occasional headaches, cramping, and back pains,dehydration, paleness, and constant discomfort. I was seeing a GI but he kept saying I had IBS yet none of the medicine worked or even helped, and as soon as I turned 18 he refused to see me(pediatrician). I was recently diagnosed with depression and anxiety and that is what he thought was the cause of the pain. Everytime I go to the ER(most recent:last night) they do blood work and always tell me that everything came back normal. After my aunt told me that she was recently diagnosed with CD, I told this to the doctor because I hear it tends to run in families. The doctor took a cat scan (supposedly looking directly for any diseases) of my stomach and said that everything looked normal. These issues are really starting to take a toll on me. I am a freshman in school in North Carolina and I had to quit playing basketball 2 weeks ago due to the pain and fatigue. My grades are also starting to be effected. I know that I am not crazy and I am so annoyed that doctors keep telling me everything is normal when I'm going through all of this. Did anyone else go through these? Did anyone have this test come back normal and then was later diagnosed? I just want to know what is wrong with me so that I can get better. Please help!!! Thank you.

JohnD
Regular Member


Date Joined Aug 2004
Total Posts : 472
   Posted 9/23/2008 8:49 AM (GMT -7)   
I don't know how things are now........but I think there are blood tests that can determine weather or not you have Crohn's. Here's something I found with Google

http://www.ehow.com/how_2091937_get-blood-test-crohns-disease.html

I understand your fustration. It took about ten years for me to be diagnosed with Crohn's. The not knowing what the problem was, was almost worse then the results. Atleast after we found out, we had SOMETHING to work with.


40, Married?????? w/ 4 kids
Had problems (pain, bleeding, nausea) since age 13.

Dx'd with Crohn's in Spring of 1991.
Broke the L1(mid back) in 1999
went on Remicade in early 2004.
Pain Doc believes the LLQ pain are pinched nerves
spinal cord stimulator implanted july 3, 17, Aug 27


Roxette
Regular Member


Date Joined Aug 2008
Total Posts : 63
   Posted 9/23/2008 8:52 AM (GMT -7)   
God, reading your post brought back so many bad memories for me. I was diagnosed with crohns this year after having problems most of my adult life.
I ended up in hospital with suspected appendicitas, kidney infections etc etc. Id also been treated for depression in my past.
And like you all my blood results etc came back negative for any diseases etc. It wasnt until i found a doctor who actually believed me that i got anywhere. She sent me straight for a colonoscopy and low and behold crohns was diagnosed.
It made me so angry because i knew for so long that i really wasnt well yet it seemed to be falling on deaf ears. You should insist on a colonoscopy. I am a strong believer in gut intuition. if you dont feel right you musnt be right. I hope you find a doctor like i did in the end.

JohnD
Regular Member


Date Joined Aug 2004
Total Posts : 472
   Posted 9/23/2008 8:59 AM (GMT -7)   

Is it possible for you to see a gastroenteritis?


40, Married?????? w/ 4 kids
Had problems (pain, bleeding, nausea) since age 13.

Dx'd with Crohn's in Spring of 1991.
Broke the L1(mid back) in 1999
went on Remicade in early 2004.
Pain Doc believes the LLQ pain are pinched nerves
spinal cord stimulator implanted july 3, 17, Aug 27


i-heart-bball
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/23/2008 9:11 AM (GMT -7)   
I have been talking with my campus health clinic and they are currently trying to send me to Wake Forest, where supposedly the best GI team in this region works, but after last nights normal test results, I'm not sure if they still will send me.

JohnD
Regular Member


Date Joined Aug 2004
Total Posts : 472
   Posted 9/23/2008 9:36 AM (GMT -7)   
Most of the time you have to keep insisting in order to get real help. Some places just don't want to deal with us simply because we are often not the easiest cases to work with. O.K. I guess I should say that's the way it been for me. I agree with Roxette, if your gut says there's something wrong then by-golly something's wrong! You can't give in just because someone says you don't need this or that (and I'm not trying to say you are), but you are the main one who's looking out for your best interests. So, you might need to become a thorn in someone's side to get in to see the folks over there at Wake Forest.
40, Married?????? w/ 4 kids
Had problems (pain, bleeding, nausea) since age 13.

Dx'd with Crohn's in Spring of 1991.
Broke the L1(mid back) in 1999
went on Remicade in early 2004.
Pain Doc believes the LLQ pain are pinched nerves
spinal cord stimulator implanted july 3, 17, Aug 27


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/23/2008 11:56 AM (GMT -7)   
With IBS taking meds is not necessarily all that needs to be done to control it...diet (enough fibre particularly) and exercise daily along with meds are 3 key things that can help get it under control.

Have they done upper GI tests to check your small intestines? A colonoscopy alone will not be enough to rule out crohn's disease, especially if your colon is free of CD but your small intestines could very well have signs of CD causing your symptoms.

Another possibility is you could have collagenous colitis, which is also referred to as microscopic colitis, this would be affecting your colon but not visually seen via colonoscopy, rather they'd have to take biopsies and examine tissue under microscope.

With no obvious signs of inflammation (or even microscoped signs) throughout your intestinal tract, you very well could be suffering with IBS...many IBSers are majorly impacted with their condition that's why meds, diet and exercise are crucial daily and indefinitely to help get it under better or even for some people, complete control.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 9/23/2008 1:23 PM (GMT -7)   

Welcome i-heart!

First of all, quite a few of my tests came back as normal.  I had the Serology 7 done to check specifically for Crohn's, and it was negative.  My Small Bowel Follow Through was normal.  I had an upper endoscopy and colonoscopy done and although they DID find inflammation in several areas, the biopsies were all negative for Crohn's.  Finally, I did the pill camera and that got me the diagnosis.

You know when something isn't right.  It is hard and very frustrating but I would seek another doctor and a gastroenterologist, if you haven't already.  I ended up seeing two different GIs and I have eye inflammation from this disease that I am trying to get under control.  I have seem numerous eye doctors for that by itself.

Take care and I hope you get some answers soon!


eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 9/23/2008 6:09 PM (GMT -7)   
it took forever to dx my crohns,i kinda think doctors are just stupid,i think if u believe u haf crohns then everyhting in your power to get dx,is it possible to book your self in for a colonocopy? i mean i got told i just had tummy bugs,and a blood test i had done ages ago cme back normal even when i had crohns,try getting a scope done then youll know for sure.just dont give up,i ended up having surgery coz i didnt get diagnosed quickly.
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa


survivor49
Regular Member


Date Joined Oct 2007
Total Posts : 241
   Posted 9/23/2008 6:50 PM (GMT -7)   
it took the pill cam to diagnose me. and the serology 7 testing. everything else was normal, and my symptoms were blamed on my upcoming divorce and menopause. finally, someone actually listened, and did the pil cam. don't let anyone blow you off- insist on a full work-up. good luck.

chelsea_doll
Regular Member


Date Joined May 2006
Total Posts : 229
   Posted 9/26/2008 8:26 PM (GMT -7)   
my crohns has never shown on a ct scan. I would demand a colonoscopy, that is the only way my crohns was diagnosed. I hope you get a dr that will listen to you.
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 5:38 PM (GMT -7)
There are a total of 2,732,776 posts in 301,054 threads.
View Active Threads


Who's Online
This forum has 151206 registered members. Please welcome our newest member, KrazyKorean5.
327 Guest(s), 15 Registered Member(s) are currently online.  Details
Wdan, Bololidat, Ides, Michael_T, jennydancingfish, Lizzie70, mtm3461, Serenity Now, Scaredy Cat, jared16, NiceCupOfTea, lymedriven, NotQuiteAntonio, julymorning, minnietoty


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer