Looking for feedback..... What type of diet do you follow?

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Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 9/23/2008 9:34 AM (GMT -7)   
I know this topic is discussed ad-nauseaum, and I apologize.  I NEED to follow some type of diet.  To give you a little background, I have now developed Crohn's constipation.  I take Miralax daily, which is helping some.  However, some days I "don't" go, then other days I go large amounts.  (not diarrhea, though, just many and frequent.) 
 
So, my questions to you are:
 
1.  What type of diet do you follow?  ie. SCD, Maker's, gluten-free, low residue, high-fiber, etc.
 
2.  Has it helped you?
 
3.  Do you suffer from diarrhea, constipation, or both?
 
4.  Do you find that sugar bothers you?  (I am a big sugar drink junkie.... sodas and iced-tea.)
 
I don't want to do a diet that will bind me up more, but I have to do something.
 
Thank you so much in advance for your time.  Blessings, Julie :-)
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 8mg/kg every 6 weeks, Prednisone 10mg/day, (tapering Pred 1mg/month,) Miralax daily, Prevacid 30mg, Vit B12, Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/23/2008 1:25 PM (GMT -7)   
Well I live on a low residue diet. I too suffer with C more than D. To help with that, I take stool softners every night before bed. If I wasn't on the low res diet I would constantly be in the ER for obstructive episodes, but since changing to this diet those episodes have stopped. The diet doesn't help when you suffer with C, but for me its better than always going to the ER. Hope that helps some.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/23/2008 2:28 PM (GMT -7)   
I'm on the SCD plan, but that by itself is not enough to control things. It does avoid several triggers that have been a problem in the past, mostly showing up as reflux and pain. I also have a number of supplements that I take to further limit the sensitivity of the gut and limit Crohn's-related problems.
Currently I am tending more to C. When I get lots of fruit, I am fairly normal.
Sugar has been a problem food for me for many years, mostly when I get too much of it. I think that the enzymes for digesting sugar are not sufficient for a lot of sugar in the diet.

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 9/23/2008 3:00 PM (GMT -7)   
Non gluten, non dairy, no refined sugar (only fruits), no honey. Yes it certainly has helped the gas, bloating and pain.

Sugar has always been deadly for me and for many others. Very bad as it contributes to intestinal dysbiosis, which we probably already have to begin with.
Dx'ed in 1999. No surgeries.

Current meds: 100 mg 6MP. Just finished prednisone taper. Udo's Choice Probiotics (30 billion).
 
Betaine, digestive enzymes, Candicin (oil of oregano capsules), Beta Sitosterol.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 9/23/2008 4:58 PM (GMT -7)   
Julie1014 said...
I know this topic is discussed ad-nauseaum, and I apologize.  I NEED to follow some type of diet.  To give you a little background, I have now developed Crohn's constipation.  I take Miralax daily, which is helping some.  However, some days I "don't" go, then other days I go large amounts.  (not diarrhea, though, just many and frequent.) 
 
So, my questions to you are:
 
1.  What type of diet do you follow?  ie. SCD, Maker's, gluten-free, low residue, high-fiber, etc.
 
I don't follow any special diet. I just stay away from foods I know cause me pain and D. Most of the time food is not a factor for me, in that it won't cause a flare. May bother me when in a flare though.
 
2.  Has it helped you?
 
Diet has never helped me stay in remission. It does help when I'm flaring to stay away from irritating foods.
 
3.  Do you suffer from diarrhea, constipation, or both?
 
Diarrhea.
 
4.  Do you find that sugar bothers you?  (I am a big sugar drink junkie.... sodas and iced-tea.)
 
Nope, I drink soda in moderation. Never bothers me.
 
I don't want to do a diet that will bind me up more, but I have to do something.
 
Thank you so much in advance for your time.  Blessings, Julie :-)

Everyone is very different when it comes to diet. I say find out what works for you. Hope that helps! :)

~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure). Tapered off prednisone a month ago!


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 9/23/2008 8:52 PM (GMT -7)   
1. makers diet with some aspects of the scd. i eat grains very sparingly and when i cant get sprouted i try to get gluten free. no processed/refined foods or sugars.

2. gave me my life back. i am now symptom free for the most part because of diet. it allowed me to get off all my meds last october. i now feel physically the best i can ever remember (you forget what feeling healthy is like after feeling miserable for like 14 years)

3. most of the time they are normal, but on occasion i get some D or C. i drop bombs like 2-4 times/day. i consider this normal and good (much better than double digits). the morning and after meals is when it hits me. according to auyevedic (sp?) medicine, this is normal - you should be going this many times a day and it is normal to be stimulated after meals. US medicine would like us to believe that 3 times per week is normal and 2 or less is constipation. imho, if you go less than 1/d you're constipated. oh, and i am no longer incontinent, so either i'm getting better or it is the stricture in the rectum - depending on what kind of doc you talk dictates your answer to this one....

4. yes, sugars bother me. i went 4 months with no grains or sugars. now i am sensitive to sugar. my taste buds changed and i like bitter things now. i no longer crave sweets or chocolate. my sweet tooth, which was bad, is now gone. it was a tough 4 months, but i am sooooooo glad i did it cos i really believe that this is what got me over the hump, diet wise - cutting out sugars that is. i'd much rather have a small piece of fruit. havent had soda in almost 2 years and dont miss it. cant remember the last time i had a piece of candy (at least that long too). i totally dont miss this stuff. (man, if i ever have kids they're gonna hate me later in life when they find out what candy and junk food is cos i never let them have it growing up....)
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 9/23/2008 8:54 PM (GMT -7)   
I follow the SCD. Started on 19 December; my symptoms have all but vanished. I've been off my meds (against my doctor's advice) since January. I am adding more foods to my diet every day.

Also recommended: "Life Without Bread." Very useful for the Crohnie who is intent on the SCD. There are some better figures (actual statistics and numbers and stuff) in LWB.

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 9/24/2008 12:50 AM (GMT -7)   
no kidding around i use the "seefood" diet.. i see food and i eat it! anything and everything that i can stuff down my gullet. the only thing i stay away from is stuff i dont like.
randynoguts 



     http://www.geocities.com/randynogutsweb/


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 9/24/2008 3:05 AM (GMT -7)   
Thank you all for the wonderful advice, and taking the time to post. It is so appreciated. I will let you know what I decide to do...... Blessings to you all, Julie:)
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 8mg/kg every 6 weeks, Prednisone 10mg/day, (tapering Pred 1mg/month,) Miralax daily, Prevacid 30mg, Vit B12, Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 9/24/2008 8:04 AM (GMT -7)   
i'm on weight watchers. I've dropped 20lbs in 4 months. And my crohn's is doing wonderful because I'm eating healthier; even with veggies in my diet.
33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


Miss_82
Regular Member


Date Joined Jul 2006
Total Posts : 73
   Posted 9/24/2008 12:06 PM (GMT -7)   
I pretty much eat anything and everything, including fast-food like Mcd's. But i really try hard to limit myself.

Other than that i feel a big of glass of milk will usually trigger D but otherwise i think i'm doing fairly good. And am taking 5mg of immodium daily.


26 years old
CD for 20 years
Bowel resection in Dec. 2006
No meds at the moment

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