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Date Joined Jun 2008
Total Posts : 167
Posted 9/23/2008 6:01 PM (GMT -6)
Wow it has been a whirlwind of a week.
I became quite ill with a flare/obstruction last week. I am not prepared for a second resection right now so my GI amped me up to 40 mg of pred, continue my liquid diet for atleast another week to make 3 weeks on it and put me on urgent order for Humira. In the end it will be 10 days to get Humira started from the time he referred it on. I was expecting it would have taken longer so now I am feeling all rushed. And oh my the tests before hand are driving me simple.
I had to go for a tb test today but then the dr is concerned that it wouldn't be acurate because I am already on pred for 7 months and imuran. So they play phone tag trying to get hold of the GI while I am waiting in the office. Finally get it done and go back in 48 hours to get it checked. Then after going for my regular blood work of CBC LFTS and B12 today they call and tell me I have to go for HepB and C tests as well as a chest exray. Then next week start back to weekly blood for the start of Humira. I am half expecting another call tomorrow that they need something else !
So after running all over town today I am ready to sleep for 2 days straight.
Add the "yes you need that" " oh no you don't need that" "oh yes you do need it".... from the insurance I really need a mental health day!!!
Oh and I am still trying to run a home daycare at the same time. And they are wondering why my blood pressure has been high?
I am hoping and praying that Humira will do it for me. I know if it doesn't then I will be having another resection very soon.
So hopefully I can get through the first day of 4 injections. After that I am sure it will seem much easier. Or atleast I hope.
Just had to get that all out. I am feeling rather stressed today. Can you tell?
Dx with Crohn's in 1997 after 5 years of worsening symptoms.
Resection a few months after dx after 1 month on TPN and IV steroids.
Also have severe asthma.
Tried: Pentasa, Cholestyramine
Presently taking: 3.2 grams Asacol, 150 Imuran (just started June 08), now on 40 mg prednisone, probiotics. Starting Humira in the next couple of weeks. For asthma I take Advair 500, singulair, arieus
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Date Joined Jul 2005
Total Posts : 733
Posted 9/23/2008 8:14 PM (GMT -6)
I hear ya, westat. It seems like with doctors you sit around and wait, and wait, and wait... and then all of a sudden you're running around like a chicken with your head cut off trying to get this exam and that blood test... uhg. I HATE that routine! It sounds like you're through the worst of the monkey-business though...
When the Humira arrives and you're getting ready to do the shots... take a deep breath, cross your fingers, and say "Cheers".
I hope Humira is the help you need and that it delivers relief with speed!
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Currently running on Humira and Hope.
(miscarried at 13 weeks, now waiting to heal before trying again)
"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."
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Date Joined Apr 2008
Total Posts : 1753
Posted 9/23/2008 8:33 PM (GMT -6)
The back and forth between doctors and insurance seems to be the standard protocol doesn't it? I finally got to start mine today. You'll be able to get through the first four though. They do burn a lot so be prepared for that, but it doesn't last long and you should feel fine after. Just don't press down too hard on the pen. I know I did because I didn't want to let go or something but it just made it hurt worse and was unnecessary.
Good luck with it anyway. Glad to hear you're finally able to get it!
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.
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