Crohns and sushi...

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Matty G
New Member


Date Joined Dec 2007
Total Posts : 19
   Posted 9/23/2008 7:29 PM (GMT -6)   
I dunno if this topic has been posted, but is it safe for a crohn's patient to eat sushi? I've always veered away from the raw stuff, but always wanted to try it.

Also, do any of ya'll tend to freak out whenever you have a stomach ache? Whenever I get a few stomach cramps or feel uncomfortable, I think I'm having a blockage.

eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 9/23/2008 7:38 PM (GMT -6)   
lol the only time i had sushi was when i was really sick with my crohns so i dont know if its ok to have,as for freaking bout every pain,i just got sick of going to a&e constanly so i usually just ignore things unless the pain is a 10.Blockages hurt real bad and gas can be quite painful aswel.
dx 17 aug 2007
21 yrs old
23 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 9/23/2008 7:57 PM (GMT -6)   
I have eaten and enjoyed sushi on occasions, can't really say it did any damage CD - wise though.
And yeh, I sometimes panic over the slightest pain, but I guess you become accustomed to what is not 'normal' for us pain.
Jo

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/23/2008 8:08 PM (GMT -6)   
Love sushi and eat it all the time. I only felt sick once and that was when my boss bought a PARTY PLATTER worth for just the two of us and I ate WAY too much. If you buy from a reputable resturant I wouldn't worry.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


dustspeck
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Date Joined Sep 2007
Total Posts : 565
   Posted 9/23/2008 8:14 PM (GMT -6)   
matty - i eat sushi and haven't died :D i only get real nervous if i am in pain and i hear no sounds coming from my gut, which, is very uncommon but has happened a few times. no sounds and severe pain are a few symptoms of a blockage (or so i have read). i have been super cheating on my diet, i had corn for the first time in over a year a few weeks ago and also been eating apples i picked. my gi recently told me my strictures have been loosening up so i have been going a bit crazy :X i know, risky but darn, i have missed a lot of foods! back to sushi, i stay away from spider rolls now (soft shell crab), can't imagine that being too good for strictures. i adore yellowtail & red snapper. for rolls i like the good ol stand-by of california rolls and also daikon. i also like eel, which is actually cooked. and oh! tamago! it's a sweet egg omelet. happy sushi-ing!
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/23/2008 8:29 PM (GMT -6)   
I don't freak out, but I do wonder and worry a little bit. Waiting it out usually just shows it was something in passing though.

As for sushi. I've stayed away from it for the most part, but I don't really know how it affects me since I've been in a fluctuating flare for months now. If you're worried about the raw things then you can always try some of the cooked sushi recipes. I found one with smoked salmon and cream cheese and it's really good...of course it's slightly fried with panko bread crumbs as the breading so I don't know. I suppose it just depends on what you know you can tolerate. My main concern would be the sushi personally. And whether or not the rice was cooked sufficiently.
My doctor always says you just have to try and see so that at least gives you the excuse once :)
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


nrthngrl
Regular Member


Date Joined Jun 2008
Total Posts : 56
   Posted 9/23/2008 10:25 PM (GMT -6)   
I have eaten sushi also a few times and have never had aproblem. I have only had it while I was feeling relatively well to begin with never feeling flarish.

As for worrying, it is normal, I have had a few times of concern and have never been so happy to hear myself fart!!!! LOL. If the gas is moving everything else should be moving too.
IBD(undetermined) 04-'07....Gastritis 04-'08....Fibro & CFS dx 06-'08....
 Asacol & Buscopan-IBDPantoloc-Gastritis, Nortriptyline-Fibro/CFS, Pramipexole-Fibro,  
Diazepam, demerol, codiene for pain
b12 inj, fish oil, folic acid, acidophilus. 


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1434
   Posted 9/23/2008 10:31 PM (GMT -6)   
Sushi is great for me. High protein, high in good fat, white rice. I would just avoid the wasabi....
Dx'ed in 1999. No surgeries.

Current meds: 100 mg 6MP. Just finished prednisone taper. Udo's Choice Probiotics (30 billion).
 
Betaine, digestive enzymes, Candicin (oil of oregano capsules), Beta Sitosterol.


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 9/23/2008 10:44 PM (GMT -6)   
i'm good with sushi. it is the only time i eat white rice (high glycemic = bad), but only the rolls and then not too many. i take the shashimi off the bed of rice. rice is just filler. give me the ahi tuna baby!
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 9/24/2008 9:27 AM (GMT -6)   
I had sushi twice last week!  Just be aware of what's in your sushi.  I don't risk the raw stuff.  Cooked fish only.  I have them leave the cucumber out of my California roll, and make sure they skip the sesame seeds- some places like to sprinkle them on everything as garnish.  Just start slow and see how it goes for you.

RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 9/24/2008 9:34 AM (GMT -6)   
I love sushi and it is almost all I can eat when I am not feeling well. I can actually say it is the only thing I have never tasted twice. I think that is because of how fast our bodies digest the raw fish. I love the tuna and yellowtail. I actually have a problem with high iodine fish so cannot have the salmon, but I am sure it is wonderful. I have only been eating it for just over 7 years and wish I had given it a try sooner in my life.
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.


br4d
Regular Member


Date Joined Feb 2008
Total Posts : 71
   Posted 9/24/2008 10:11 AM (GMT -6)   
sushi is awesome as long as they don't use too many seeds!
.:brad:. 23 year old male from PA.

diagnosed with crohn's disease in april 2002 during surgery for obstruction
meds: 10mg prednisone, tapering. starting remicade july 30th. no more 6MP.


JohnD
Regular Member


Date Joined Aug 2004
Total Posts : 472
   Posted 9/24/2008 10:37 AM (GMT -6)   
Fish has always been one of the easiest meats for me to handle. No matter how you slice it. As far as sushi.....I love the stuff. I don’t eat the tougher types like octopus.
40, Married?????? w/ 4 kids
Had problems (pain, bleeding, nausea) since age 13.

Dx'd with Crohn's in Spring of 1991.
Broke the L1(mid back) in 1999
went on Remicade in early 2004.
Pain Doc believes the LLQ pain are pinched nerves
spinal cord stimulator implanted july 3, 17, Aug 27


Firecraker
New Member


Date Joined Sep 2008
Total Posts : 3
   Posted 9/24/2008 12:04 PM (GMT -6)   

Sushi can be great as long as you make a couple modifications to fit your diet.  I am a big fan of the tofu cake, if you have never tried it it you should!  Also raw fish has never caused a problem for me and is a great way to get protien.  I would suggest that you ask the sushi chef to leave off the seeds if those bother you since they are just a garnish.


meowese
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 9/24/2008 12:20 PM (GMT -6)   
I love and eat sushi very regularly. I usually do not have any problem with it. I never eat sushi with brown rice and I make sure the place I'm eating at has high grade fish suitable to be eaten raw.

I do worry when I start to get any cramping feeling in my stomach that I'm going to flare... but 90% of the time it passes so I have gotten used to it!
Crohn's (diagnosed in 2006 and currently in remission), severe migraines, Seborrheic Derm., Hemolytic Uremic Syndrome (1994), chronic pain, ulcers/GERD and possibly Fibromyalgia? Medications: Nexium, Pentasa, Percocet and Vicodin as needed, Flintstone Vitamins (my favorite part!), calcium and magnesium supplements, vitamin D once weekly. I follow a low fiber, low residue diet.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1651
   Posted 9/24/2008 2:23 PM (GMT -6)   
I eat it a lot. now that I am off gluten, I keep a bottle of Tamari sauce at my fave sushi bar, as soy sauce is full of wheat.
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Tom1
Regular Member


Date Joined Mar 2007
Total Posts : 172
   Posted 9/24/2008 5:26 PM (GMT -6)   
You know, I really don't want to be a spoil sport, but if you have crohns, UC, IBS, or who knows what else, why push the envelope?  Is a little culinary pleasure worth the possible consequences?  Not to me. 
 
I suffered with all of the above until I finally had an Ileostomy.  Now my doctors have cleared me to eat "anything" I want.  Not a chance.  There are plenty of easily digestable foods out there to get fat on.  Enjoy the memories.

S.aronov
New Member


Date Joined Sep 2008
Total Posts : 7
   Posted 9/24/2008 9:33 PM (GMT -6)   
Go for it. Raw sushi is mighty tasty. And if it doesn't agree, don't eat it. Just make sure it's fresh and you probably shouldn't eat it if you think you are getting a flare up. Fish oil is good for inflammation too. And I definitely recommend sushi over fish oil pills.

-18 yr old female dx'd 2002. Currently on 150mg Azathioprine daily, 1000mg Ciprofloxacin temporarily. I think they just threw a bunch of letters together and called it a medication on that last one

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/27/2008 10:51 AM (GMT -6)   
Thought I would try it last night and see how I felt today. Kind of sick actually so maybe a hint that it's not so good to cheat with. Just thought I would let you know..
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2193
   Posted 9/27/2008 2:35 PM (GMT -6)   
I've never had sushi, just doesn't appeal to me. I like things to be well done. LOL

But if I'm just getting over a flare, tummy cramping can worry me more then usual. Most of the time I don't worry about it though. I can have a bad day, a bad episode of pain and D and be fine the next. So unless it's been several days of this, I try not to let it bother me.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure). Tapered off prednisone a month ago!

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