It's good to know I'm not alone

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minou
Regular Member


Date Joined Jan 2005
Total Posts : 140
   Posted 9/24/2008 7:11 PM (GMT -7)   
I've been having a hard time dealing with my Crohn's lately. Not just the disease and its symptoms, but the social stress that comes with it. Every day I worry about how my intestines are going to behave and how they're going to embarrass me. Will I make it to work without having to scramble to find a washroom? Can I make it through a lunch hour with just one visit to the washroom and not 5? How long will my coworkers buy my stories about why I can't go out to lunch before writing me off completely? Anyway, you get the idea. Over the years I've found ways to try and cope but every other day I feel like I'm thrown a curve ball and it just makes me want to give up. But then I think I didn't come this far to just give up. And I think of all you guys out there going through the same thing. something similar or worse even, and I know that I can't give up. It's just that sometimes it's hard to keep up that brave face.
Thanks for being here.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/24/2008 10:57 PM (GMT -7)   
You're very welcome, minou. We're glad to have you with us!

It's tough, I know...
Co-Moderator Crohn's Forum.


lil-momma
Regular Member


Date Joined Feb 2008
Total Posts : 132
   Posted 9/25/2008 5:08 AM (GMT -7)   
This forum has become my comfort zone! I know how you feel and I'm glad that you were able to find this wonderful group of people! Keep your chin up! Much love & laughter to you!
Dx w/UC in 2001 - controlled by diet.
Mother to 15 yr old daughter dx w/CD 9/07-  she had surgery for abcesses 11/07.  She is taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa  500mg-x5, prednisone 10mg-x6, 6 mp 50mg-x3, Flagyl 250mg-x3


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/25/2008 4:15 PM (GMT -7)   
Hi I know it's not easy but you have showed lots of strength . Why don't you go out for lunch is there something you could order that would be alright ? I know sometimes it seems alot of work just getting from one place to another the joys of crohn's. We are fortunate to have you here. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


not creative
Regular Member


Date Joined Mar 2007
Total Posts : 466
   Posted 9/25/2008 4:37 PM (GMT -7)   
You're definitely welcome here and I know there are others who share your anxiety.
Also, I find honesty is the best way to deal with people who want you to go out with them and whatnot. I tell people why I cannot eat at many places and why I spend so much time in the bathroom...trying to hide it took way too much energy.

I have found people to be very accommodating and sympathetic, surprisingly.

This forum is definitely a fantastic place to rant!
Laurenne, 24 Graduate from University of California, Davis. BA-Anthropology
Dx'd w/ IBS and CD in 2002
On Humira, Strattera, Zoloft, Lialda and Imodium


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/25/2008 8:29 PM (GMT -7)   
I know it's hard but stay strong :) It sounds like you're already doing a good job of that.
You should try going out to lunch with your friends sometime..there are things you can order, and a lot of restaurants can be very accommodating in your order. I usually will find at least one item on the menu that consists of white meat and a starch which are really good to eat with some modification in the order and safe.
There are also some good medications that help reduce the number of bowel movements like bentyl. It also eases cramping pain.
Anyway, best of luck to you!!
Just know there are a lot of people here who will support you, and it's a great place to simply get things off of your chest.
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


minou
Regular Member


Date Joined Jan 2005
Total Posts : 140
   Posted 9/26/2008 8:11 PM (GMT -7)   
Thanks guys! You're all very sweet : )
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