Colostamy bag discision

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Regular Member

Date Joined Apr 2008
Total Posts : 90
   Posted 9/25/2008 6:25 AM (GMT -6)   
Can anyone tell me did they feel better after getting a bag ,at the moment i have perianul disease i am so sick of pain and no quality of life that i am wondering if this could be an option for me.Ihave allready had to surgary sml b and there is little left to take hope sombody can give me some input thanks , idea

Regular Member

Date Joined May 2007
Total Posts : 69
   Posted 9/25/2008 9:45 AM (GMT -6)   
I felt better from the pain after having a colostomy but you still have to deal with the bag!! Is this your last option. I was told if Remicade was around when I had my problem, I would have never of lost the rectum. Make sure it is your last resort--The bag is not a plesant thing. Just think of having D all the time and doing it in a bag instead of in toilet where you can just flush it away. There are so many positive things about the bag and there are just as much negative. I have had mine for 12 years--I was 32 when I had my surgery. Make sure you think about all the pros and cons>and make sure you have a good support system(husband/wife). Good Luck and if there is anything you would like to know just ask!! Claire

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/25/2008 11:47 AM (GMT -6)   
Hi I do know someone who had one and had it reversed and did do the Remicade and now on Imuran. Giving things a rest must have helped . Wishing you the Best. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still gail

Regular Member

Date Joined Aug 2008
Total Posts : 320
   Posted 9/25/2008 4:23 PM (GMT -6)   
Just keep in mind that Crohn's can come back in other areas. This is by no menas a "fix". More like a patch.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
When I am weak, then am I strong

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