My problems with PG started mid Feb 2007, it went from looking like a spider bite to a fist sized lesion within 5 days; it was on the arch of my left foot and I could bear very little weight or pressure on it. Went to a dermatologist, who also did a biopsy (which I agreed hurt like the devil) but he was pretty sure it was PG with me having Crohns. He gave me an ointment to put on it and said to soak it in warm water 10 mins a day and to keep it covered. The pain that we feel with PG is unbelievable…if you have not had it you have no idea the excruciating pain. I also developed ¾ smaller ones on my foot that thank goodness never erupted. It never totally healed completely until about July but still to this day, the scarred area will have cracking and issues esp., if I have been on my feet a lot in a day.
My second HUGE prob with PG was the last week of Aug of 07. I had been doing some cleaning out of the garage and doing some yard work, and thought the redness and lil thing that looked like a bite was just from that. Boy was I wrong. It got tender and red, and I thought prob just slight infection. Within a week, my whole right calf exploded, it was to the point I could not walk or get out of bed. I was taken to the hospital and was listed in critical condition…(hit a flare in that week too so I was down to 87 lbs…my norm is about 120). They had to debrieded my calf; packed it with the wound vac (another hugely painful ordeal) and told me that they thought amputation was probably my next step. I had to come home in a wheelchair and a walker, and they did not think I would ever walk again (a very dark time). Thankfully I did walk again in Jan and that was with the aid of crutches.
To make a long painful ordeal (with pain being ignored, a dr that dropped me from care due to me saying I could not afford meds and a feeling that some in the health profession just are talking heads with no emotions) short they wanted to do a skin graft, but due to my having lost so much weight, they would have had to take my entire thigh skin to complete it…. with PG tho, they were apprehensive that either wound would ever heal. So at this point a year later, it’s slowly moving. I went from having only 2 ½ inches in the middle of the back of the calf being the only part being considered good to now the sore is about 7in by 7 in . They feel it could be another year for it to close.
The next DD I was DX with is Fibro
Post Edited (Howlyncat) : 9/26/2008 4:45:36 PM (GMT-6)
Post Edited (Howlyncat) : 10/3/2008 6:11:01 PM (GMT-6)
I had 2 horrible outbreaks of PG when I was 21 ( I am 30). First one cleared up with sickning high levels of prednisone and antibiotics. The second one was a lot worse and the steroids and antibiotics did nothing...I was also on imuran. I went to a wonderful dermo and he put me on cylosporine...it was incredible...it cleared right up w/i a couple months and I was able to ween off the roids for the first time in 2 yrs..........I highly recomend asking about this drug...it saved my leg...literally.