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MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 9/27/2008 11:02 AM (GMT -7)   
Ohhhh my godness it feels so good to be home!!
 
My surgery went well. I ended up staying there a total of 8 days only because I developed a c diff infection yucky!  I'm soo looking forward to being able to eat soft foods tomorrow, maybe try some mashed potatoes or something...anything but chicken broth haha.  I'm still pretty sore from the staples, I'm trying to learn how to tell the difference between all the pains, wether its the actual cut, or if my stomach just is feeling icky..not sure, its probably a mix of it all  right now.
 
How is everyone else doing? =)
Dianogsed with Crohns at 16, 21 yrs old now.
Surgeries:1 Bowel Resection, Gallbladder Removed. Another Resection Scheduled for September.
Current Meds: Humira (weekly), 60mg Pred, Levbid, Nexium.
 

Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 9/27/2008 11:03 AM (GMT -7)   
Welcome back! I'm so glad to hear the surgery went well. What exactly did you have done?
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 8mg/kg every 6 weeks, Prednisone 10mg/day, (tapering Pred 1mg/month,) Miralax daily, Prevacid 30mg, Vit B12, Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 9/27/2008 11:04 AM (GMT -7)   
I had my 2nd resection.  about 4-5 inches of intestines removed

Dianogsed with Crohns at 16, 21 yrs old now.
Surgeries:1 Bowel Resection, Gallbladder Removed. Another Resection Scheduled for September.
Current Meds: Humira (weekly), 60mg Pred, Levbid, Nexium.
 

Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 9/27/2008 11:07 AM (GMT -7)   
Did you have a stricture? How is the Humira working for you? I hope the surgery brings you much success!! Blessings, Julie
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 8mg/kg every 6 weeks, Prednisone 10mg/day, (tapering Pred 1mg/month,) Miralax daily, Prevacid 30mg, Vit B12, Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 9/27/2008 11:14 AM (GMT -7)   
I had some active crohns and scar tissue.  I havent noticed a difference since starting Humira. My GI said it might be because of the scar tissue narrowing.  So hopefully I'll be able to notice a difference now.
Dianogsed with Crohns at 16, 21 yrs old now.
Surgeries:1 Bowel Resection, Gallbladder Removed. Another Resection Scheduled for September.
Current Meds: Humira (weekly), 60mg Pred, Levbid, Nexium.
 

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/27/2008 11:17 AM (GMT -7)   
I'm glad to hear your surgery was a success and that you're feeling better :) I know it does feel so strange after having yourself cut open and shut back together. Especially the coughing god...
It's nice to know you'll be able to start back on more solid food soon too!
Thanks for keeping us updated.
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 9/27/2008 8:22 PM (GMT -7)   
great MAG, did they tell you about the CDIFF? , it would still be active even after coming home. it is very contagious and can be passed to other family memebers for a while. the contaminants can be spread through almost any contact. and when flushing the toilet they can be atomized into the air and settle on any surface in the bathroom. you must dissinfect a lot all the time to minimize the risk. you can even reinfect yourself.
randynoguts 



     http://www.geocities.com/randynogutsweb/


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 9/27/2008 9:04 PM (GMT -7)   
Thanks everyone for the replies! :)
 
Randy- ya they did tell me about all that stuff, I also have a 5 day script for flagyl for it, as well as being treated for it for 3 days in the hospital.  Its a nasty little infection I'll tell you that much. It scared me to death when I started getting sick with the fever and sweats, and the crazy looking green poo a couple days after the surgery..I guess it could have been something a lot worse so I wont complain about it.
 
Oh, something funny kinda funny, while I was in the hospital the smell or thought of food made me want to throw up, and the only thing I ever really ate for all my meals while in the hospital was a spoon full of chicken broth just to feel something warm in my stomach, apple juice and the jello (as long as it wasnt yellow haha) just the thought of trying to eat turned my stomach, now since being home for like 8 hours all I want to do is eat.  I made myself a scrambled egg and I was really suprised how well I handled it, and it actually settled my stomach a lot. Now I just need to make sure I dont over-do it.  I went grocery shopping and bought myself some mashed potatoes for tomorrow, some rice,canned veggies that were on my "allowed" list of easy to digest foods for my diet for the next 4 weeks. I just hate that all the veggies I actually like are on the not allowed section (lettuce, mushrooms, green peppers ect), I wanted to start eating salads and knock off this prednisone weight ASAP.
 
Oh, and I'm still on 50mg of prednisone, we are going to drop it 10mg a week until I get to 20mg then start going 5mg down every 2 weeks after that, I'm sooooo hoping it goes smoothly, I might just go insane if I cant get off of it for the 3rd time.  Also, my GI wants me to go back to Humira bi-weekly instead of weekly, so I hope that all goes smoothly too.

I also bought a little beginners walking video that goes up to 1 mile to start to gain back some strength in the privacy of my own home so I can make sure I dont end up going out into the world and end up over doing myself and pass out or something lol.


Dianogsed with Crohns at 16, 21 yrs old now.
Surgeries:1 Bowel Resection, Gallbladder Removed. Another Resection Scheduled for September.
Current Meds: Humira (weekly), 60mg Pred, Levbid, Nexium.
 
www.myspace.com/mastermelissa

Post Edited (MAG102886) : 9/27/2008 10:08:59 PM (GMT-6)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/28/2008 6:14 AM (GMT -7)   
Hi Mag Great your home .and that your surgery is behind you now. Just take it easy and enjoy the being home it sure helps to bring back strength. I used to walk around the table. Good they didn't have to take alot of bowel out. So what you doing to put in time? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Miss UK
Regular Member


Date Joined Oct 2007
Total Posts : 128
   Posted 9/28/2008 3:04 PM (GMT -7)   
What an interesting post :-) I'm glad to hear your doing ok and hope you get fully better really quickly and get of the pred.  I'm due a similar operation myself so it's good to hear a real perspective of what to expect afterwards.  I was wondering how long it would be before I could eat again!  Good luck with the walking :-)

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 9/28/2008 6:03 PM (GMT -7)   
MAG102886 said...
Thanks everyone for the replies! :)
 
Randy- ya they did tell me about all that stuff, I also have a 5 day script for flagyl for it, as well as being treated for it for 3 days in the hospital.  Its a nasty little infection I'll tell you that much. It scared me to death when I started getting sick with the fever and sweats, and the crazy looking green poo a couple days after the surgery..I guess it could have been something a lot worse so I wont complain about it.
 
 

Something alot worse?!  C diff can kill you....did they tell you that the antibacterial hand sanitizers don't kill it?   Be sure to get tested to make sure it is gone. 
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