Hurting, Worried and Frustrated...

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HM
Regular Member


Date Joined Sep 2008
Total Posts : 211
   Posted 9/27/2008 12:41 PM (GMT -7)   

I am so frustrated, worried, upset…you get the idea.   As I have mentioned before I was just diagnosed this past summer after first having a diagnoses of UC.  I started on 3 asacol 2x’s a day and 3mg of endocort 2x’s a day in January.  I was feeling better my GI took me off the endocort…well that lasted only a week and then I was back up to 2x’s a day.   My GI was thinking that once my gallbladder came out I would feel 90-100%.   I did feel better after my gallbladder surgery in Aug. and my GI had me try endocort 1x a day.  Again…that lasted a week before the pain was constant, my swelling was back, etc… The oddest thing is to me that my pain is the highest where my gallbladder was and across my stomach. 

 

I am supposed to call my GI the beginning of October to check in.  He is thinking I will be able to start to diminish the endocort.  I am wondering if I do not need a different medication regimen.

 

I can look back now and see that I have had this disease since high school, however it did take my getting the flu 2 years ago to start the diagnoses process.  Am I worrying over nothing?  

 

Does anyone have any thoughts or suggestions?

 


35/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with UC, then Crohn’s 2008

Current medications: Endcort 3mg 2X daily, Asacol 400mg 3 tablets 2X daily, Prilosec 20 mg 2X daily, Probiotics, Calcuim/Mag/Vit.D. garlic and Vit. C 500mg daily


Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 350
   Posted 9/27/2008 1:24 PM (GMT -7)   
It's not nothing if it bothers you. I would say bring everything up to you GI and discuss what you want to do differently. Just continue to let them know till you get what works for you.
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Squattie
Veteran Member


Date Joined Jul 2005
Total Posts : 669
   Posted 9/27/2008 1:36 PM (GMT -7)   
Hello HM,

Don't know how much garlic you take, but I have the upper gallbladder area pain when I eat garlic. It's supposed to be good for us, but I know I can't handle it without it causing a lot of pain.
.....Squattie


HM
Regular Member


Date Joined Sep 2008
Total Posts : 211
   Posted 9/30/2008 5:47 AM (GMT -7)   
Thanks Squattie…I didn’t think about it maybe being a one of my supplements. I am going to stop using it for a few weeks and see if that helps.

I feel like I shouldn’t be complaining because there are so many who have this disease worse than I do. I am extremely grateful that I got diagnosed and am on the road to recovery. I guess I just want it quicker…then I guess that is human nature.

35/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with UC, then Crohn’s 2008

Current medications: Endcort 3mg 2X daily, Asacol 400mg 3 tablets 2X daily, Prilosec 20 mg 2X daily, Probiotics, Calcuim/Mag/Vit.D. garlic and Vit. C 500mg daily


miguelblanco
Regular Member


Date Joined Dec 2007
Total Posts : 131
   Posted 9/30/2008 8:10 AM (GMT -7)   
I had my gallbladder out last Spring. It did take a while before I felt completely "healed" inside. Steroids supposedly slow healing. Maybe the Entocort slowed that healing process?
Type I Diabetes- 29 yrs. (MiniMed Insulin Pump)
Celiac Disease- 8 yrs.
Crohn's Disease- (Nov. '06)
No meds at this time. (Don't agree with me.)

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