I am so frustrated, worried, upset…you get the idea. As I have mentioned before I was just diagnosed this past summer after first having a diagnoses of UC. I started on 3 asacol 2x’s a day and 3mg of endocort 2x’s a day in January. I was feeling better my GI took me off the endocort…well that lasted only a week and then I was back up to 2x’s a day. My GI was thinking that once my gallbladder came out I would feel 90-100%. I did feel better after my gallbladder surgery in Aug. and my GI had me try endocort 1x a day. Again…that lasted a week before the pain was constant, my swelling was back, etc… The oddest thing is to me that my pain is the highest where my gallbladder was and across my stomach.
I am supposed to call my GI the beginning of October to check in. He is thinking I will be able to start to diminish the endocort. I am wondering if I do not need a different medication regimen.
I can look back now and see that I have had this disease since high school, however it did take my getting the flu 2 years ago to start the diagnoses process. Am I worrying over nothing?
Does anyone have any thoughts or suggestions?
35/f proud single mom of 2
Diagnosed with GERD/Acid Reflex 2002
Diagnosed with IBS 2007
Diagnosed with UC, then Crohn’s 2008Current medications: Endcort 3mg 2X daily, Asacol 400mg 3 tablets 2X daily, Prilosec 20 mg 2X daily, Probiotics, Calcuim/Mag/Vit.D. garlic and Vit. C 500mg daily