what do you to prepare for a trip?

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cinpro
Regular Member


Date Joined Sep 2008
Total Posts : 36
   Posted 9/28/2008 6:53 PM (GMT -7)   

I'm getting ready to fly up to see my parents, I have not traveled in a long time. (2002?) I never did travel well, even before I was DXed, and the last time I did i was in a complete remission. as of right now I am in a flare, a bad one for me and I'm hoping I'm through the worst of it. I really wonder if stress could have brought this on. I'm absolutely terrified to go on long trips. even a trip to the theater is nerve racking, which is probably why I have only been a couple of time in many years.

what can I do help myself get through this

 

a little background, I found out hard way I was a Crohnie. I went to the hospital thinking I got food poisoning, only to find out I had a massive blockage. a few hours later they had me under the knife. Lg and Sm sectioned, and the appendix removed. I got little to no advise on how to live, "just eat normal" seemed to be the buzz words. had a horrible reaction to Asacol, and no one either listened, or didn't care. I was told "oh thats the medicine that works for your disease" so I stopped taking it after several months as I just could not take it what it was doing to me anymore. and for the most part have been trouble free, a few very minor flares, nothing like the current one.

 

I'm sorry for any typos, I have allot of them anyway, but I'm just so tired I don't even care to look right now....uughh I hate this


nrthngrl
Regular Member


Date Joined Jun 2008
Total Posts : 56
   Posted 9/28/2008 7:04 PM (GMT -7)   
Hi Cinpro, I take valium when I travel, and I don't eat the day, or the night, before a trip. Carry some imodium with you and take as needed and carry with you a change of clothes, just in case. Go to the bathroom just before boarding the plane and bring a book or music to distract you while flying. Good luck.
IBD(undetermined) 04-'07....Gastritis 04-'08....Fibro & CFS dx 06-'08....
 Asacol & Buscopan-IBDPantoloc-Gastritis, Nortriptyline-Fibro/CFS, Pramipexole-Fibro,  
Diazepam, demerol, codiene for pain
b12 inj, fish oil, folic acid, acidophilus. 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3110
   Posted 9/28/2008 7:04 PM (GMT -7)   
are you currently being treated by a GI who specializes in Crohn's? The minimum I would do is get something to help you relax for the flight...are you on any meds right now?

cinpro
Regular Member


Date Joined Sep 2008
Total Posts : 36
   Posted 9/28/2008 7:21 PM (GMT -7)   
no meds right now other than culturelle, a daily vitamin, Commit and an occasional Imodium. my health care Ins changed and I have been looking for a new GI. Anyone know a better way to search for someone who might been a specialist?

Nrthngrl, I have the Ipod loaded and ready to go, as well a a book I have been meaning to read for awhile now. I have never had a Valium before but I my ask a GP about it, I have alway been sensitive to any meds and have to be carful. I was onch give a 2mg flexaril (SP) when I hurt my back, I couldn't get out of bed till after noon the next day. ( I felt like I was made of Jello)
I shed tears when I found this place...I have felt so alone for so long...Its good to know there are caring ppl out there who can understand where I'm coming from.


nrthngrl
Regular Member


Date Joined Jun 2008
Total Posts : 56
   Posted 9/28/2008 7:24 PM (GMT -7)   
Hey Cinpro, yes ask your Dr about the valium and try taking one before you travel so you know how it effects you. You can get valium in 2mg, 5 mg and greater but I am sure just 2 mg would be enought to take the edge off while you travel.
IBD(undetermined) 04-'07....Gastritis 04-'08....Fibro & CFS dx 06-'08....
 Asacol & Buscopan-IBDPantoloc-Gastritis, Nortriptyline-Fibro/CFS, Pramipexole-Fibro,  
Diazepam, demerol, codiene for pain
b12 inj, fish oil, folic acid, acidophilus. 


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 9/28/2008 7:40 PM (GMT -7)   
I would definetly ask about the valium. I would also ask for a script for prednisone to carry with me on the trip so if I started flaring I would have it. Don't know if your doc will go for that but I would ask.
Sj

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/28/2008 7:57 PM (GMT -7)   
Hi! I also am a nervous traveler. My doc gave me .25 of xanax that way I can take as many as I need without getting too fuzzy. I usually take one when I get to the airport and one after we board before take off. If we hit bumps I might take one more, but thats my max so far. I also tried it at home to make sure it didn't wipe me out. You have to be careful w/ not eating. Sometimes it makes us feel worse. If it is a morning flight that might be ok but not if its later in the day. I usually take a couple immodium w/ anti-gas. I usually pack some safe foods like pretzels or protein bars and eat just enough to keep the naseau at bay. As soon as I get on the plane and stow my bag I use the bathroom one more time (on the plane) before take off. Boarding alone takes a half hour sometimes so I like to get that last chance. I am a fearful flyer and take off is the worst for me...and the door closing. So once I have used the bathroom again, I put on an eye mask, lean back w/ my mp3 player until I have to turn it off. Even then I keep the headphones in just off so as to muffle some of the noise. Ear plugs work too. I just go to a mental happy place. I bring my own neck pillow and blanket and just try to get as comfy as possible. I look like a freak for a 2 hour flight but I don't care. It is how I cope. I book my seat online and make sure I have an aisle seat near the bathroom. You don't want to be fighting the drink cart to get to it. I bring baby wipes and extra meds and anti bac. Because I am so afraid to fly I try to spend as little time in the bathroom as possible. Hence, the anti bac for the hands. I always buy a beverage after I get through security so that I don't have to drink what is handed out on the plane. I hate have my drink on my seat tray because if I have to get up I have no where to put it. Then I end up chugging something I didn't want to drink anyway just to get it out of the way. Instead I just bring my own bottled beverage. (But you have to get it after security). Also, don't stress too much about the seatbelt sign. As long as the flight attendants are still up and about it is relatively safe. If you get up and they say "we are expecting turb. the seatbelt sign is on" just say "its a bathroom emergency" and go. They don't want to clean up your mess and unless it is a true impending catastrophe in the air they will let you go. I was in the worst turb ever and a woman nearly crawled to the bathroom and the f/a's didn't stop her. Just be confident, don't ask permission, and act like you know what you are doing. You will do great!
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/28/2008 8:01 PM (GMT -7)   
Ha! Now you have me nervous lol. I am flying in January and just remembered that hubby booked the tickets. He better have booked me an aisle seat near the loo or else!!! Oh... and if you are flying Jet Blue or Singapore Air your tv will stay on during take off and landing which is super nice. I think on air tran the seat radio stays on even though you have to turn the mp3 player off. You can still have your headphones plugged into those. I don't have experience with too many other airlines except delta. Hope that helps!
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/28/2008 8:13 PM (GMT -7)   
1 more thing: sorry for the multiple posts. If it is too late to change your seat and you are at the front instead of the rear don't fret. In a bathroom emergency you can go forward and use the business/first class bathroom. I don't know if that is typically allowed but I got sick on a Vegas-Boston flight and was at the front of coach w/ the drink cart blocking my way back. I just walked forward, told the f/a I had a bathroom emergency, and proceeding forward. No problems at all.

I just checked and hubby did get my an aisle seat but we are closer to the front of the plane than the rear. Oh well.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


cinpro
Regular Member


Date Joined Sep 2008
Total Posts : 36
   Posted 9/28/2008 8:49 PM (GMT -7)   
I'm on a small jet for the first part, and a little 30 seat turbo prop for the short hop the rest of the way. the airports I'm going to are too small fo rthe big boys I think.

just to let some folks know, the flying part doesn't bother me. its what the traveling does to me.
I shed tears when I found this place...I have felt so alone for so long...Its good to know there are caring ppl out there who can understand where I'm coming from.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/28/2008 10:39 PM (GMT -7)   
If I was to travel by plane, which I don't ever intend to, I would wear "depends" to make myself feel better/confident, just incase the need arises and the toilet is not available.

Enjoy your trip!

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 9/29/2008 12:03 AM (GMT -7)   
Depends underwear plus a depends pad. I now know to do this and bring extras.

Donnaeil

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 9/29/2008 1:09 AM (GMT -7)   
cinpro, well first i have to order my TPN to be deliverd to wherever im going. i can only take one weeks worth with me. in a car. on a plane i take 2 days in a cooler for emergencies. the rest gets shipped . then we just head out with no worries. what CAN happen should not dictate your life. what does happen will. crap happens to all of us at somepoint , but please dont let it run your life. they have restrooms at the movies you know! get out and enjoy the world , it wont wait for you but will pass you by.
randynoguts 



     http://www.geocities.com/randynogutsweb/


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 9/29/2008 5:08 AM (GMT -7)   

Hi!  I travel a lot for work so I have traveled in remission and full blown flares.  I carry an extra pair of undies in my purse/carryon that I can take to the restroom if needed (I do that all the time not just traveling).  I also bring safe foods with me to have on the plane/in airport (baby food bananas, pretzels travel well).

If you feel that a trip to the potty will be required in flight, you could take one of the attendants aside and explain your situation at the beginning of the flight.  Most are really helpful when they understand you have a problem and are not a problem.  Just 3 weeks ago I told the attendants on both of my flights home that I may have a bathroom emergency due to a medical condition that travel makes worse.  When I did have to go, they were very nice about letting me get there ahead of some others.  They even explained to the other flyers that it was medical and did not make a fuss.

 

Your first priority should be getting a specialist.  Can your GP recommend one if you like him?  Do you have a teaching hospital that has a GI department?  Do you have a local CCFA support group (they can not recommend or tell doc names but you may hear a slip up or someone may tell you outside of the meeting)


Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/29/2008 5:25 AM (GMT -7)   
Habs - what airline were you on? I have heard some don't let you wait "in line" for the restroom on the plane but I have never run into that.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/29/2008 7:27 AM (GMT -7)   
Hi Cinpro and welcome to Healingwell. I too suffer with travel anxiety and my doctor has prescribed Xanax .25mg. I don't take as much as Fitzy does, but what I do is take it first thing in the morning and at bedtime for 2-3 days before I am to fly out and continue to take it like that until I feel a little more confident that I will be okay, which is usually 2-4 days after I arrive. My PCP told me I could do that for up to 2 weeks without becoming dependent on it. I will tell you also that anxiety can cause me flare like symptoms too. I think the Xanax might be a good solution for you. Its the lowest dose, so it doesn't make you as loopy as some of the others can. Good luck and I look forward to hearing how you had a good time at your parents.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/29/2008 8:19 AM (GMT -7)   
Haha - well Nanners I not only have the crohns travel anxiety but the big time fear of flying anxiety. That def. makes it worse and worth the extra sedative lol!
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/29/2008 8:30 AM (GMT -7)   
Fitzy I am afraid of flying too, I think I would be a basket case if I couldn't be close to a bathroom though. Luckily I always book the flights so I always get the seats close to the bathroom.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


JohnD
Regular Member


Date Joined Aug 2004
Total Posts : 472
   Posted 9/29/2008 8:43 AM (GMT -7)   
I always pack my meds in my carry-on bag along with an extra set of clothes, wipes. I try to pack the things I would need if the worst were to happen. I've only needed the things from the carry-on bag a couple of time but I sure was glad I had them when the need came along.
40, Married?????? w/ 4 kids
Had problems (pain, bleeding, nausea) since age 13.

Dx'd with Crohn's in Spring of 1991.
Broke the L1(mid back) in 1999
went on Remicade in early 2004.
Pain Doc believes the LLQ pain are pinched nerves
spinal cord stimulator implanted july 3, 17, Aug 27


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 9/29/2008 9:56 AM (GMT -7)   
Fitzy...I was on Delta. I just explained that I had a chronic digestive illness that was bad due to my trip. I asked if they could help if I needed to get in the restroom quickly. I guess I could have shown that CCFA card to them if necessary, but they just understood. When I had to go, they asked the guy that was jsut ahead of me if he could wait due to medical issues for me. He was nice and said yes.
There was not a line, but the two of us were headed to the restroom at the same time.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/29/2008 10:22 AM (GMT -7)   
Just lucky the guy infront that agreed was able to agree and didn't have IBD or IBS himself...that's what my worry would be, on a plane with a few others that also had gut issues, but that would just be my luck LOL!

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/29/2008 11:10 AM (GMT -7)   
There are usually three or more bathrooms, even on air tran. But I do feel a little bad for the people that have to go in after an IBD'r.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 9/29/2008 12:06 PM (GMT -7)   
if anyone else has to fly go with southwest airlines..you sit anywhere you want..i fly a few times a month and always get a seat in the very back next to the bathroom:) Just knowing that you have that safety net eases your mind so I end up never even needing to use it. most of the time the flights arent even close to full.
SCD since 01, remission since 01, occasional Arby's breaks :)


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/29/2008 6:17 PM (GMT -7)   
Sometimes a short stay on prednisone might help. I know it's not a med we love but just a thought. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

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