I'm getting ready to fly up to see my parents, I have not traveled in a long time. (2002?) I never did travel well, even before I was DXed, and the last time I did i was in a complete remission. as of right now I am in a flare, a bad one for me and I'm hoping I'm through the worst of it. I really wonder if stress could have brought this on. I'm absolutely terrified to go on long trips. even a trip to the theater is nerve racking, which is probably why I have only been a couple of time in many years.
what can I do help myself get through this
a little background, I found out hard way I was a Crohnie. I went to the hospital thinking I got food poisoning, only to find out I had a massive blockage. a few hours later they had me under the knife. Lg and Sm sectioned, and the appendix removed. I got little to no advise on how to live, "just eat normal" seemed to be the buzz words. had a horrible reaction to Asacol, and no one either listened, or didn't care. I was told "oh thats the medicine that works for your disease" so I stopped taking it after several months as I just could not take it what it was doing to me anymore. and for the most part have been trouble free, a few very minor flares, nothing like the current one.
I'm sorry for any typos, I have allot of them anyway, but I'm just so tired I don't even care to look right now....uughh I hate this
Hi! I travel a lot for work so I have traveled in remission and full blown flares. I carry an extra pair of undies in my purse/carryon that I can take to the restroom if needed (I do that all the time not just traveling). I also bring safe foods with me to have on the plane/in airport (baby food bananas, pretzels travel well).
If you feel that a trip to the potty will be required in flight, you could take one of the attendants aside and explain your situation at the beginning of the flight. Most are really helpful when they understand you have a problem and are not a problem. Just 3 weeks ago I told the attendants on both of my flights home that I may have a bathroom emergency due to a medical condition that travel makes worse. When I did have to go, they were very nice about letting me get there ahead of some others. They even explained to the other flyers that it was medical and did not make a fuss.
Your first priority should be getting a specialist. Can your GP recommend one if you like him? Do you have a teaching hospital that has a GI department? Do you have a local CCFA support group (they can not recommend or tell doc names but you may hear a slip up or someone may tell you outside of the meeting)