Post Edited (meowese) : 9/30/2008 3:38:00 AM (GMT-6)
Post Edited (Julie1014) : 9/30/2008 3:50:46 AM (GMT-6)
Post Edited (inflamed) : 9/30/2008 11:35:48 AM (GMT-6)
Post Edited (CrohnieToo) : 9/30/2008 9:02:07 AM (GMT-6)
1. Medicines you took in the past..... pentasa, sulfasalazine, entocort, remicade, pred.2. Why you stopped them..... pentasa did not work, same with sulf., entocort we believe caused pancreatitis, remicade was fine at first and then when restarted one year ago it caused a major reaction.
3. Currently taking... Humira every 2 weeks, and prednisone since June, cymbalta for general pain, percocet for more major pain, my asthma medications:Advair, and Singulair; Toprol for rapid heartbeat, don't know why I got this?
4. Is it helping..... I have hoped the Humira would heal a fistula that is somewhere from bowel to vagina, but no luck yet. Pred. definitely helps the aches and pains, and inflamation, and cleared the lungs after I had pneumonia this summer, but I hope I can wean off soon. I have taken a medical leave from teaching this year to try and get well!!!!!!
Diagnosed w/ Crohn’s Disease March 2007 Started Humira June 2008 (have been on other cd meds)
Diagnosed w/ Fibromyalgia May 2007 on Soma and Lyrica
Diagnosed w/ General Anxiety Disorder in 2005- Effexor and Clonazepam
HI, just joined 1st diagnosed with crohn's almost 23 years ago (while my wife was preg with our 2nd), and was medevac'd from northern canada to the big city for treatment. Met possibly the best gastro doc I could possibly need. Regretably I have recently moved to a new province but have found a great new gastro, unfortunately to see him i have to drive 3 hrs (well worth it tho). So to the question at hand;
Since being first diagnosed (and hopefully spelling doesn't count), Salazopirine, Mesasal, flagyl, Ciproflaxin, Keflex, no longer taking any of these. Also no longer taking prednisone the most EVIL of all the drugs and in such a tiny pill...Cataract surgery for both eyes, osteoporosis, full set of dentures, kidney stones, all thanks to pred.
Presently on Imuran 50mg 4 times a day plus lots o' vitamins/supplements and hi dose potassium, K is always low but really craters during flare ups.
Dealing with a fistula lower back pretty much north end of right butt cheek. Recently returned from colonoscopy (three hour drive, wife drove the return trip) P.S. I HATE COLYTE!! especially with a fistula
My new doctor has me in for remicade, fortunately the province i live in has a phama-care program to help with expenses, and waiting to hear from my company insurance for the rest. Everything I have heard about remicade seems to be great so i am looking forward to getting started. After numerous scopes from all angles and extended hospital stays over the years this has to be better, right?