Well now that I have been on a liquid diet for 4 1/2 weeks, 40 mg of pred for 2 weeks (on pred for 8 months total) and a week after starting Humira I was finally able to eat a roll dipped in my broth today with no pain and nausea!!
I am so happy !! To actually be able to chew food....... (well kinda chew soggy mess) What a feeling.
Being on 40mg of pred and a liquid diet sucks. I am always feeling like I am starving to death !! But atleast on a liquid diet I don't gain as much weight...for now.
I start weaning 5 mg every 2 weeks on Friday. Boy I hope it goes well. If I can't get off the pred now that I am on the Humira I will have to have surgery. Which right now is not what I want due to financial reasons.
Now if people stop telling me I look so good and ask how I lost all the weight. (35 pounds in 6 months)
Dx with Crohn's in 1997 after 5 years of worsening symptoms.
Resection a few months after dx after 1 month on TPN and IV steroids.
Also have severe asthma.
Tried: Pentasa, Cholestyramine
Presently taking: 3.2 grams Asacol, 150 Imuran, now on 40 mg prednisone, Humira(start on Sept26/08), probiotics.
For asthma I take Advair 500, singulair, arieus