think I am finally starting to feel better

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westat
Regular Member


Date Joined Jun 2008
Total Posts : 167
   Posted 9/30/2008 10:23 AM (GMT -7)   
Well now that I have been on a liquid diet for 4 1/2 weeks, 40 mg of pred for 2 weeks (on pred for 8 months total) and a week after starting Humira I was finally able to eat a roll dipped in my broth today with no pain and nausea!!

I am so happy !! To actually be able to chew food....... (well kinda chew soggy mess) What a feeling.

Being on 40mg of pred and a liquid diet sucks. I am always feeling like I am starving to death !! But atleast on a liquid diet I don't gain as much weight...for now.

I start weaning 5 mg every 2 weeks on Friday. Boy I hope it goes well. If I can't get off the pred now that I am on the Humira I will have to have surgery. Which right now is not what I want due to financial reasons.

Now if people stop telling me I look so good and ask how I lost all the weight. (35 pounds in 6 months)
Dx with Crohn's in 1997 after 5 years of worsening symptoms.
Resection a few months after dx after 1 month on TPN and IV steroids.
Also have severe asthma.

Tried: Pentasa, Cholestyramine

Presently taking: 3.2 grams Asacol, 150 Imuran, now on 40 mg prednisone, Humira(start on Sept26/08), probiotics.
For asthma I take Advair 500, singulair, arieus


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/30/2008 11:02 AM (GMT -7)   
That's really great!!!!! It really is a wonderful feeling..and everything tastes so good. I hope you keep making that progress!!

Sorry about people making those comments...I think that happens all too often with those of us that are too thin and people think it looks 'good.' Ah well...
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, alinia, bentyl, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/30/2008 11:45 AM (GMT -7)   
Yeah you got to eat something with a little more substance than water. I too hope you continue to improve.

And for those folks making the comments............just tell them you want to know how I did it? Then give them every single gory detail. That should shut them up:)
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

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