think I am finally starting to feel better

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westat
Regular Member


Date Joined Jun 2008
Total Posts : 167
   Posted 9/30/2008 11:23 AM (GMT -6)   
Well now that I have been on a liquid diet for 4 1/2 weeks, 40 mg of pred for 2 weeks (on pred for 8 months total) and a week after starting Humira I was finally able to eat a roll dipped in my broth today with no pain and nausea!!

I am so happy !! To actually be able to chew food....... (well kinda chew soggy mess) What a feeling.

Being on 40mg of pred and a liquid diet sucks. I am always feeling like I am starving to death !! But atleast on a liquid diet I don't gain as much weight...for now.

I start weaning 5 mg every 2 weeks on Friday. Boy I hope it goes well. If I can't get off the pred now that I am on the Humira I will have to have surgery. Which right now is not what I want due to financial reasons.

Now if people stop telling me I look so good and ask how I lost all the weight. (35 pounds in 6 months)
Dx with Crohn's in 1997 after 5 years of worsening symptoms.
Resection a few months after dx after 1 month on TPN and IV steroids.
Also have severe asthma.

Tried: Pentasa, Cholestyramine

Presently taking: 3.2 grams Asacol, 150 Imuran, now on 40 mg prednisone, Humira(start on Sept26/08), probiotics.
For asthma I take Advair 500, singulair, arieus


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 9/30/2008 11:59 AM (GMT -6)   
Im glad your feeling better!!  I hate liquid diets, to me they are worse then not eating at all!  I usually eat jello and a lot of popsicles when I have to be on one.  

Dianogsed with Crohns at 16, 21 yrs old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Humira (bi-weekly), 50mg Pred, Levbid, Nexium, B12 injections.
 
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