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frar
Regular Member


Date Joined Jul 2003
Total Posts : 365
   Posted 9/30/2008 3:16 PM (GMT -7)   
Has anyone experienced sore tongue with Crohn's?  If so, what did you do for it?
F.


Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 9/30/2008 3:31 PM (GMT -7)   
Which part?

When I first got ill, when I extended my tongue far to the left or the right, I felt pain at the base of the tongue on the opposite side (!). I believe now it was a weird B vitamin deficiency. Supplementing with B vitamins may help; a number of vague and individually variable maladies can be caused by B vitamin deficiencies, which are common in Crohn's due to the damage caused to the intestines.

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 9/30/2008 4:07 PM (GMT -7)   
have your dr check you for anemia... classic sign.
randynoguts 



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sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 9/30/2008 4:20 PM (GMT -7)   
Yup, classic sign of anemia as described above.

Also common in chron's is a white ulcer in the throat or palate occassionally on the inside of the cheek. For that take lysine and B vitamins. Those ulcers can also form anywhere in the digestive tract and can also be caused by certain medications.

frar
Regular Member


Date Joined Jul 2003
Total Posts : 365
   Posted 9/30/2008 6:50 PM (GMT -7)   
Thanks so much for your input. I just had blood work done and everything was fine...no anemia. My tongue just feels raw all over and is 'coated' with a whiteish type stuff. And since my post I have developed blisters on my toes! They hurt and are small and red. I will call my doc in the a.m. and let him see this weird crap.
F.


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 9/30/2008 6:57 PM (GMT -7)   
frar, I'm not sure which meds your on currently, but while I was on a high dose of pred I developed a "fuzzy" tongue.  It wasnt sore but I had a white almost fuzzy look to it...its a side effect of the pred, its a fungus but its treated very quickly with medication.
Dianogsed with Crohns at 16, 21 yrs old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Humira (bi-weekly), 50mg Pred, Levbid, Nexium, B12 injections.
 

Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 9/30/2008 9:52 PM (GMT -7)   
White tongue can be thrush, but (as far as I know) thrush is painless. Google up "oral thrush" and see if there are any similarities.

Krica
Regular Member


Date Joined Apr 2007
Total Posts : 99
   Posted 10/1/2008 5:12 AM (GMT -7)   
I have experienced sore tongue, it was so bad that i was not eating well and did not want talk much. I saw a GI, dermatologist and 2 general practices and they could not figure out what was my problem. I did blood test to check any deficiencies of vitamin b, the resul was ok. I went to a healthy shop and i bought a complex of vitamin b. The sore of my tongue disappeared, it was a relief for me. I hope this is going to help you, good lucky!

Krica
Regular Member


Date Joined Apr 2007
Total Posts : 99
   Posted 10/1/2008 5:15 AM (GMT -7)   
Ah!!! i do not the apperance of your tongue but my looked like geographic tongue, try to google and see if the apperance is similar. bye

frar
Regular Member


Date Joined Jul 2003
Total Posts : 365
   Posted 10/1/2008 11:55 AM (GMT -7)   
I did see my primary care doc and she thinks I have "mouth,foot and hand disease"...usually only children get this but with an autoimmune disease like Crohn's adults can acquire it also.. 48 hours should tell for certain if that is indeed what I have.
F.


d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 10/1/2008 12:43 PM (GMT -7)   
My tongue always gets a thick white awful tasting coating every time I'm in a bad flare. This is how I can guage the intensity of the flare. I hate it! I use my toothbrush on it everyday, which helps a tiny bit.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
 
Stephanie
When I am weak, then am I strong


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 10/1/2008 3:56 PM (GMT -7)   
Frar, I worked in a day car center once that had an outbreak of that disease-if you have sores on your feet and in your mouth she is probably right. Those comprimised imune systems will get us every time.
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