Wheat Allergy May Be Root Cause - It is for Me!!! Cutting Edge Stuff A Miracle for some of us!!

Did you know that Crohn's disease could be caused by a wheat gluten intolerance?
5
Yes - 45.5%
5
No - 45.5%
1
Not Sure - 9.1%

 
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GlutenFreeGirl
New Member


Date Joined Oct 2008
Total Posts : 16
   Posted 10/2/2008 1:29 PM (GMT -7)   
Hi there. Cutting edge stuff here. Wheat allergy causes Crohn's disease. I have asthma, and Crohn's, along with hives. I started noticing certain foods, especially pasta and mexican food didn't agree with me. I started trying to figure out which food it was. Turns out I have either wheat gluten intolerance or celiac disease. I confirmed this with a naturopath associated with a local hospital, and a family physician. Doctors have not been recognizing wheat allergies as the cause of Crohn's disease until recently.

Regardless of which type I have, the cure is NO WHEAT and 21 days later I feel like a different person. The burning diarrhea is gone. Insomnia is gone, low grade fevers, itchy skin, all gone. My breathing is much better, and I can smell things I haven't smelled in years. My doctors and I are discussing getting me off the inhaled steroids by trial after the first freeze (after ragweed season). I have been on inhaled steroids for 15 years. This is a miracle for me.

The symptoms include:

Flushed face, hives or a rash, red and itchy skin Swelling of the eyes, face. lips, throat or tongue Trouble breathing, speaking or swallowing Anxiety, distress, faintness, paleness, sense of doom, weakness Cramps, diarrhea, vomiting A drop in blood pressure, rapid heart beat, loss of consciousness

Also joint pain, arthritis, etc.... It's more common in those of Irish descent, and European descent in general. For more information, go to www.celiac.com. The symptoms between celiac disease and gluten intolerance are similiar. Either one can destroy your gut and causes inflammatory bowel disease, most often the Crohn's type.

There is hope! Even if you find this is not your reason for Crohn's. You can be healed from this - you just need to find the root cause. That's what I completely believed and now here I am with the cure. Don't wait for doctors to heal you from your dependence on medications! That's just a temporary bandaid. Root cause healing is complete healing.

Don't ever give up!

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/2/2008 2:01 PM (GMT -7)   
It is true that wheat allergy is hugely under-diagnosed, but eliminating it does not totally cure everybody. I am not sure if this is because there are other foods that cause problems or that become problems due to permeable gut lining (from wheat inflammation) allowing food antigens through to the blood or if there are other causes that are completely unrelated. I have been off wheat for so long (about 8 years) that I had to start eating some prior to a Celiac test. That did not cure me though. That is not to say that it will not work for people that are only wheat sensitive.

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 10/2/2008 2:28 PM (GMT -7)   
I am going to disagree with your statement - "Wheat allergy causes Crohn's disease"

Wheat allergies do NOT cause Crohn's disease. Wheat allergy symptoms closely resemble some of those seen in Crohn's disease. Some people are incorrectly diagnosed with Crohn's when their problem is celiac or vice versa.

If wheat allergies were the cause of Crohn's, then "cure" would be easy but that is not the case.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1091
   Posted 10/2/2008 2:36 PM (GMT -7)   
And the 2009 Nobel Prize in Medicine goes to.....GlutenFreeGirl, for her discovery that wheat allergy causes Crohn's disease!
 
rolleyes  
 
In all seriousness, I think what GlutenFreeGirl is failing to realize, in all her enthusiasm, is that (a) either she was misdiagnosed with Crohn's when she actually has Celiac, or (b) she has Celiac and/or wheat allergies in addition to having Crohn's.  It's possible to have both, but to say that wheat allergy is the cause of Crohn's is not only irresponsible, it's downright wrong - and possibly a dangerous claim to make.

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 10/2/2008 2:50 PM (GMT -7)   
I went wheat/gluten free for 3 weeks and had no difference in symptoms. Celiac presents a lot like Crohn's... And some people do benefit, but not all...
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--methylpred - finally off 6/15/08, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-yr-old girl


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/2/2008 3:28 PM (GMT -7)   
I am glad that someone here has found some relief and I do feel that personally I think that all of us should of been tested for it and lactose intolorance,just for the sake of ruling in or out these two problems in people . I think it is something we deserve to know. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


GlutenFreeGirl
New Member


Date Joined Oct 2008
Total Posts : 16
   Posted 10/2/2008 4:50 PM (GMT -7)   
I never said that it heals up everyone. Note Title that says: "May" be root cause...

I do appreciate your wisdom Gachrons. To the others: Why not give it a try? Why all of the negativity? Are you from the "medical" community that has harmed so many of us with your bright ideas which are just surgery and meds? Afraid of a cure for some?

Nope Beave, not misdiagnosed, nor was the asthma misdiagnosed, nor the hives. See, gluten intolerance is the root cause of Crohn's disease in some people. Lactose intolerance is the root cause in some people. You might want to do some research and then we can talk.

I have had two Crohn's related surgeries in the same spot and the same symptoms as everybody else on this forum. I was able to fight my way out of a fistula that took 5 years to heal without surgery because the success rate of these surgeries is not so great, and 6 years later I am still healed from the abscesses and fistula. No, not Crohn's disease, just sounds exactly like it. Let's think about this - you have a raging allergy running through your intestines, and you are surprised that it might cause a little damage and this damage would be called "Crohn's disease" or this damage is called "asthma" because the colon allows this allergen to permeate into the blood stream?

I have already told members of my family who were suffering and now also know what has been wrong. I came here not to be ridiculed but to help. I have suffered horribly from Crohn's and have found my cure and hope to help others.
________________________________________________
 

Post Edited By Moderator (MMMNAVY) : 10/2/2008 5:55:24 PM (GMT-6)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/2/2008 5:14 PM (GMT -7)   
Peace ya'll she is a newbie and does not understand our perspective.
Of course we encourage people to do what it takes to get them well, short of anything illegal
___________________________________________________________________
GlutenFreeGirl,
Please understand it is not you that we are having a problem with. It is the subject, especially using the words "cause" and “cure,” because I would require an autopsy before I would ever think of using the words, even then it is a case study. Cause and cure are rather inflammatory subjects on here. Unfortunately someone comes along every couple of weeks with something very similar, so for those of us who have exhausted everything it is very tiring to keep hearing about something like this. I feel that sometimes it gets to the point that it is an affront to our intelligence, because people think we have not exhausted every possible thing. (i.e. like getting tested for allergies)

I am glad this works for you, and hope it continues to.
I am sorry you are feeling the negative energy from the inflammatory nature of this subject.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 10/2/2008 5:15 PM (GMT -7)   
Eliminating gluten has helped me, but it's certainly not a cure and should not be advertised as one. Crohn's disease is much more complicated than a food allergy.

"Wheat allergy causes Crohn's disease." Where did you get this claim from, was there a study done?
Dx'ed in 1999. No surgeries.

Current meds: 100 mg 6MP. Just finished prednisone taper. Udo's Choice Probiotics (30 billion).
 
Betaine, digestive enzymes, Candicin (oil of oregano capsules), Beta Sitosterol.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/2/2008 5:16 PM (GMT -7)   
Well, others here have gone gluten-free and had good results, so it is not really entirely a new idea. Some do not have that result. As I said before, I have been without any wheat for many years and Crohn's is still there. I admit that I am not one of the really sick people here, but the disease is present. I believe that gluten intolerance is ONE of the factors that trigger Crohn's, but there are others (Gut infection, stress, NSAIDs, alcohol etc.). I also don't think that gluten intolerance tests will show up all people who would benefit from eliminating gluten (something to do with IgE and IgG both being separate indicators of sensitivity and testing only being done for one of those two). Certainly, it is worth trying - it is fairly easy to do and harmless if it does not work.

miguelblanco
Regular Member


Date Joined Dec 2007
Total Posts : 131
   Posted 10/2/2008 5:25 PM (GMT -7)   
Glad going gluten free has been so beneficial to you. I went gluten free years before my Crohn's diagnosis. It was like night and day when I stopped eating gluten. I've been strictly gluten free for about 8 or 9 years now. Crohn's is kicking my arse despite that, however.
Type I Diabetes- 29 yrs. (MiniMed Insulin Pump)
Celiac Disease- 8 yrs.
Crohn's Disease- (Nov. '06)
No meds at this time. (Don't agree with me.)


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 10/2/2008 5:29 PM (GMT -7)   
are you the famous blogger-author glutenfreegirl? I am a big fan and have found 80% relief from all my crohns problems due to going gluten free.
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


sjs0018
Regular Member


Date Joined Jun 2008
Total Posts : 35
   Posted 10/2/2008 5:37 PM (GMT -7)   
I would really like to see your case and/or articles you have found that say a "Wheat allergy may cause Crohn's" I have done hours and hours of research and have never found a case, article, or study on this. An allergy is very different then an intolerance, your post seems to suggest they are the same.

I suggest that you post your resources when making claims such as "Doctors have not been recognizing wheat allergies as the cause of Crohn's disease until recently." Not just for credibility but perhaps others would like to know more. Your claims really don't sit well with no resources.

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 10/2/2008 9:10 PM (GMT -7)   
glutenfree girl:

I am glad you have found something to help your symptoms, although, if you were truly "cured" from crohn's you'd be able to eat wheat without any problem like the millions of other people in the world who eat wheat with no problem whatsoever. If you eat wheat, you'll get more CD symptoms, so you are not "cured" (unless God cured you :-) ). There are genes involved as well as something that triggers the disease.  

The word "cure" is a very sensitive one around here. Most of us have tried diets that help our symptoms. Some people go into "remission", others don't. You may find that although your symptoms are better, the CD is still present and after many years may cause problems. This has happened to people before.

Oh, if you really miss your bread, you might want to try real sourdough breads or soaked/fermented grain bread. These types of breads are sometimes tolerated even by celiacs. Just be careful and watch your symptoms closely. Do a google about sourdough and celiac. It's pretty interesting.

Best wishes for great health!

Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 10/2/2008 9:54 PM (GMT -7)   
I'm with yogaprof here- when I went gluten free, I was about 80% better. I went on the Gottschall diet (Breaking the Vicious Cycle), and eliminating wheat is one part of that diet. I've been symptom-free for months now.

I suspect that elimination of wheat takes out a big chunk of the carbohydrates that many people consume. This is at the root of Lutz's advice in "Life Without Bread," in which he finds that 85-90% of Crohn's patients treated with his diet are relieved of their symptoms within a few months. Lutz's only requirement is to cut back carbs to no more than 72 grams/day. However, he cites one study that showed marked success with reducing carbs to 150 grams/day; most Americans consume somewhere between 250-350 grams/day, so that's not a huge restriction.

So- it could be a very real effect for the original poster. If your symptoms come back, I would recommend reading up on carbohydrate restriction and Crohn's.

meowese
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 10/2/2008 10:33 PM (GMT -7)   
If I see an allergist, can they do tests to find out what foods I'm allergic to? I'm very curious.
Crohn's (dx 2006), severe migraines, Seborrheic Derm., Hemolytic Uremic Syndrome (1994), ulcers/GERD and possibly Fibromyalgia? Medications: Nexium, Pentasa, Cymbalta, Xysal, Yaz, Percocet or Vicodin as needed, Flintstone Vitamins (my favorite part!), vitamin D once weekly.


AussieGirl
Regular Member


Date Joined Feb 2005
Total Posts : 92
   Posted 10/2/2008 11:13 PM (GMT -7)   

I can understand why everyone is getting up in arms with the word 'cure' by eliminating gluten products. I was and still am gluten and wheat free, as well as a number of other foods I cannot tolerate/am allergic to, for about 15-20 years before being diagnosed with Ulcerative Pancolitis, then Type Unspecified, possible Crohns, but am now back to officially having Pancolitis. I was told by one specialist that there is probably an overlap between IBD and IBS/food intolerance, rather one being the root cause of the other.

At least glutenfree girl isn't telling us that we have our disease because 'you only have your problem because you want it' as I was once told by a female in a store selling essential oils!!!   eyes You can imagine the look I gave her and the thoughts I had (including wanting to physically smack her). Yeah, we all so want what we've got. I just so enjoy not eating certain foods I love, having a close relationship with my toilet, etc, etc........  

Peace and Love!

 


Officially diagnosed Jan 2005 with UC & anthropathy arthritis, RV Fistula April 2005
Misdiagnosed for over 20 years re the above!
 
4 DVTs and 1 PE (blood clots) Nov 2007 (caused by flare ups) 
Oesteopenia in right hip and spine (caused by pred)
 
Present meds: 6 x 750mg Colazide, 50mg 6MP, off warfarin but on stage 3 clinical drug trial Rivaroxaban
Take 1000IU Vit D, calcium, magnesium, vit C, vit B, Evening Primrose Oil 
 


Cookie's Wife
Regular Member


Date Joined Aug 2005
Total Posts : 299
   Posted 10/3/2008 5:58 AM (GMT -7)   

Ok guys...like mmmnavy said...peace.  This is supposed to be a site that EVERYONE should feel comfortable coming on and sharing, venting, and supporting each other.  Not making them feel stupid, which I feel many of you did.  If this is what works for her, then we all should be supporting her.  She probably will not post on here again because of all the negative responses she received.  And she may have some great advice, information, and support that could of helped someone else. 

Just remember that we're all in the same boat...even though the storms may not be the same.


~april
 

 



belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 10/3/2008 6:32 AM (GMT -7)   
I think it is wonderful that you feel so energized and committed to a new regime, but three weeks does not a "cure" make. I call it a vacation from illness. And we all need them. I hope yours is as long as your life, but please stay rooted in your reality. My concern when I read posts like yours, and I have seen them here regularly over the last couple of years, is that there is a potential for self-abuse when a person makes a huge emotional investment in "being cured". When the investment is so big, there is a tendency to deny and minimize emerging symptoms because they don't fit the narrative that has been created.

In the early years living with this disease I achieved several vacations. I tried alternative diets (I actually read Gottchall's book when it was a new theory) and naturopathic interventions. The vacations were great. I felt in control. I felt strong. I had a huge investment in proving to myself -- and my medical providers, family and friends -- that I could manage this disease just fine. I didn't like the side-effects of prednisone and the 6-MP prescription remained unopened in my cupboard because I was too afraid of the potential side effects.

Unfortunately, my vacations were all rooted in the power of denial and the determination not to accept my reality. It worked for awhile because force of will is a powerful tool. But it can become a weapon if it is used to ignore instead of confront. It was a weapon for me and I have paid a price.

So enjoy your vacation. Continue to eat healthfully, remain involved in the management of your disease, and continue to work towards wellness. Take every day you feel well as a gift, but please leave yourself an exit strategy. If your symptoms return you need to be prepared to acknowledge and deal with it promptly. Don't be so committed to "being cured" that you delay seeking appropriate interventions if they are warranted.

It took me 30 years and way too much pain and suffering to finally accept my reality. I have crohn's disease. I am sick and I can't manage this disease -- with diet, or meditation, or flax seed enemas, or chlorophil, or yoghurt or aloe vera gels, etc. -- alone. Without the interventions of western medicine I would be dead and so too would many of the people who use this forum.

Come back in 30 years and then, maybe we can have a discussion about "cure".
Belleenstein:

30+ years living with Crohn's.


GlutenFreeGirl
New Member


Date Joined Oct 2008
Total Posts : 16
   Posted 10/3/2008 7:03 AM (GMT -7)   
Thank you to those of you who were supportive. Yes, I have faith and am optimistic by nature. God did heal me of my fistula without surgery. This is not a claim I have heard any one else make. I'd like to hear about it if there are others who have healed from a fistula naturally (mine was in the worse location). Since then, 6 years ago, I have been stuck with this diarrhea and once in awhile the pain would come back after the bouts.

I now understand why there was such a negative reaction! I sympathize with all of your who have suffered - but have faith! I was healed by God from my fistula and now I feel that I have found a cure for my asthma and diarrhea that remains. The asthma part is my biggest worry at this time and to think I can get off the meds after being on steroids for 15 years - is amazing! I have been praying "God, I know it's a long shot, but could you get me off my asthma meds and heal me?". And now it's happening!

I was self diagnosed but confirmed by seeing a naturopath who told me that the Crohn's is a side effect of Celiac disease (I called it a wheat allergy because people understand that better and I understand the difference) and I don't have any problem understanding this as a big possibility because frankly, disease is more simple than most people make it out. Doctors put labels on groups of symptoms and call them diseases, but in essence, they are simply symptoms and it doesn't matter what they are called, especially if no one has come up with a root cause. I am also seeing a physician who was also supportive that the new diet is helping, and never said "No, this can't cure you".

So call it Crohn's, or call it nasty abscesses and an inflammed colon. It doesn't matter what you call it, if it clears up by a diet, then great for those who are lucky enough. I do feel lucky, and I am sorry that this hasn't worked for everyone here. I feel that clearing up the inflammation in my colon from the gluten intolerance, is just the thing the doctor didn't order. No doctor ever said that changing my diet could help. I think the medical community has problems with root cause analysis and just throw bandaids (drugs and surgery) on everything and think they are geniuses.

This hasn't been a Crohn's vacation - I have been without the abscesses for 10 years now! The fistula's been gone for 6 years! God bless everyone and I pray for healing for all of you on the site.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/3/2008 7:26 AM (GMT -7)   
GFG, Please read the forum RULES.
I am glad this works for you, but please do not judge others spirituality.
The rules limit mention of religious topics.
 
10. No posts of an overtly... religious nature...  The forums are intended for offering mutual personal support.  Debating controversial subjects should be taken elsewhere.  Limited religious references are allowed (ie. "my prayers are with you" or a brief quote as part of a larger post), but the forums should not be used to convert others. 
______________________________________________________________
Again peace ya'll, she is not getting that these are very inflammitory topics.


Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 10/3/2008 8:37:53 AM (GMT-6)


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 10/3/2008 7:43 AM (GMT -7)   
I must have misunderstood your post. When you talk about 21 days, to me that means three weeks. And what do you mean, you have been self-diagnosed? Very confusing. On the one hand, I think you are saying you don't subscribe to the allopathic codification of symptoms into disease labels, but on the other hand, you say that you have crohn's disease. Do you have crohn's disease? Or have you experienced symptoms that those who have been diagnosed with crohn's disease deal with? Lots of things mimic some of the symptoms of crohn's.

If you don't believe in "the labels" that physicians put on diseases, then why post about a "cure" for crohn's?

And moderators, I am offended by the survey question. It presumes that gluten intolerance IS a cause of crohn's. There is no way to respond accurately without artificially skewing the intent of the question. No, I did not know that wheat intolerance may be a cause of crohn's? What does that actually affirm? That there is sound evidence and I didn't know about it. Or that I know that there isn't sound evidence that wheat intolerance causes crohn's? Which is it. Please consider removing this survey.
Belleenstein:

30+ years living with Crohn's.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/3/2008 7:49 AM (GMT -7)   
Bell - I think the survey is straight forward. It is asking if we knew that wheat intollerance could cause crohns. We don't know all the causes yet and it is something that for some, could be the cause. I answered no, because I did not know that wheat intollerance could cause crohns in some. That doesn't mean that it does cause crohns... it means that it is being investigated as a possibility, as something that COULD cause crohns in SOME. I think with this disease, anything is possible.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/3/2008 7:50 AM (GMT -7)   
The inherent survey flaw has been noticed bell and submitted for mod discussion.
I am not sure if we can remove the survey without deleting the entire thread.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 10/3/2008 9:03:33 AM (GMT-6)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/3/2008 7:50 AM (GMT -7)   
(the caps are not yelling just emphasis on the words I thought stood out)
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

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