RANT & RAVE ABOUT SURGEONS & RV FISTULAS

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

AussieGirl
Regular Member


Date Joined Feb 2005
Total Posts : 92
   Posted 10/2/2008 8:11 PM (GMT -7)   
Just having a rant and rave about idiot surgeons. Had an exploratory last year by a surgeon who tracked my RV fistula from beginning to exit. Had surgery on the 6 August this year with a fistula plug but which unfortunately failed. She referred me to another surgeon for a second opinion about trying again, who decided to do their own exploratory Wednesday just gone.
 
I now believe I had Laurel and Hardy (or the Gumnut Twins) do the exploratory surgery. I read the discharge report while still at the hospital and went ballistic. They reckon that I don't have a fistula opening at the vag end! Somehow I must have spontaneously healed between 11am and 4pm. I told the nurse who rang the surgeons and one came up at 5pm to talk to me.
 
Turns out they were looking in the wrong spot........aaarrggghhhhh..... No wonder they couldn't find the opening, they weren't even close, they were looking INSIDE instead of at the Bartholins gland where it is - did they not READ the previous surgeon's report of where it is or LISTEN to where I told them it was! The surgeon got a roasting from me, and now I have to go back Monday morning to show him. He wants me to mark where it is - what, with a texta!!!!! That night after I got home I got out the mirror and went straight to the spot. I'm not a medical Dr but I could see it plain as day.......... RANT RANT RANT CRANKY CRANKY CRANKY
 
Anyone else experience twit surgeons???
Officially diagnosed Jan 2005 with UC & anthropathy arthritis, RV Fistula April 2005
Misdiagnosed for over 20 years re the above!
 
4 DVTs and 1 PE (blood clots) Nov 2007 (caused by flare ups) 
Oesteopenia in right hip and spine (caused by pred)
 
Present meds: 6 x 750mg Colazide, 50mg 6MP, off warfarin but on stage 3 clinical drug trial Rivaroxaban
Take 1000IU Vit D, calcium, magnesium, vit C, vit B, Evening Primrose Oil 
 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/2/2008 8:19 PM (GMT -7)   
*bashes head against keyboard* That's outrageous! Surely this clown will have to answer for his idiocy?

Where was this, Aussie? In the country, or at one of the big city teaching hospitals? (ie. were the surgeons part of a team, or are you stuck with this one?)

Ivy.
Co-Moderator Crohn's Forum.


eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 10/2/2008 8:23 PM (GMT -7)   
i hate how doctors and surgeons dont listen to what you have to say,like my brother had a brain tumor which was called a subdural hematoma and mum told the er docs thats wat he had and the registra said to her "no it couldn't of been that" like my mum was making things up or something,and i had a rotten tooth,the decay was on the inside and the er doctor told me it might be the herpes virus in my jaw joint?????  and before i dx i had a bad staf infection and the docs keep telling me it was thrush 8 treatment later and a gyn appointment,crohns disease.yes my gyn dx my crohns.brilliant,hate the doctor who was so stupid to nt even dx a staf infection.I think most doctors are stupid.


dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa


eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 10/2/2008 8:27 PM (GMT -7)   
oh i forgot the radiologist telling my after my baruim series that i didnt have crohns,apprantly i got cured in 5 hours,not to mention my small intestine was basically blocked frm crohns??? here i was thinking my crohns was only in my colon..................
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa


AussieGirl
Regular Member


Date Joined Feb 2005
Total Posts : 92
   Posted 10/2/2008 8:39 PM (GMT -7)   

The exploratory took place at one of Queensland's state capital's hospitals where they teach students - may the Lord protect the students....! 

8 years ago in my hometown, which is a regional city, I was misdiagnosed with a ruptured Batholins abcess. Wasn't correctly diagnosed with the fistula until 2005. The colorectal guys wanted to do an advancement flap repair with a bag for 6 months WITHOUT doing an exploratory. They just assumed it was long and torturous because it wasn't a *normal* fistula - ie, in the normal spot and short and straight.

That's why I went the gyny route - they could see it in the examination room after I told them where it was, and that's why my female gyny did the exploratory, with photos too!, to track it. I told her I didn't want the bag so she looked at the fistula plug that is new to the market. When it failed (came out), she referred me to a colorectal guy to see what he suggested. At that appt, I told him that I had been misdiagnosed and where it was. He was talking about doing the plug again but with a different shape to it but wanted to look himself. Obviously he doesn't read his own notes or pass on the information to the gyny surgeon he had with him.

I also could have kicked the bucket from all the DVTs in my left leg and PE in my right lung last year as I didn't have the classic symptoms and the ER Dr was going to send me home. I only got the ultrasound on my leg as my temp was high and I didn't feel feverish. THAT's when they discovered the multiple blood clots. They didn't discover the PE in the lung until the next day when I went back to the ER to tell them I could feel pressure on my chest and they decided to do a CAT scan...............! 


Officially diagnosed Jan 2005 with UC & anthropathy arthritis, RV Fistula April 2005
Misdiagnosed for over 20 years re the above!
 
4 DVTs and 1 PE (blood clots) Nov 2007 (caused by flare ups) 
Oesteopenia in right hip and spine (caused by pred)
 
Present meds: 6 x 750mg Colazide, 50mg 6MP, off warfarin but on stage 3 clinical drug trial Rivaroxaban
Take 1000IU Vit D, calcium, magnesium, vit C, vit B, Evening Primrose Oil 
 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/2/2008 8:42 PM (GMT -7)   
Good grief! Perhaps a formal complaint is in order. It's only a matter of time before they kill someone, with procedures like that. Can you imagine - those docs are probably giving people drugs they're allergic too, simply because the docs didn't read the case files first.

I really am sorry. It's just not good enough.
Co-Moderator Crohn's Forum.


AussieGirl
Regular Member


Date Joined Feb 2005
Total Posts : 92
   Posted 10/2/2008 8:58 PM (GMT -7)   
Too true! At least they have 'drug alert' all over my files as am super allergic- it's a case of 'what aren't you allergic to?". He knew I was more than peeved off.

At least he had the decency to see me face to face rather than send up one of the interns. If I hadn't been given food afterwards, he was going to take me back down to the theatre to show him. I now have to show him on Monday in his rooms where the spot is. Gymnastics with a mirror for me!

Am thinking of being real horrible and plonk on his desk (lap!!??) on Monday one of the pads I have to wear because of the fistula. Might even eat lots of fruit like paw paw and apples and stuff like garlic and other foods that make me run to the toilet to ensure he can't doubt that the opening isn't there. Evil thoughts, it's either that or smack him one.
Officially diagnosed Jan 2005 with UC & anthropathy arthritis, RV Fistula April 2005
Misdiagnosed for over 20 years re the above!
 
4 DVTs and 1 PE (blood clots) Nov 2007 (caused by flare ups) 
Oesteopenia in right hip and spine (caused by pred)
 
Present meds: 6 x 750mg Colazide, 50mg 6MP, off warfarin but on stage 3 clinical drug trial Rivaroxaban
Take 1000IU Vit D, calcium, magnesium, vit C, vit B, Evening Primrose Oil 
 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/2/2008 11:18 PM (GMT -7)   
I'm so impressed at your assertiveness. All I can say is, "good for you". It should never have happened in the first place. And I do love the way we are expected to run around and lose energy / working days etc because of *their* mistakes.

Could you talk to the Ombudsman? Or does it all use too much energy, and is it simply not worth it?

btw, we have another member in your city - keep an eye open for Phoebesky86. Me, I'm south of you, but still in Aus.

Ivy.
Co-Moderator Crohn's Forum.


AussieGirl
Regular Member


Date Joined Feb 2005
Total Posts : 92
   Posted 10/3/2008 12:43 AM (GMT -7)   

Hi Ivy

Well, I would much prefer to get him to repair it. I think if I just went the route of making an official complaint, it might 'blackball' me in the rest of the state. However, I told the head nurse of the other surgeon who did the exploratory last year, so now, that particular surgeon, and the other gynys (including the interns) that were there on Wednesday, now know about it.

Other ways to skin a cat I say. I might look sweet but I was told once that I have the 'bad blood' of my Grandmother. In other words, the Great Aunt who said that did so because I stood up to her verbal bullying of my sister. Apparently my Grandmother (her sister-in-law) stood up to her verbal bullying when my Dad was a boy and actually punched her in the nose! My father reckons that his mum must have had to jump as she was like 5ft nothing and the great aunt close to 6 ft! LOL!


Officially diagnosed Jan 2005 with UC & anthropathy arthritis, RV Fistula April 2005
Misdiagnosed for over 20 years re the above!
 
4 DVTs and 1 PE (blood clots) Nov 2007 (caused by flare ups) 
Oesteopenia in right hip and spine (caused by pred)
 
Present meds: 6 x 750mg Colazide, 50mg 6MP, off warfarin but on stage 3 clinical drug trial Rivaroxaban
Take 1000IU Vit D, calcium, magnesium, vit C, vit B, Evening Primrose Oil 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/3/2008 5:06 AM (GMT -7)   
Hi Hope you take your own mirror with you seems it was more a case of finders keepers and looser weepers for you. Darn if they cain't find it Monday What will you do then .Perhaps they had other peeps to look into. Hmm .So what did the brainies tell you to mark it with?lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 10/3/2008 5:24 AM (GMT -7)   
Perhaps,you could get creative with a Sharpie marker..."FISTULA THIS WAY..." HOLE UP AHEAD...." "CAUTION: DISCHARGE" Have arrows coming in pointing from all directions...draw a map...these docs surely need it!! Or, as you said take your pads in...smack him in the face with it!

You have every right to be steamed...there is just no excuse for all that you've been through with this monkeys.

AussieGirl
Regular Member


Date Joined Feb 2005
Total Posts : 92
   Posted 10/3/2008 6:22 AM (GMT -7)   
Perhaps I do need a road map with signage pointing the way!  LOL!  You should have seen (or perhaps not....) the sight of me looking for it while trying to hold a mirror, a torch, and a cotton bud with iodine on it - thought of staining it as I don't think a bandaid would be appropriate, all the while sitting on the edge of the bed with my legs up in the air. Ended up with sore stomach muscles from all of the contortions and using my butt checks and top of my thighs to position the mirror and torch!! Should join the circus.  
 
Any other suggestions to 'mark the way'??!!!!  smilewinkgrin
Officially diagnosed Jan 2005 with UC & anthropathy arthritis, RV Fistula April 2005
Misdiagnosed for over 20 years re the above!
 
4 DVTs and 1 PE (blood clots) Nov 2007 (caused by flare ups) 
Oesteopenia in right hip and spine (caused by pred)
 
Present meds: 6 x 750mg Colazide, 50mg 6MP, off warfarin but on stage 3 clinical drug trial Rivaroxaban
Take 1000IU Vit D, calcium, magnesium, vit C, vit B, Evening Primrose Oil 
 


GlutenFreeGirl
New Member


Date Joined Oct 2008
Total Posts : 16
   Posted 10/3/2008 7:08 AM (GMT -7)   
Hi - I healed naturally from a RV fistula. It took 5 years but it was worth it. After about 2 years, it was almost healed, and it took the other 3 years to plug it up - naturally.

I made this decision because I was afraid that since surgery can cause this, and those with Crohn's have difficulty healing up from fistulas in general, that I was better off going with God. He's so nice. : )

You know what I always say? If you got there, you can get back. Whatever you do, you can un-do. The body wants to heal. It just takes time.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/3/2008 11:02 AM (GMT -7)   
Yes I would take in little pictures of planes and show him the runway. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/4/2008 5:07 AM (GMT -7)   
Hi Just wandering if you showed the doc the airport yet most of them are flying off to somewhere. How about getting a pic and taking that in might be easier then trying to show him when you get there. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 11:30 AM (GMT -7)
There are a total of 2,734,160 posts in 301,185 threads.
View Active Threads


Who's Online
This forum has 151309 registered members. Please welcome our newest member, waterfall79.
369 Guest(s), 14 Registered Member(s) are currently online.  Details
momto2boys, Psilociraptor, Tagier, Jen77, Skyy, Loutucky, Girlie, pmm73, maria2016, quincy, poopme, Tall Allen, ljimd, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer