ladies--wiping

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sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 10/3/2008 2:53 PM (GMT -7)   
D has really kicked up and so my r-v fistula is just pouring and leaking--GROSS. I have wiped my front so much, everything burns. I've got some good wipes for the back but what about the front? Ointments? Creams? HELP!!
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa, just started humira


apalaura
Regular Member


Date Joined Jul 2007
Total Posts : 53
   Posted 10/3/2008 2:58 PM (GMT -7)   
aquaphor....ahhhh....

feel better!
Dx'd 5/07, azasan, florastor, fish oil, B12


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 10/3/2008 3:10 PM (GMT -7)   
oh.... i'm sorry for you. Maybe a nice warm salt bath a couple of times a day...?

Take care

Roni

justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 10/3/2008 3:35 PM (GMT -7)   
Warm baths and Calmoseptine ointment. It's not a script but your pharmacist may need to order it. It protects the skin against the drainage.

AussieGirl
Regular Member


Date Joined Feb 2005
Total Posts : 92
   Posted 10/3/2008 4:20 PM (GMT -7)   
Hey, I feel your pain - savlon can help but wouldn't know what it's called overseas. If I want to stop any chances of infections, I put iodine on it. Bluuuddddy hurts like hell and need to be near the bed as the sting of it makes me fall backwards and it stings for a while but it seems to settle down the inflammation of the increased discharge.
 
I also find that when am on Pred, the fistula is worse. Been told that Pred thins the skins so wonder if it 'widens' the fistula or does something to it that makes it worse. Don't know but I hope you can find relief soon.
 
My thoughts are with you.
Cheers

Officially diagnosed Jan 2005 with UC & anthropathy arthritis, RV Fistula April 2005
Misdiagnosed for over 20 years re the above!
 
4 DVTs and 1 PE (blood clots) Nov 2007 (caused by flare ups) 
Oesteopenia in right hip and spine (caused by pred)
 
Present meds: 6 x 750mg Colazide, 50mg 6MP, off warfarin but on stage 3 clinical drug trial Rivaroxaban
Take 1000IU Vit D, calcium, magnesium, vit C, vit B, Evening Primrose Oil 
 


Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 10/3/2008 6:41 PM (GMT -7)   
I had 3 draining fistulas at one point. One was a HUGE abscess...and that thing turned into a fistula that drained for MONTHS. The only protection that helped me was Calmoseptine. I LOVE THAT STUFF!! I now have a tube in EVERY bathroom and smaller tube in my purse. I have just about every member of my family hooked on it. In fact, my local CVS usually keeps it in stock for me! It'sg reat when I'm raw or when I have draining fistulas or whatever. Not real expensive and like a previous poster said you can have the pharmacy order it. It's OTC, but sometimes they still need to order it in, but shouldn't take more then 24 hours.

GL! I remember that pain. I remember just walking and I'd have to wear a pad because it'd just erupt every once and a while and start draining.... ugh!
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 10/3/2008 9:06 PM (GMT -7)   
When I had mine, my ob/gyn suggested that when I get out of the shower in the morning, to dry myself down there with the blow dryer on cool. Then put a layer of crisco down there. I was quite skeptcal, but it worked so well! I did that everyday until the rv fistula closed. Once I applied it in the morning, I was good for the whole day.

Miss UK
Regular Member


Date Joined Oct 2007
Total Posts : 128
   Posted 10/4/2008 5:42 AM (GMT -7)   
Oh I feel for you I have/had the same problem it's like acid being poured on your bits I find that being the most painful part of the fistula.  I rang the hospital in tears and their specialist recommended Vaseline (hope thats what it's called your way).  Well I tried it thinking it couldn't possibly help but I'm now on my 6th day and no burning pain hoorah! so try that along with a couple of salt baths a day just smother it on I hope it helps you as it's just awful x

Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 10/4/2008 8:20 AM (GMT -7)   
Desitin diaper cream - "original". Purple label, not the blue label. It has 40% zinc oxide in it and it will heal your chafed skin right up, just don't put it IN your vajay-jay, but it's definitely safe for the surrounding areas. It's great stuff. You can buy it at any drug store or Walmart or wherever.

sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 10/4/2008 2:27 PM (GMT -7)   
thanks for the responses. I am soooooo upset and sooooo frustrated. IT JUST WON'T STOP DRAINING. I feel like I'm wiping it out every 15 mins. What do I do? I'm taking immodium. And it only slows the D down for a few hours.
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa, just started humira


Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 10/4/2008 2:58 PM (GMT -7)   
Are you on Cipro or Flagyl? Just about anytime I get a fistula, they put me on an antibiotic, especially if I'm having mucous drainage. Put a pad on and let it drain. The wiping probably is irritating it more. I'd actually recommend AGAINST vaseline. Use something like Destin or Calmoseptine. Vaseline will act as a barrier, preventing healing. Fistulas should heal from the inside out which means they can drain a while.

Are you getting plenty of fluids? Have you called your doc? I know its the weekend, so can you make it through the weekend? If you get too dehydrated or in too much pain, go to the ER. The good news is the fistula IS draining. A lot of times they can heal up a bit and then abscess a tad and then start to drain again. THAT is far more painful then the fistula just draining. I'm sure where you are hurting is probably dry skin from the drainage. I cannot recommend enough the Calmoseptine. I went form not being able to sit on a soft pillow on a soft chair with pain pills to being able to sit in a soft chair the next day with minimal pain pills. I cried everytime I rolled in bed to get up because I was THAT raw. I would simply put the Calmoseptine on or Desitin, and keep a pad on and let it drain.

GL and KUP.... Do you have anything else besides Immodium? I know some of us have Xanax and sometimes that calms us a bit....
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 10/7/2008 7:05 PM (GMT -7)   
Im probably going to be no help at all, as I have had 2 draining fistula's for 10 years!!!!!!!!!!! Yuppers, 10 years. Im only 31, so almsot my entire adult life? I wear a maxi pad every day, and just let them do there thing. No wiping, no creams, no nothing. If it starts hurting (taking Aleve will cause pain the next day) I take 2x6 L-Lysine pills, 2x4 Echinacea pills and sit on a heating pad. Sitting in a bath (sitz, salt etc.) is NOT good as it will soften the surrounding skin while IN the bath, but afterwards when the skin dries....OUCH. Good luck, Im with you.
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, still kickin!!
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 10/8/2008 7:28 AM (GMT -7)   
I've never sat on a heating pad--good idea. we're in this together. It stinks--literally and figuratively for me!
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa, just started humira


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 10/8/2008 9:15 AM (GMT -7)   
i'm so sorry! I had a RV fistula once for a short time. It only leaked slightly, but was very close to my urethra and continually made me feel like I had a UTI. I cant imagine having to live with one. You cant even have unprotected sex!

Again, I'm so sorry. . . good luck!
33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 

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