As a crohnie myself, the most difficult thing I have ever experienced was when my beautiful 6 month old granddaughter (Andi) required GI surgery. Knowing the little looks and distortions on her face were GI pain for a week (my daughter thought I was nuts) prior to the blood filled diaper that helped Doctors make the call to use tests that led to her diagnosis was by far the worst thing I've ever experienced. A young mans privacy is very important, but his health is too. Possibly you could tell him you need him to not flush so you can see how much and what kind of movements he is producing,
I mostly wanted to remind you to take care of the Momma. You are right, at this age you are not just his best friend, but his Goddess and every thing else to him. He really needs you so please take extra good care of you.
I hope and pray your son's issue is something mechanical that can be repaired, Andi Kay is none the worse for wear. She is now a healthy 4 year old with a "zipper" on her tummy that was used to make her well.
I wanted to suggest that you watch for iron fortified products. Andi and her younger sibling both cease to digest anything after they consume cereals or other products with added iron. We replaced these items with some from health food stores that contain elemental Iron.
I am praying for you and your child. I hope you get answers soon. OK I'm going to shut up now, from your post I can tell someone did a fine job and you don't require any Mothering, I just wanted to remind you to be good to yourself.
Oh,good luck to you guys. I would definately see a Pediatric GI. I have some concerns with my 8 yo son,he has stomach "issues" sometimes,but says that he sees "white in his poop" sometimes,so I don't know?? The Pediatrician said we will just keep an eye on him for now.
hang in there,and keep us posted
LL, Thank God you've found a good Doctor. The one who Diagnosed my Crohn's talked to me for 45 minutes before she ever touched me. I knew then she was somebody special to me.
What is the WW you spoke of. I remember you were having trouble with sezures, is this related?
My main point in the previous post was that sometimes children experience things that can be repaired and forgotten about, as opposed to lifelong illnesses. Please don't fear things that have not happened yet, today is plenty to deal with for now. In 2002 when I was diagnosed with Crohn's, I started the SCD because a remedy find web page posted results of a poll or something that rated the SCD at a 7.8 in effectiveness, but a 9.6 in difficulty(rough numbers from memory of a 50yr old Crohnie).The second best rated at the time was a Prescription drug, that was rated at a 4.2 in effectiveness(again a rough number). When I read a book written about the SCD, it seemed to ring true to me, so I gave it a chance. My husband of 35years suffers from insulin resistant metabolic syndrome X. In 1995 his insulin levels ran approx. 6X normal, but he was unable to absorb the insulin, or process the sugars. His blood sugar had ran > 300 for 4 years prior to this in spite of the oral drugs. He was ready to go on Insulin shots when I read about the insulin resistance issue (Dr. Weil I think) in 1995, and asked my husbands Internal Med. Doctor about it, and he implied it was a Hoax. I fired him on the spot and made an appointment with a Internist who had treated him for Grave's disease in the 1980's. The first thing he said to my Hubby was "How long have you been Diabetic, and do you realize that you are insulin resistant. My MMM's (Macho Mexican-American Male) chin fell to the floor.(He was still pouting at me for firing his other Doctor) This wonderful Doctor was able to stabilize his blood sugar, and insulin levels to a great degree, and protect his vital organs from the damage these issues are associated with. From 1995-2005 we had reasonable control with Avandia and Byetta. Through 2005, 2006, 2007, into 2008 his A1c ran 4.7-5.3 on Avandia and Byetta. He was not eating a total SCD diet, by any means, if he asks the grown kids(4 all living nearby) for a burger he gets it, but he continued to slowly improve, and the Doc's slowly decreased his meds. He was removed from all meds in Feb.2008. He may very well go back on a low dose of meds in the future, but any break from the side effects of these is a blessing. The SCD utilizes many foods now believed to be low glycemic index foods, as in the "specific carbohydrates' it supplies . You may be aware of the glycemic index, if Valorie (your older child?) has Insulin issues.
At any rate, my long winded point this post is that time permitting you may want to read Breaking the Vicious Cycle by E. Gottschall, you should be able to check it out at the library. She was a biochemist whose child had Ulcerative colitis, and she took another persons idea a step further in helping/feeding her ill child, with amazing results. It gives a wonderful overview of the body's method of processing carbs and sugars. You may find this helpful in feeding Valorie and your "Surprise Blessing". Also, if you have not already, check into a good book about the glycemic index. These will give you good background after you get a diagnoses and when you see a nutritionist. I learned a great deal from the Dietetic students who I have worked with in the health food industry, they are writing papers on the cutting edge of all this, and some of the veterans in the field are learning from new research also. I am not a Dietitian, but they are open minded as a group overall, and I pray you are able to work with one.
In the mean time also I would urge you to shop the outsides of the store. Whole foods, meats, vegetables and so forth, time permitting. Also avoid anything with enriched flour, and all things sweet, except again whole foods. A little juice is OK, but fruit is sometimes better tolerated with the fiber intact. Anything with fiber needs to be introduced slowly starting with small amounts. If you must sweeten his foods, honey may be a good choice for now.
Search Gluten free on the net. Gluten is the protein in Wheat and Barley. It is everywhere, even in cheese you buy shredded or cut in cubes. Many GF foods are available in health food stores, but they are costly. You will become one of those label readers if you try this, but you will find more foods marked "Gluten Free" in regular food stores in the future.