Not sure what to do? When should I be concerned? A little scary.

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LuckyStar01
Regular Member


Date Joined Mar 2008
Total Posts : 54
   Posted 10/5/2008 10:00 AM (GMT -7)   
I am experiencing classic signs of a flare. Right side pain, bleeding, frequent bowl movements that are very small, stomach and back pain.
I have some kind of sore bumps under my skin and feel miserable. I am running also a low grade fever. Along with that some serious
muscle and joint aches.

I don't have an appointment until the end of October. Is there any material out here that can help me make a decision if I should
wait or go to the hospital?

Any experience or opinions are welcome.

I am really concerned with the bleeding to me it is quite a lot. I don't feel I am getting answers from my Dr's office. All I hear is you
need to take a drug (that I don't tolerate at all) this is the last thing you can take and I don't hear or else what?

Currently on a couple of Prednizone to hold down symptoms but that is starting to become ineffective.
Came off of Remicade due to onset of allergic reaction and possible neurological affects and illness.
Diagnosed 2004 - Chrohns and UC - Currently on no medication.
Multiple other chronic illnesses and allregic to many things.

Wish upon a Lucky Star!


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 10/5/2008 10:13 AM (GMT -7)   
sounds like you need to talk or see doc asap. I hope not emergency but please--Don't wait.
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa, just started humira


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/5/2008 10:46 AM (GMT -7)   
Hi I would like to say if you are bleeding alot perhaps a visit to outpatients .How much pred. are you taking? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 350
   Posted 10/5/2008 11:46 AM (GMT -7)   
I would call your doctor and try to get is asap
============================================
23 Diagnosed With Crohns's April 07. Tysabri Right Now
westwindsmith.blogspot.com/


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 10/5/2008 1:09 PM (GMT -7)   
Hi I would call your doctor and get an earlier appt. If the pain gets worse go to the hospital.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


LuckyStar01
Regular Member


Date Joined Mar 2008
Total Posts : 54
   Posted 10/5/2008 3:53 PM (GMT -7)   
Hi - I am back long day. I am on 20 mgs of prednizone per day.

I am not sure what to compare my pain with. I had panchreatitis before and I would say
my stomach aches are like the nawing stomach aches you get right before it goes into the
really painful stuff. You know just doesn't go away. But the pains in the leg muscles and other joints
that gets so bad at night I cannot sleep or lift my arms and travels night to night.
During the day If I lay down it helps. I am concerned about the low grade fever.

I have called the Dr and I feel really blown off. I even took digital pictures and they said
"We don't need to see those we believe you" (???) My GI Dr sends me to my regular Dr that
is really attentive but he does not know alot about my medications and illness etc.


Thanks for all of the replys/support. I will give them a call again.
Diagnosed 2004 - Chrohns and UC - Currently on no medication.
Multiple other chronic illnesses and allregic to many things.

Wish upon a Lucky Star!


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/5/2008 8:00 PM (GMT -7)   
oh what exactly did you take pictures of??? lol!
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 10/5/2008 8:33 PM (GMT -7)   
Probably the bumps, Fitzy....

How long since you stopped the Remicade? Perhaps this is a new immune reaction to it....
Dx'ed in 1999. No surgeries.

Current meds: 100 mg 6MP. Just finished prednisone taper. Udo's Choice Probiotics (30 billion).
 
Betaine, digestive enzymes, Candicin (oil of oregano capsules), Beta Sitosterol.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/6/2008 9:53 AM (GMT -7)   
Hi How are you doing now ,did you get ahold of your Dr.? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

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