Think I might be starting to flare again

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Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 10/5/2008 11:48 AM (GMT -7)   
Last night my eye was itching, no big deal. I rubbed it and then my eyelid puffed up. Really thought it was just allergies. Until I woke up at 5 am with the palm of my hand hurting, real low by my wrist. A little red and puffy as well. Exact same thing happened in May when I flared. I'm taking benedryl as my doc told me to, when this happened in May. I'll be calling in the morning to get in to see him. I need him to check my sed rates again. Last time this happened they were through the roof. Shortly after these wierd swelling starts the D, cramping kicks in. I already did have D on Thursday pretty badly as it was. I do have pred on me, but would like to get my blood taken first before taking any. However if the swelling gets worse anywhere, I'm afraid I'll be reaching for it.
 
I'm very upset. I don't get this swelling thing, and why it's connected to Crohn's. Why can't I just get D and pain like everyone else? Like that isn't bad enough, without all this weird swelling. I still wonder if it is something else, something worse. I'm sitting here scared that it may go to my throat or something, even though it never had yet. Last time it went from my foot, my hand, thumb, and then my lip. So far it's my eyelid, and now my hand. sad
 
Just a nightmare. I just got off the pred in August, hate to go back on it, and obviously if I flare back up just 2 months later it isn't doing the job of keeping me in remission for very long. Just discouraging. Why does these things always happen on a Sunday too?


~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure). Tapered off prednisone a month ago!


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 10/5/2008 12:56 PM (GMT -7)   
Not really sure what to tell you other than to suggest that you make sure you are with people. If your throat does start to swell, you might not have time to call for help. I just spent most of the last week dealing with a reaction to antibiotics that scared the pants off me and I'm still not breathing right. I now am the proud owner of an epi-pen because I don 't know when or what will cause me to have a reaction again.

And I can sympathize with you on the stuff always happening on the weekends!!!!

Please take care and I hope the swelling is just some strange occurrence and not a sign of a flare.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


PiaSava
Regular Member


Date Joined Sep 2006
Total Posts : 265
   Posted 10/5/2008 1:01 PM (GMT -7)   

Hey Jen,

I was jut reading this post: http://www.healingwell.com/community/default.aspx?f=17&m=1256074 by Glutengirl. She says in this post that she gets the swelling that you mention in this post.

 


IBD?? - Aug 06
Hypothyriodism - November 06 
Hypertension - March 07
 


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 10/5/2008 3:22 PM (GMT -7)   
I wonder if I do indeed have some kind of allergy on top of everything else. I can't seem to pin point a cause though. Sure hope it's not gluten, that's most of my safe foods!

My doctor believes it's an inflammatory response, due to the high levels of inflammation in my body when it happens. I've found some evidence of that online, but for some reason I still worry he's wrong.

I took a nap, of course benedryl does that to you, and feel somewhat better. My hand isn't hurting as much. But I still think I should go in and see where my blood work stands. Catch it early if at all possible.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure). Tapered off prednisone a month ago!


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/6/2008 5:24 AM (GMT -7)   
Hi Jen keep in touch on how your doing. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

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