hi,new to this forum,and a few questions about crohns?

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alyms
New Member


Date Joined Oct 2008
Total Posts : 7
   Posted 10/5/2008 6:49 PM (GMT -7)   
Im not dx yet,but am now doing exploreing do to profound diarrhea,thats lasted for 3 months or longer.

Im not new to the autoimmune tho, I have ms.

On a ms forum,someone mentioned,crohns on a tread I made about IBS,and diarrhea.

This made me google it ,and it is shocking what I read.

I was told,by my pcp,that if it comes back,after a round of medrol pack,to come back,and she will order a few stool samples,and a colonoscopy shocked

I read the list of crohns sx,and I had many of them.
one that shocked me the most was the fatigue.

I knew that ms can cause fatigue,which I have,but it is more profound than even my neuro knew about.
My pcp and I have been fighting the subject of fatiuge for over 2 years now.

The medrol did work,but only for the duration of the steroids did it work.
the day after I was done with the pack,the diarrhea came back!!
and its not just loose stools,it like water.

No single diet I eat seems to make it better or worse.

Im not really scared at the fact it may be crohns,but im really frustrated at the fact that I cant seem to get the diarrhea to stop.

After I eat,within 5 mins,i have to run to the bathroom,about 1,000 times a day.
I have even had accidents while shopping,and even at home,cause I cant seem to make it to the bathroom in time.

My question is what can I expect if my pcp does go ahead and go trough the dx process for crohns?

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/5/2008 10:17 PM (GMT -7)   
The diagnosis is usually done via colonoscopy, but there are some blood tests that may be done first to give an indication. The blood tests are not 100% certain, but if they are positive, it gives them something to look for. You almost certainly need to be taking vitamin supplements. If you have that kind of diarrhea, you are not absorbing everything you should be. Ask your PCP for iron and B12 levels if he does not order them. You may need to get injections for those two if you are low and have trouble raising them. As a test, you might want to try avoiding gluten and dairy. Those are the two worst offenders and some people report good results just from eliminating gluten. You could try adding dairy back - the trouble seems to be from lactose and some dairy has little or no lactose (hard cheese, dry curd cottage cheese, lactaid treated milk).

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/6/2008 4:39 AM (GMT -7)   
Hi and Welcome glad you are with us. Hope your scope will be soon as your having so much D. Not much to suggest to get it stopped as they haven't seen what is going on in there yet. I second the vitties though. Keep your liquids up so you don't become dehrydrated. Keep in touch on what they find with the scope, have you asked about Imodium or has your Dr. mentioned it? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


alyms
New Member


Date Joined Oct 2008
Total Posts : 7
   Posted 10/6/2008 6:12 PM (GMT -7)   
Keeper-I already take B-12 injections for ms fatigue.
Ill keep in mind about the Iron tho.

about the gluten...at the ms board,I put a list of what I had eaten,(rice,cheese,and salad),and a member had told me that it has gluten in it,and to watch what I was eating,make a log of what I was eating, and fine a cause of the diarrhea.



gachrons--Im trying my hardest to keep from getting dehydrated.
I dont drink any pop,mostly water,some gatorade.

Ill most deff keep u guys posted,I have a appointment for my pcp next monday.
Ms dx,
wow what a ride,can I get off it now...????

My name is alyson,Im 29 years old,but I feel much older than that..
I take it one day at a time for 3 years now,but the time seems to be going by soooo slow.
I look forward to nap time and bed time everyday.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/6/2008 6:35 PM (GMT -7)   
Stool tests are also done...

Feel better soon :)
My bum is broken....there's a big crack down the middle of it! LOL :)


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/6/2008 9:58 PM (GMT -7)   
Rice Cheese and salad does not have gluten in the normal sense. It seems that almost any food can cause trouble for some people, but there is a diet alternative that may help while you are waiting for a diagnosis. It is called the Specific Carbohydrate Diet and info on it can be found here. When you are having so much D as you are, they recommend a very limited diet - just chicken broth and boiled skinless chicken and maybe some very well cooked carrots. This is designed to bring the D under control. If you are interested, there is another site which goes into more detail on the progression from the initial diet to the full (but still quite restricted) range of the foods allowed for this diet. The info can be found about half way down here.

alyms
New Member


Date Joined Oct 2008
Total Posts : 7
   Posted 10/7/2008 7:30 PM (GMT -7)   
thanks keeper.
Im gonna check these sites out.
as for today,it is back full force!!!
I couldnt leave my house for 10 mins so I could pay a bill!!
I cant eat,drink or anything. Ive mostly layed on the chouch for most of the day.
after a million bathroom visits,I did manage to go walking with my kids this evening.


This is really driving me insane,and the abdomen pain is almost unbearable.

I did talk to a lady today that has crohns,and I meet most of the sx,I try not to over exaggerates,mainly cause of the fact that I dont need one more AI disease,and surely dont want to be a hypochondriac by no means. but this is a really life treating disease,and really needs to be DX quickly.
Ms dx,
wow what a ride,can I get off it now...????

My name is alyson,Im 29 years old,but I feel much older than that..
I take it one day at a time for 3 years now,but the time seems to be going by soooo slow.
I look forward to nap time and bed time everyday.


CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 10/7/2008 7:46 PM (GMT -7)   
Hi Alyms. Welcome to HW. I hope it turns out that you have something that is curable and not Crohn's. One thing that wasn't mentioned before is that people with one autoimmune disease have a higher chance of having multiple autoimmune diseases--so it may be that you have CD.

Be careful drinking gaterade. The sugar content and artificial dyes aggrevate my D. (But everyone is different...) I would also encourage you to find a gastroenterologist. It sounds like you have a good relationship with your pcp, but at some point you will need a specialist.

But you're doing the right thing--seeking information and trying to get answers. Keep us posted on how you're doing. Good luck.
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