Home Makeover talking about crohns

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FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/6/2008 5:12 AM (GMT -7)   
http://www.kypost.com/content/wcposhared/story.aspx?content_id=631ec359-6f6f-43fa-8461-39c26de2f7e1
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 10/6/2008 7:01 AM (GMT -7)   
was this on last night? how was it?
33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 10/6/2008 7:08 AM (GMT -7)   
I did not get to watch all of the show, but all I saw were the girls. I never heard anything about the son and father. When it goes into reruns later I will have to catch it again.
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/6/2008 7:17 AM (GMT -7)   
I didn't watch it either. Saw this post on the UC board.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 10/6/2008 7:23 AM (GMT -7)   
I would have liked to see that one too. Perhaps on reruns.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1719
   Posted 10/6/2008 8:57 AM (GMT -7)   
I saw parts of this (Steelers were playing at the same time). They didn't go into the little boy's CD much, it was mostly about his sisters and their disease. I did get a little indignant at the beginning in Ty's narrative that Crohn's cause the boy "stomach pain" -- I'm touchy when CD is oversimplified. Obviously, he has to have had major problems to be DX at such a young age.
 


ClassAction
Regular Member


Date Joined Nov 2003
Total Posts : 437
   Posted 10/6/2008 9:35 AM (GMT -7)   
Yeah, I kinda found the summary of CD as "chronic stomach pain" kind of insulting, but at least it brought up the subject...you don't hear about CD too much on tv.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/6/2008 10:56 AM (GMT -7)   
Describing it as stomach pain is probably the best way they could get people that don't suffer with an IBD to understand that suffering with stomach pain on a regular basis is no fun and most everyone has had stomach pain (from flu and such) so they likely figured people in general could relate to the fact that IBD causes routine pain...people relate to pain quicker than anything, at least it was a topic of mention and more exposure, a stepping stone for those that are curious to get on the computer and google crohn's, IBD, ect.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


mj8dokken
Regular Member


Date Joined Dec 2006
Total Posts : 149
   Posted 10/6/2008 11:27 AM (GMT -7)   
I saw this episode, it begins with the wife/mother stating that 4 out of 5 people in the family had "life-threatening" illnesses (two of which were the boy and father with CD). Then Ty said they have severe stomach pain and it was never brought up again, so you didn't miss anything.

Bad flare May '06 resulted in CD diagnosis-symptoms for 10 yrs prior.
Asacol: 2400 mg/day
6mp: 150mg/day
Entocort: 9mg/day


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 10/6/2008 11:58 AM (GMT -7)   
At least the news article gives it more credence.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/6/2008 4:29 PM (GMT -7)   
Wow. I loved that article! Especially this:

"If people could just extend those little kindnesses," said Doub, "to just come over and watch a video with them instead of be disappointed that they can't go out and play paintball or do the things other kids are doing."

Absolutely.

Thanks for sharing this with us, Fitzy.
Co-Moderator Crohn's Forum.


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 10/7/2008 2:37 AM (GMT -7)   
mj8dokken said...
I saw this episode, it begins with the wife/mother stating that 4 out of 5 people in the family had "life-threatening" illnesses (two of which were the boy and father with CD). Then Ty said they have severe stomach pain and it was never brought up again, so you didn't miss anything.


I saw the episode also.  It was just like what mj8dokken said.  The mention of Crohn's lasted all of 15 seconds.  It focused on the girls and their illnesses.
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 8mg/kg every 6 weeks, Prednisone 10mg/day, (tapering Pred 1mg/month,) Miralax daily, Prevacid 30mg, Vit B12, Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 10/7/2008 2:50 AM (GMT -7)   
i just watched it on tape. the first 3 minutes ty said the dad and son have crohns disease a painfull intestinal disease. that the son would get terrible stomach pains. then with about 5 minutes left the sister mentioned her brother with his crohns... that was all i heard. i even rewound it to make sure i did not miss anything. so basically nothing for the dad or brother like an extra toilet was mentioned.

now for the non pc portion of my post. they did not say when the son developed CD but they did say the oldest girl was diagnosed with her SMA at 15 months and they new something was wrong at 9 months. so why the heck did they have another kid? i just dont get people. you may now berate me with all the things you want to get off your chest, like how can you be so insensitive , judgemental etc... i can take it! i mean sure its a personal decision, but holy schnikies! why put a kid through that on purpose? and the burden on taxpayers is out of this world irresponsible.. and i know because i AM ONE! but its differant if you become a burden after your born and cant help it, but they could help it. it seems its a quite high probability of if theres one kid the other will have it too. there just lucky the son only got part bad genes... ok im done now.
randynoguts 



     http://www.geocities.com/randynogutsweb/


RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 10/7/2008 8:57 AM (GMT -7)   
Randy, I know I will get it for this, but I agree. Most people would not bread an animal that was not perfect so why can we not have a little self control as humans. I know I had my child after I knew I was sick, I also know that it is a small risk that she will become sick, that being said. The SMA is totally different, yes I agree if your first child is seriously ill why would you have not one but two more children. Just like working yourself into the grave early and expect the other two to possibly take care of the first. Not their job.

Okay, I can take the beating I am about to get also.
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.

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