Some much needed advise please.

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conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 10/8/2008 7:21 AM (GMT -7)   
Hi Guy's
 
newbe here wanting to introduce myself and seek some advise.
 
I am Conor, 28 years old and a father of 1. I am happly married.
 
I have some question prehaps some of you guys may be able to answer?
 
This time last year, I went to see a GI doc due to some bleeding from the anas.I had no pain then and was feeling totally fine, all accept the bleeding. He did a Digital inspection along with a flexiable Sigmond and he suggested that he could see an Anal Fisser and some inflammation, but nothing to worry about.
 
GREAT i thought! But, come 9 weeks ago, the flood gates opened up. I was getting maybe 10 boughts of Diarehha, along with constipation and my stomach pains where unreal at times. Went to the GP and he suggested IBS. Excellent, not to bad I thoyught1 But then, about six weeks ago, the bleeding started pretty heavily. Every bowl movement was mixed with blood. Sometime, blood was all that would come out of the bowel movement. I have been in A& E (ER) on two seperate occasion for this,
 
I went back to my GP and he has suggested because of the blood and the joint pain, and the blisters on my tounge and gums, stomach pain, Diarreha  and constipation, he is pretty sure that I have chrons.
 
I am going for a Colonoscopy and an X-ray on the 13/11/08 to see what they can find. I know the bleeding is nothing to do with an anal fisser as this has been confirmed by two a&e docs along with my own gp.
 
First of, does this sound like chrons to any of you guys? And secondly, should my docotr have picked it up last year when checking on the flex sigmond? After all, there was bleeding and he reported inflammation.
 
Also, what can I expect froma colonscopy? (sp)
 
Many Thanks for your kind advise in advance.

UKpup
Regular Member


Date Joined May 2005
Total Posts : 213
   Posted 10/8/2008 7:33 AM (GMT -7)   
Fissures are common, so without further testing, it would have been unlikely your doctor from last year would have found Crohn's - the inflammation could have been just from the fissure. The way a fissure is could have told your doctor something - whether is was North to South or elongated. From what I've been told by my surgeon the latter is classic Crohn's.

All the other symptoms do make it sound more like Crohn's, but the c-scope should tell you more (it was actually not until my third c-scope that they found it). have they done any blood work, a SBFT, stool studies, or anything?

As for the c-scope itself, the prep is the worst part of it. They will sedate you and you probably won't remember anything.
The funny story of my first abscess


******************************************
"I've got a fever and the only prescription is more
cowbell." --Christopher Walken
******************************************


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/8/2008 7:53 AM (GMT -7)   
Hi Welcome to Healing Well . The colonscope should give you a better idea as to what is going on. Yes there are blood test that help as well. Wishing you luck with your test. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 350
   Posted 10/8/2008 8:16 AM (GMT -7)   
Conorconan1: Crohn's can be hard to diagnose and that is why it is mis-diagnosed often. A lot of what you described sounds like that may be the case but the colonoscopy will help them to make a diagnosis and get you something to help control it. The actual scope is nothing I've had 5 and Im only 23. Just ask for something other than golytly for the prep and you should be fine.

conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 10/8/2008 8:20 AM (GMT -7)   
Thanks for the replies guys.

With regards to the blood tests, I have now had about 5 of these done. They have all come back pretty normal accept for my Liver Function test which was admornal once, then the next time it was done came back normal.

My thyroid came back adnormal but the second time around normal.

My Antibodies tests where spot on.

My ESR test showed inflammation, quite heavily accoring to my doctor.

I am not scared of the cs, just needing some advised on what to expect, it is better having an hour of blooding that a life time of this pain, thats my view.

Guy's, really thanks for the advise. As much of it that can come my way would be excellent.

Regards

Conor

stephx
Regular Member


Date Joined Oct 2008
Total Posts : 88
   Posted 10/8/2008 8:45 AM (GMT -7)   
I have had two colonoscopies one at the hospital in which I went completely out, but thought I woke up when the doc hit the wrong spot, but was immediately put back to sleep within two seconds. The second was about a month ago now in which I was not completely asleep but really loopy nad didn't really know what was going on, I had some discomfort I could tell but was so out of it that it didn't occur to me that I had a scope up by bum hole. I mean colonoscopies aren't so bad, I can honestly say the prep is the hard part. Eating liquids the entire day before is not fun, clear liquids at that sprite, chicken broth, water, clear gatorade in which you have to mix the prep in, not tasty but not that bad. Honestly on the morning of the colonoscopy your so ready to get it done so you can find something to eat. But colonscopies aren't so bad. :-)

conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 10/8/2008 10:16 AM (GMT -7)   
Yeah, the scope doesn't sound to bad. It seems to be the prep that will go for ya. Can they find the chron's through the use of the cs alone? or is there more test needed other than that?

Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 350
   Posted 10/8/2008 10:20 AM (GMT -7)   
Alot of times the scope is the determining factor. With the scope they can take a biopsy and then test that. Hopefully they can determine from that what it is. BUt trust me on the prep ask for something other than golytly ;)

smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 10/8/2008 11:03 AM (GMT -7)   

Hi Conorconan1, welcome to healingwell! You have found a wonderful place for advise, everyone on here is great and very knowledgeable.  It took me many tests to finally be dx. My ct scan was what finally gave them enough evidence of inflammation and narrowing.  The colonoscopy he could not get up far enough and thru the ileocecal valve to see and the endoscopy could not go down far enough. All of my problems were in my terminal ileum area (where the large bowel meets the small bowel). But the ct scan showed the existing diseast.

Again the same as you, had very painful bleeding fissures and that did not trigger them to think crohn's. That was a few years before being dx. But hopefully, they will be successful and find you some answers with the colonoscopy. The prep is the worst and spending so much time on the toilet afterwards. How can sooo much liquid come out of one's body!!!!!! But the actual scope is a snap because you will be sedated and usually don't remember a thing.

One of the lovely ladies on here has educated me immensely with the use of extra virgin olive oil. It can be used for so many ailments and she is so right.  Try applying a bit of this on your "bottom" to help with the soreness and how raw it can feel after the prep and going to the bathroom so many times. It really helps. Also you can try baby diaper cream (zinc oxide) works good too.

Try looking up some of the threads on here in the search site and you can read up on some of the diets and foods to avoid regarding your bloody D. Keep in mind everyone on here is different and what works for some might not for others. Good luck and keep us posted.

Shelley


  • 41 yr old farmwife!! and mom of boys 11 and 9
  • resection surgery Feb. 2008
  • Pentasa, Entocort (when needed), citalopram,probiotic
 


conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 10/8/2008 11:19 AM (GMT -7)   
Hi Shelley,

thanks for the info, that is a great help. It is funny how it can take so long at times for them to find what is going on with you and other times how they find it so early. I have read up on Chrons a bit, and it sounds like it is a nasty thing to have. Strange thing is, I am not lossing weight. I have went on a srict diet, and that has taken a small bit of weight off, but I though that going by what is written about chrons, weight loss is a big thing.

smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 10/8/2008 5:35 PM (GMT -7)   
Hi, Not everybody loses weight with crohns. Some are overweight, some are underweight and can't gain an ounce, some are average and just lose pounds during major flares. I have always been underweight and cannot gain weight until now since surgery I have put on about 15 pounds and keeping it on, yeah!! People lose extreme amounts of weight during bad flares and are usually hospitalized for dehydration, etc.

I have had symptoms of this disease for 20 years and back then they couldn't find anything wrong and labelled me with IBS. So I have suffered up and down all those years but not severely. I think back to when I worked outside the home and worrying about the nasty painful D all the time was so stressful. I just had my first surgery this year to take out the narrowed part of the bowel. The scar tissue must have built up after all those years of inflammation.

You are right, this disease is a nasty one. Hopefully you don't have it. But staying informed and being your own health advocate is important. Don't settle for any answers, opinions, or the lack of. that you are not happy with. I don't know what country you are in. I live in Canada and our health care is pretty good compared to most.
  • 41 yr old farmwife!! and mom of boys 11 and 9
  • resection surgery Feb. 2008
  • Pentasa, Entocort (when needed), citalopram,probiotic
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/8/2008 6:06 PM (GMT -7)   
A sigmoidoscopy wouldn't necessarily pick up crohn's especially if CD was higher up in the digestive tract, it always amazes me that GI's don't automatically do at least a colonoscopy initially when new patients come to see them with their symptoms that are more likely an IBD (either CD or UC).

A colonoscopy and upper GI series along with blood and stool tests are definitely in order and probably should have been done in the beginning of your symptoms.

CD can affect any part of the GI tract from mouth to anus and more than one area at a time as well...UC is limited to the colon/rectom.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 10/8/2008 10:05 PM (GMT -7)   
conorconan1> Sounds exactly what I went through.

Little recommendation: if you can get a copy, read "Breaking the Vicious Cycle." If you find it works for you, read "Life Without Bread." Between the two, I'm now 9 months into managing my disease strictly through diet- no meds.

Good luck!

eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 10/8/2008 10:26 PM (GMT -7)   
ive had 2 scopes done they are the easy bit the prep can be hard my first prep was diff frm my 2nd prep . usually biopsies are taken and tested for crohns but usually ur gi myte ask for mre tests to find out what ur crohns is doing,i remeber reading bout crohns before my first scope,i was hoping it wasn't crohns,but i was glad to find out was wrong with me i had been sick for bout 3 yrs,and had been suffering quite badly.
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa


conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 10/9/2008 12:27 AM (GMT -7)   
Awh Jesus guy's, I am really sorry to hear how bad some of you guys have got it with this nasty thing. I know alot of people do not know a lot about Chrons' (I being one of them), but what I have found out makes me believe that you guys are amazingly brave to have lived with Chron's for so long.

I am in Northern Ireland and the heal care system is not to bad. My GP is fantastic (well two are and one should never have been given a licence to be a doctor), and Mr Main GP is very much aware of Chrons and how to treat it with results.

I know I am pushing at a brick wall hear, but when you have Chrons, is the inflammation always there? I am just a little bit paniced that when they go in to check for it, it could be cleared up, like Flare over type of thing?

Also, with chron's is the pain always in the one spot? The reason I ask is becuase my stomach pain moves around my whole colon, from large to small colons. It also plays games with my back, hips, knees, mouth and throat.

I am taking a pro-prebiotics and they are helping me very well. My doctor has put me on Tremadol 50mg (sp) for the pain, Omenzople (sp) 40mg for the wind and heatrburns which is helping. My anas feels like it is on fire 99% of the time. There is no sign their at all of an anal fisser, but it seems like it is growning inside it by the day. I am in and out of work like a yo-yo, which is sad becuse I need the money (lol).

I am unable to kick ball or play ice hockey with my son as I cannot go on the ice. This really does suck!

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/9/2008 2:28 AM (GMT -7)   
Hi No the pain is not always in one spot. Hi I know we are sometimes not able to do all we would like to do but for me things have improved some. Hopefully you can find other ways of doing things with your son till you are feeling better. Sometimes it just takes awhile to get medical help going. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 10/9/2008 2:59 AM (GMT -7)   
Hi Gachrons,

thanks for the advise. One more question, is the pain always there for you guys that have had it for a while before it was found? Or, was it at periods throughout the day that it occured?

conorconan1
Regular Member


Date Joined Oct 2008
Total Posts : 245
   Posted 10/9/2008 7:44 AM (GMT -7)   
Sorry guy's, one more question, when do any of you guys seem to get blood shot throughout your eyes?

The whites of my eyes seem to be going well Red like they are blood shoot and a little hint of yellow. My doctor checked that through the Liver function test and said that it was clear and could be chrons releated. Is that correct?
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