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ImflamedBear
New Member


Date Joined Oct 2008
Total Posts : 3
   Posted 10/8/2008 11:38 PM (GMT -7)   
Hi, I'm new to the forum. I am eighteen years old, nineteen on Saturday, and I am in the hospital right now for a Crohn's flare up. I have had Crohn's sine I was eleven, though I was never hospitalized. This is probably my tenth hospitalization. I have been on Prednisone, Entocort, 6mp, Pentasa, and Remicade. I was on Remicade for forty-eight weeks, on two different doses due to a flare up. I left Remicade in February. Now that I am in the hospital again with another flare, treatments options are short. My doctor, Dr. Garcia is testing to see if I developed antibodies to Remicade to see if it is still an option. I was wondering what the chances are that I developed a significant amount of antibodies? If I have only developed a few antibodies, would it be smart to start the Remicade again, and what are the risks? I've asked Garcia these things but... he can't really tell me what will happened. Just wanted to see if maybe some of who had some ideas.

Also, I know Humira is another treatment used for Crohn's. What kinds of side effects are there? Are they horrible? Worse than Prednisone? And surgery, I've never had it, and I was wondering if that might be a better route. If you guys have any thoughts, please reply, I'm pretty frustrated here. I'm angry, and alone. I know you all are here with me and I appreciate your support.

Thanks-
Chelsea

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 10/9/2008 2:30 AM (GMT -7)   
Hi Chelsea, Welcome to HealingWell. I have been on Remicade for 5 years it has helped me greatly. There has been ppl whom stpped remicade and gone back on it. I don't now to much about Humira. i hope you feel better soon.

teddybear
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/9/2008 3:14 AM (GMT -7)   
Hi Chelsea Welcome to Healing Well . Some people do go back on Remicade if they don't have antibody build up. Lots here are taking Humira. Where is your crohn's located ? Are you in for a blockage? As far as surgery I guess it depends on what your Dr. is saying and how the insides are doing. Hope you will be home soon. Your right we are here for you. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


ERANJO
Regular Member


Date Joined Apr 2008
Total Posts : 60
   Posted 10/9/2008 3:07 PM (GMT -7)   
hi chelsea....i started off on pentasa but that didnt help too much so my doctor switched me to humira, i have been on that for about 1 year now, i have had no crazy side effects. after my first injection, i got a really bad headache and nausea, so now, i take my needle at night right before bed, this way i sleep through any side effects.

ImflamedBear
New Member


Date Joined Oct 2008
Total Posts : 3
   Posted 10/9/2008 4:21 PM (GMT -7)   
Thanks, guys! You've been really helpful and brought me back down to earth. (:
"Nothing to say but what a day, how's your boy been?"
-The Beatles

ChelseaBear, the Inflamed Bear


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 10/9/2008 4:23 PM (GMT -7)   
You can also check out the new meds thread, which I've bumped for you.
Co-Moderator Crohn's Forum.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 10/9/2008 5:00 PM (GMT -7)   
I just started humira about a month ago and the only side effect I have observed is extreme fatigue. Even then, it's an on and off sort of thing. Other than that though I can say I feel fine.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
http://weblog.xanga.com/harlequin_garret


Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 10/9/2008 5:54 PM (GMT -7)   
Hi Chelsea. I had minimal side effects from Humira, just some slight fatigue that lessened over time, and some bruising at the injection sites.

During the time that it was working for me, it was wonderful -- I never felt better. I have heard it described as similar to Remicade, but "cleaner."

I had a negative reaction to Remicade after only 3 infusions, but had over 6 months of healing with Humira before it stopped working for me.

Best of luck!
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Entocort, and Remicade, weekly Humira
Late 7/08, down to 5 mg pred, and big flare, Humira failed
2 week hospitalization in 8/08
Now on Pred 25 mg, cyclosporine, percocet, xanax
Surgery scheduled 10/10/08 to get rid of this colon


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 10/9/2008 6:19 PM (GMT -7)   

I built antibodies to the Remicade and not only did it stop working, I started to have reactions. I was on it 2.5 years before that happened.

I moved to Humira after a huge flare and LOVE it. I've been on it since March. I responded within about a week and was back to eating after 2 weeks. I had gone months with no solid food and had already had the consult with the surgeon before we tried Humira as a last ditch effort.

I have no side effects at all - nothing like Prednisone (which is evil stuff)! I am just about normal when I have the Humira.

I'm sorry you're in the hospital, I know it's a miserable place to be. I hope your doctor finds an answer soon for you.

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