One disease? or two?...or more?

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hspenser
Veteran Member


Date Joined Dec 2005
Total Posts : 544
   Posted 10/9/2008 4:59 AM (GMT -7)   
I have crohns...and as far as I have been told and can tell that is it.  For me that is enough.
 
BUT.....I have read many of the tagged on bio's of the folks on this site and can not help but comment on and wonder about all of the other chronic illnesses that many of you have along with or in assocation to the crohns.
 
It got me wondering...Do you think the crohns caused the other illnesses?  or did they bring on the crohns?  Does one have nothing to do with the other?  How do you treat one without possibly making the other worse?  Which ones will go away if the crohns goes away? As an example: I know I have lots of arthritis pain in my joints, but I don't list arthritis as a malady because I see it as just an exstention of the crohns and really not arthritis.
 
for those who face surgery because of the crohns...is your outcome and recovery affected by your other health issues?
 
I am just very curious as to how all of this interacts and then taking it step further how everyone who falls into this area...how do you cope with all of the drugs .  I read some of the bio's and the list of diseases is only out numbered by the list of meds.  Are any of you using a medical advocate to help study the interaction of all of these drugs?  Any words of wisdom on what to avoid and what to watch for?
 
I can not imagine myself having to cope with another disease while dealing with crohns...so my hat of respect is tipped to all of you who do.


dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
tried Naltrexone Jan. 19, 2007 Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose two shots every other week.
Crohns is currently active and has been since April of 2005
52 yrs old

Post Edited (hspenser) : 10/9/2008 8:24:47 AM (GMT-6)


Krica
Regular Member


Date Joined Apr 2007
Total Posts : 99
   Posted 10/9/2008 5:51 AM (GMT -7)   
Hi, i have cronh's colitis and psoriase i believe that there is a link between them. First i had psoriase and after cronh's, both are auto imune disease. I am on imuran medication, but for me would be best be on remicade, because could clear my psoriase, however a have strictures and there is a high risk of surgery. Now i am pregnant and my crohn's and psoriase are under control as never before. In future if a change my medication for remicade the dose for crohn's would be diferent from the dose for psoriase, which i believe would be a bit complicated. I never noticed an improvement on my psroiase when my crohn's was under control. I did a surgery in 2001 and my recover was excellent my psoriase was clear because i was in high doses of predsilone, i might need another surgery in future, because of a tight stricture that i have, but surgery is the last resource when other medications fall to control the disease. I have cronh's and psoriase for 19 years i am glad that i do not have arthritis, but with these two disease i would be a perfect perfil to have it. I hope this is going to answer some of your questions. Good lucky, take care!!!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/9/2008 6:35 AM (GMT -7)   
I have Crohns disease. But I also suffer with Osteoarthritis and Fibromyalgia. To tell you the truth, I think both the arthritis and Fibro are related to the Crohns. Just side effects from the Crohns. Some people like Krica do have 2 or more autoimmune diseases.

When I had my resections I did not have any increased problems with the side illnesses. I think having the surgeries helped to quiet all the inflammation down and got me to feeling a better within time.

Hope that helps.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/9/2008 7:12 AM (GMT -7)   
There is such a thing as an autoimmune cascade.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


hspenser
Veteran Member


Date Joined Dec 2005
Total Posts : 544
   Posted 10/9/2008 7:43 AM (GMT -7)   

Fibromyalgia seems to be a disease that pops up frequently among crohns patients so you have to wonder about a direct link there...one that even surpasses the commonality of being immune supp.

 

Found this article on immune. sup disease...pretty easy read...for me it was very educational

 

http://www.the-scientist.com/2007/05/01/s32/1/


dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
tried Naltrexone Jan. 19, 2007 Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose two shots every other week.
Crohns is currently active and has been since April of 2005
52 yrs old


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/9/2008 10:35 AM (GMT -7)   
There are certainly enough pathways for other autoimmune diseases to be triggered by Crohn's. That article cites incomplete apoptosis of autoimmune cells as being the problem. There is a phase I clinical trial of a method of inducing such apoptosis that started in April of last year. They seem to think that it will apply to a range of disease including diabetes and MS and I would guess Crohn's and several others. For more, see: ScienceDaily

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/9/2008 10:44 AM (GMT -7)   
Arthritis, osteo, eye issues and skin issues are considered extraintestinal manifestations of IBD (either CD or UC), so although you may have all or some of these extraintestinal manifestations due to CD fact is you would still be considered as being a sufferer of arthritis, ect as well as having CD. True if it wasn't for having CD in the first place you may not be suffering from the extraintestinal manifestations as well, but I guess it is what it is and that sucks...IBD can go much further that the obvious stomach issues that's what makes it an incredibly ignorant disease to suffer with. It's literally a crap shoot.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/9/2008 11:01 AM (GMT -7)   
Since Fibro was mentioned here and you asked about meds for one disease affecting another . . . I have seen many comments on the Lupus forum about higher doses of prednisone causing a fibro flare. Its one way to distinguish Chron's arthritis or Lupus pain from fibro pain. The pred helps the arthritis, but can worsen the fibro.

Its helpful, to me, when folks list their specific issues, even within one disease, because we can see what we have in common and who might be able to help from a personal perspective.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 10/9/2008 6:21 PM (GMT -7)   
It also seems possible that if Crohn's is caused by an organism (or organisms), then those organisms can also cause other diseases. For example, if (and that's a big if) a certain mycobacterium is correlated with Crohn's- even if it doesn't necessarily *cause* Crohn's- and that organism causes rheumatoid arthritis, it is conceivable that could explain why Crohn's and RA are commonly associated- and even why certain drugs work on both disorders, even though the diseases outwardly seem quite different.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/9/2008 8:07 PM (GMT -7)   
Inflammatory diseases and autoimmune diseases are connected in some way to one another, in my opinion it's still a matter of being predisposed mainly because I've had CD for 17 yrs straight now with no full remission and luckily I have no issues with eye inflammation, RA, osteo, ect.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)

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