What about the SCD diet??? Anyone try that?

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Doc2007
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Date Joined Oct 2007
Total Posts : 294
   Posted 10/9/2008 7:58 AM (GMT -7)   
Im reading some great things about it Im floored by the overwhelming reviews concerning this book and diet.
I have nothing to loose so Im gonna give it a try. Seems pretyt strict though

Stef17
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Date Joined Feb 2003
Total Posts : 1811
   Posted 10/9/2008 8:39 AM (GMT -7)   
It IS pretty strict, but I totally believe it saved me from surgery AND helped me get pregnant (and stay pregnant) with my first child. If you search the posts here you'll find a lot of info that people have posted. I kind of have the same philosophy - you have nothing to lose. Good luck! I hope it works for you.

aoccc
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Date Joined Feb 2005
Total Posts : 455
   Posted 10/9/2008 9:37 AM (GMT -7)   
use the search in the right hand corner..there are hundreds of threads on it :)
SCD since 01, remission since 01, occasional Arby's breaks :)


Jen77
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Date Joined Mar 2006
Total Posts : 2689
   Posted 10/9/2008 11:34 AM (GMT -7)   
I looked in to it, but it just was too strict for me, and a lot of work preparing what seemed like everything. Wish I had that kind of energy with Crohn's.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure). Tapered off prednisone a month ago!


EMom
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Date Joined Aug 2007
Total Posts : 990
   Posted 10/9/2008 12:03 PM (GMT -7)   
We started with The Maker's Diet and morphed more into the SCD--the diets are very similar. The reason we morphed is that there are so many more cook books and online sites available for the SCD, and I desperately need guidance when it comes to cooking. It doesn't come naturally for me!

Our family of four now follows the SCD very closely, with the exception that the three of us without Crohn's will eat rice while my son does not. I can honestly say the diet has benefited all of us in some way, and my son is considered to be in remission, so that's good too!!! I guess it is strict, but once you break the sugar addiction, the rest isn't all that bad, in my opinion. Prep time took me longer at first--only because many things were new to me and I'm pretty inept in the kitchen. rolleyes Now it doesn't take me any longer than the way I used to cook.

If you would like my list of cookbooks and online sites, I recently sent it to someone and I have it saved, so I could easily send it again. Just email me if you'd like it!
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more SCD recipes, too! (cooking challenged)

Post Edited (EMom) : 10/9/2008 2:20:48 PM (GMT-6)


Doc2007
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Date Joined Oct 2007
Total Posts : 294
   Posted 10/9/2008 12:36 PM (GMT -7)   
EMOM your a life saver I would love to have those sites and recipes. THE SCD is looking pretty promising for me right now. Thank you sincerley!

EMom
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Date Joined Aug 2007
Total Posts : 990
   Posted 10/9/2008 1:19 PM (GMT -7)   
Happy to do it! You will need to email me personally, though, by clicking on the little yellow envelope under my name to the left. That way I can send the list to you!
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more SCD recipes, too! (cooking challenged)


Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 10/9/2008 6:12 PM (GMT -7)   
If you're looking at the SCD, I would recommend also looking at "Life Without Bread."

I originally started out gluten-free before I was diagnosed. Once I got a firm diagnosis, I got on the SCD. Now, 9-1/2 months later, I am expanding the foods I can eat. I am off my meds, without discomfort or other symptoms of disease. My blood values are normalizing.

about a month ago, I started reading "Life Without Bread." Although the SCD is good in terms of getting you started, it's more vague about what to do once the symptoms let up. I have found that Life Without Bread produces some excellent guidelines as to furthering the management of the disease; I suspect it would do as well- or better- than the SCD in terms of starting to manage the disease by diet alone. The author, Dr. Lutz, notes that in his own practice, about 80-90% of his patients were in remission after three years on the diet.

Life Without Bread is very simple: no more than 72 grams of carbohydrates per day. He explains why; he explains the health benefits; he explains a lot about how, why, and what to do. Highly recommended.

Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 10/9/2008 7:28 PM (GMT -7)   
Doc2007,
  When I was DX'd I found the SCD in a site where people rate remedies.. The site visitors rated western medicine at about a 4.2 in effectiveness. The SCD was rated at about double that, but at 9.8 in difficulty to follow. It was worth every minute I've ever devoted to it. There is a interesting site I found through another list about a young man who this worked very well for. Here is a link, in case you want to take a peek. There is also a link to a site by a young lady posted below it that you may like. Good luck and good health
 
http://www.crohnsboy.com/
 
 

Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reiters-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
 
                                              Margie11


EMom
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Date Joined Aug 2007
Total Posts : 990
   Posted 10/9/2008 9:08 PM (GMT -7)   
Hey Margie11, I LOVE that Crohnsboy site! Osprey, your book, "Life Without Bread" is there under "recommended reading". I want to read the book soon, but Osprey, can someone who is really, really active live on only 72 carbs a day? Is that even possible for someone like my son who is a competitive swimmer? (in the water 2 hours a day, 6 days a week and has "dry-land" workouts on top of that)

Thanks for sharing, Margie! smilewinkgrin
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more SCD recipes, too! (cooking challenged)


Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 10/10/2008 1:31 PM (GMT -7)   

I have visited Crohnsboy and have emailed him a few times...HE seems very cool and believes in the diet..
EMOM has sent me a ton of links which are very hopeful!


Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 10/10/2008 7:46 PM (GMT -7)   
EMom> You are thinking linearly in that yes- muscles do work well on glucose (sugar). But what about for the "long burn?" It's fat and protein being consumed; do marathoners stop because they run out of carbohydrates in their blood? Do they even slow down? No, the body shifts biochemistry and consumes protein and fats. The body adapts well to this- otherwise, Atkins-type diets would never have worked for anyone. Although, again- it's tough to stick to. The carbohydrate addiction must be dealt with.

Historically, carbs have been a signal for nutrients- fresh fruit and starchy grains, which equate into pure glucose upon digestion. The brain craves glucose, as it's fast energy. These sources were scarce until 10,000 years ago, when grains did not exist as we know them today- overbred to produce more starch, and over-consumed as part of their diet. Even 500 years ago, there were no potatoes or corn known in Europe. Within the past hundred years, rice, corn, wheat, potatoes, etc. virtually exploded into our diets, displacing nutritious meat and low-sugar vegetables like cauliflower. Even the past 20-30 years have turned our supermarkets into little more than warehouses full of sugar and starch. Find a box at the grocery store without wheat, corn, potatoes, rice, or oats on the label. Lots of luck.

Some athletes subsist on a low-carbohydrate diet, and it can be effectively argued this is the normal condition for humans. While we are taught that we should increase carb intake and drop fat and protein from our diets, the question is- why? It's certainly no good for our blood sugar. Where did all the uncontrolled diabetics come from? Low-carb diets are *ideal* for type 2 diabetes, yet physicians tell them it's fine to eat white bread and rice. Why?

Where did all the obesity in America come from? Add up all the carbs you eat in a single day. This is also where insulin resistance comes from- the cells stop responding to the insulin injection your pancreas provides every time one consumes a sugary or starchy meal. The whole country is on a low-fat diet, but collectively we continue to gain weight. It's not the fat we consume- fat fills you up, satiates you. Carbs make you hungry again in 2-3 hours- the classic "Chinese meal" hunger of carbs from noodles. A breakfast of bacon, eggs, and sausage beat a bowl of sugary cereal, shredded wheat, or oatmeal any day.

The heart alone functions almost entirely on fat- not glucose, but fat. I've been somewhere between 70-100 grams of carbs/day for the past 2-3 months, and recently started an aggressive exercise program; the abdominal exercises alone consists of 349 separate exercises (yes, really)- and I feel much better than on high sugar.

Read the Lutz book, "Life Without Bread." If it does not convince you, I will buy it from you for whatever you paid for it- I need another copy, in fact.

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 10/11/2008 12:58 PM (GMT -7)   
So Jay, you are saying that with the SCD you still had lots of gas and bloating, but with following the life without bread you now feel better?
Dx'ed in 1999. No surgeries.

Current meds: 100 mg 6MP. Just finished prednisone taper. Udo's Choice Probiotics (30 billion).
 
Betaine, digestive enzymes, Candicin (oil of oregano capsules), Beta Sitosterol.


Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 10/11/2008 4:00 PM (GMT -7)   
Not to answer for Jay, but I started out on the SCD and switched over to Life Without Bread about 8 months into it. I never had any problems with gas or bloating on either.

I found Life Without Bread to be a good lead-in to what to do "after" the SCD. While nice, the SCD is highly restrictive, after all, and the author gives little guidance as to what to do once the symptoms are under control. By following the guidelines in Life Without Bread (restricting total carbs), I have found I can have a *little* bit of rice, or a small amount of whipped cream, etc. The LWB is nice in that it affords the reader a "budget," a convenient number on which to focus, and say, "This is my limit." This is how much I can treat myself to fruit, sugary vegetables, etc.

The number is non-random, BTW; it is the result of the analysis of many blood tests in which glucose tolerance tests have indicated an individual is pre-diabetic. There's actual science to back it up; it's not arbitrary.

Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 10/11/2008 6:01 PM (GMT -7)   
Hello Everyone...Especially Crohnsboy and Emom, I have talked to you both through email the last few days and can not express my gratitude to you both! I have been on the SCD starter diet since WEdnesday. I was experiencing sever cramps, diahrea and a lot of blood loss. My doctor just called me and said my stool cultures reveal I have CDIFF!!! WOW! LOL
He told me to discontinue the CIPRO I have been taking and start Flagyl...
However since the SCD wednesday the blood has basically tapered down to this morning when I went to the restroom and I had no blood and solid stool!!! This is without any treatment for the CDIFF strictly on the SCD starter diet...Also I havent taken any of my normal drugs since Wednesday...no 6 mp or asacol...The dr mentioned that I was succeptibale because of the 6 mp.
I really am considering gong off the 6 mp especially if this SCD diet continues to prove itself an formadable ALLY!

Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 10/11/2008 7:59 PM (GMT -7)   
Good to hear of your results, Doc! Don't go off your meds just yet; the SCD has its ups and downs, that's for sure. If you don't have more episodes of bleeding that make you doubt your decision, I would be very surprised. You will find they occur less frequently, and may correlate with dietary "excursions" along the way.

That you have good results is encouraging; not everyone responds well to the diet. You may wish to keep a notebook with what you eat, when you eat it, and how it comes out the other side- timing, consistency, and... whatever else you feel like including the Bristol stool scale:

http://en.wikipedia.org/wiki/Bristol_Stool_Scale

Keep it up, and keep the faith!

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 10/12/2008 8:01 AM (GMT -7)   
Oh wow, Doc, this is FABULOUS news! I am here keeping my fingers crossed for you that your plan of attack works!!! It sure sounds like it is! yeah

Welcome, Crohnsboy/celtic82! I'm going to show your website to my son! Mostly he likes for me to do all the "research" and just tell him what to do, but maybe seeing someone as COOL and yourself with CD would pull him in... he's pretty COOL, too! (totally unbiased mom opinion...)

Osprey, you'll be happy to know I'm picking up a copy of Life Without Bread today from my local library--that way you won't owe me if I don't like it! wink Just kidding...I'll probably end up ordering a copy from the book store soon, but I was pleasantly surprised that my library had it! Thanks for your explanation above... it all does make sense...

Oh, and Osprey, one other question. Are those muscle-recovery, whey based, protein sports drinks ok for my son in your opinion? Do you ever use them? If so, would they also be a possibility for use if one were flaring and wanted to do a liquid diet for a time? Just curious. Last year when my son had a mini-flare, he drank Crohn's Clear Elemental Shake (not truly and elemental formula, but rather a semi-elemental, I was informed by Writer here on the forum.) That product worked really well for him, but is no longer available. I suppose it's very similar to Absorb Plus on Jini Patel Thompson's website. Just wondering your opinion on this. Thanks!
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more SCD recipes, too! (cooking challenged)


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 10/12/2008 3:25 PM (GMT -7)   

Crohn's Boy,

   I love your attitude. Oh, I've said that before idea   I think the best thing for ALL of us is take control of our lives and bodies, weigh the risk and benefits, and make our own decisions. I know that is how I reclaimed my life, and you as well.  I hope you will join us on Crohn's Chat here on Tuesday night at 8:00pm cst . I have promised to shut up and listen, for a change shocked   Peace Out


Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
 
                                              Margie11


Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 10/12/2008 4:05 PM (GMT -7)   
Hey guys...I am trying to make my own SDC yoghurt...I made a great batch last night and had to throw it out half way through the fermentation process because I used the wrong brand of starter yoghurt...it had Bibda in it. I found the yogurmet package and am trying a new batch with that...I started it at 11 am today and it still isnt taking or firming up? any suggestions...I prefered using the danon or something but I could not find it in 5 stores...5!!! Every brand had some form of the bifida live culture...no Danon plain yoghurt....

Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 10/12/2008 4:21 PM (GMT -7)   
EMom asked:

Are those muscle-recovery, whey based, protein sports drinks ok for my son in your opinion? Do you ever use them?

I don't know; I'd have to look at the label. Whey is a milk product- a byproduct of cheese manufacture- so if it's "good" cheese in which the lactose has been fermented out, it *might* be okay. I'd also have to look at the total carbs/serving in it; sometimes some "sports" drinks have WAY too much sugar in them, and if there are complex carbohydrates such as malto-dextrin (used to add carbs in a format that has a low osmotic strength), those are absolutely verbooten as they make it far enough into the gut to serve as excellent "food" for bacteria.

I've been thinking about formulating a "homebrew" elemental nutrition solution for Crohnies, but I just don't have the wisdom; I mainly specialize in growing much smaller organisms in axenic culture, and don't feel qualified to extend that to telling others what to do in terms of making their own human nutrition solution. But if you can combine nutritious components- proteins and fats- in the absence of carbohydrates, I humbly submit that could be the best thing for controlling a flare if one finds the SCD is otherwise working.

You could post the name of the product and I could look up the ingredients list and make a wild SWAG at it, though!

Doc> Did you get the milk hot enough to denature the proteins that prevent coagulating? I heat mine to 185F before allowing it to cool to 105F (give or take 5 degrees) and inoculating with Fage yogurt from "Trader Joe's" or "Whole Foods."

EMom
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Date Joined Aug 2007
Total Posts : 990
   Posted 10/12/2008 5:06 PM (GMT -7)   
Osprey, thanks for your input on the sports drink question! You make some great points, as always. I will check the label of the brand I have and get back to you. I found the product I have online, but there is no ingredient list given. Not good..... skull

Doc2007-- I emailed you my thoughts on the yogurt situation. In my booklet it says two things can create a watery consistency; either the starter powder you used didn't completely dissolve (it takes more stirring than you would think), or the temperature of the milk was too warm when the starter was added, thus killing the good bacteria. I actually bring my milk up just to the boiling point and then, of course, allow it to cool all the way down to room temperature (I speed things up by setting it in ice water) before adding the starter. Also, it's easier to dissolve the starter if you use only about 1/2 cup of milk initially. Once the starter has dissolved completely in that amount of milk, add the rest of the milk and stir well again!

Crohnsboy, it's cool you've talked with Jini Patel! Thanks for the input too! It's great you have been able to customize these diets to help your situation!!!
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more SCD recipes, too! (cooking challenged)


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 10/12/2008 7:44 PM (GMT -7)   
I used trader joes.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


EMom
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Date Joined Aug 2007
Total Posts : 990
   Posted 10/13/2008 5:31 AM (GMT -7)   
MMMNavy, you used Trader Joes.... do you mean a sports drink?
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more SCD recipes, too! (cooking challenged)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/13/2008 5:53 AM (GMT -7)   
Sorry EMom, I should have clarified I was referring ospray's comment about the yogert. But I do like alot of trader joes stuff.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Osprey101
Regular Member


Date Joined Apr 2008
Total Posts : 227
   Posted 10/13/2008 8:38 AM (GMT -7)   
Trader Joe's is very good. The Fage is excellent starter culture for yogurt, using their organic whole milk for growing the cultures. (I've also eaten Fage straight out of the container- not just as starter culture- with no untoward effects. YMMV.) Breakfast consists of a bowl of yogurt with a sliced banana, Trader Joe's boreal blueberries, and a small amount of honey.

At least TJ's has "honest" food. It's still carb-heavy, but one can work around that to find meals suited to SCD/LWB.
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