Need some advice

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

fongers06
Regular Member


Date Joined Jul 2008
Total Posts : 82
   Posted 10/11/2008 4:54 AM (GMT -7)   
I was diagnosed with Crohns in May of 08.  I was referred to a Crohns specialist who told me that he did not think I would get into full remission without surgery.  Since I was diagnosed I have been in the hospital twice - in August for 7 days and in September for 8 days.  I am currently on Humira.  I have taken 4 doses and really can't tell a difference.  I have been on Prednisone twice and hate it.  I can't live a normal day to day life on it and I would rather have the symptoms of Crohns than the side effects of the Prednisone.  My specialst has referred me to a surgeon that I go see next week.  I was told that it is my illium that is inflamed and it is only about a 1 inch section.  I am scared to have the surgery but I am a 34 year old married, mother of 4 who works part time.  I can't afford to be in the hospital every month.  The last two times I was in the hospital I missed my daughter's 4th birthday and my 10th wedding anniversary with my husband.  The disease has taken its toll on me mentally and although I have wonderful family and friends to help out I am tired of not being able to take care of my own life. shakehead

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 10/11/2008 5:08 AM (GMT -7)   

I am so sorry this is happening to you. I have not had surgery so I can't give advice on that. I have been on Humira for several months now and I think it took me to about month 3 to feel a huge difference. maybe it will take longer for you? I wonder why your Doc did not suggest Entocort. I took it for a year and it is a milder steroid than pred and it has less side effects. I had no ill effects from it. it may help calm things down some for you. it also takes a while to work though.

Good luck

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

Diagnosed w/ General Anxiety Disorder in 2005- Effexor and Clonazepam 

 


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 10/11/2008 6:18 AM (GMT -7)   
I'm so sorry you are having to go through all of this :( I was told that it can take up to three months to feel anything on humira so just hang in there!!! And even though your doctor says it's not possible for you to reach remission without surgery, believe me it is possible in spite of what he says.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
http://weblog.xanga.com/harlequin_garret


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/11/2008 7:52 AM (GMT -7)   
Hi I had surgery a resection and it was in the TI 10 months ago , and it has been a good decision for me I now have no bowel pain and the CT came back good with no sign's of inflamation and I have been med free. It was hard I was very scarred of surgery but now it does not scare me. If you have scar tissue causing blockage I don't think the Humira will help.lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 9:20 PM (GMT -7)
There are a total of 2,734,469 posts in 301,216 threads.
View Active Threads


Who's Online
This forum has 151334 registered members. Please welcome our newest member, LoriC.
316 Guest(s), 9 Registered Member(s) are currently online.  Details
DQueen, PeteZa, Bloom93, Tick41, Alice22, quincy, Red_34, LoriC, Yarbo3


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer