how long until surgery??

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txguy0419
Regular Member


Date Joined Oct 2008
Total Posts : 20
   Posted 10/12/2008 4:04 PM (GMT -7)   
   Hello everyone. This is my first post on here but i read a lot of these threads the last few days. 
 
   I was diagnosed about 3 years ago with Crohn's and had some pain occasionally but a month ago it got really bad and I had a blockage and had to spend 5 days in the hospital. Then last Thursday I had a colonoscopy and now my doc says I need surgery because of scar tissue.  I am kinda freaking out about it because I always just sort of ignored the fact that I had crohn's and hoped it would go away. Like I said, I've read a lot about this in the last few days and now I have figured out just how serious this can be.
 
   I am going to try to call the surgeon tomorrow to get an appt with him. My question is how long did it take any of you to get the surgery scheduled once you were told you needed it? I am assuming they will do it fairly soon but I don't know. I am really nervous about it and want to just get it over with as soon as possible. I know most people on here have said it's nothing to worry about but this blindsided me I guess. I wasn't expecting anything like this at all.
 
   Also, the doc put me on prednisone after I got out of the hospital. After reading some of the stuff in here, I am pretty worried about the side affects from that too. I started at 40mg and I am at 30 a day now. Going down 5mg every 2 weeks. Should I see if there is an alternative to taking this?
 
 
   Thanks in advance for any help...
  

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 10/12/2008 4:43 PM (GMT -7)   
Welcome TxGuy..So very sorry you are here but know you are with your Crohnies! Yeah, surgery can be pretty overwhelming! I'm assuming they will schedule you fairly soon because of you having an obstruction. The prednisone is nasty isn't it! When was the last time you saw a gastro doctor? You defintely need to see one a least once a year if you aren't symptomatic. No, Crohns doesn't "go away". We all wish it did! You may have already figured out that each case is different and it's gonna take time to figure out what meds/diet work for you. If you have already had an obstruction I'm guessing you've had a fair amount of scar tissue and inflammation going on for awhile now. Keeping that inflammation to a minimum is key to controling a whole host of problems. Hope you will keep posting/reading here. Healingwell has been my lifeline. I was handed a couple of brochures at my diagnosis and the rest was left up to me to "enlighten myself" about this dang disease. Hope you are feeling better soon and don't be afraid to ask questions no matter how personal or gross they are. WE ALL HAVE BEEN THERE!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/12/2008 4:53 PM (GMT -7)   
Welcome to healingwell! Pred will hopefully calm down your symptoms and generally one is encourage to exhaust all medical treatments, before surgery treatment, but it sounds like you are pretty advanced. Let us know what is going on...
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


txguy0419
Regular Member


Date Joined Oct 2008
Total Posts : 20
   Posted 10/12/2008 4:54 PM (GMT -7)   
  Thanks broom.  I am glad I found this forum because it's nice to know there are others going through the same things i am. Like I said, I did sort of ignore the problem and didn't think it was serious until it actually got to this point. I was thinking the colonoscopy was just a formality and he would say everything is fine now and I could go back to eating good again. When my wifr woke me up and said I have to have surgery I was totally shocked. I spent a couple of days being mad at things and now I guess the depression and fear is sinking in a little more. Having people to talk to who understand really helps.
 
  I haven't noticed any of the bad side affects from the prednisone yet but from what I've read it will happen at some point. I would like to find a way to get off of that stuff before it becomes an issue but I don't know of any alternatives.
 
  Thanks again. I really appreciate your response.

txguy0419
Regular Member


Date Joined Oct 2008
Total Posts : 20
   Posted 10/12/2008 5:01 PM (GMT -7)   
Thanks navy. I assume it is fairly advanced because of the surgery but I guess most everyone with this stupid disease has surgery at some point. Right? I have never really even thought about if I was a serious case or a mild case. I just assumed it would hurt a little sometimes and then go away for a while. I suppose it was denial and I just didn't want to think about it. Oh well, here I am now and I'll just make the best of it I guess. It could always be worse. Having this place available is helping already. I'll probably bother everyone here for a while as I think of more questions so I hope you'll be patient with me. Thanks.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/12/2008 5:26 PM (GMT -7)   
Yes it could always be worse. I look at randynoguts website when I am having a bad day. Please feel free to ask away...
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/12/2008 5:44 PM (GMT -7)   
Hi Welcome to Healing Well I know it can be a bit worrisome at first to have to have surgery but things get over fast and most of us do better afterward. I was sent up to the hospital bacause I had a blockage and was operated on 5 days later. We are glad to help out in any way we can and any operation can be depressing. I am sure you will feel better after your operation . I was out 6 days after surgery so not too long before I got home. Keep in touch in the mean time a low roughage diet might help. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


txguy0419
Regular Member


Date Joined Oct 2008
Total Posts : 20
   Posted 10/12/2008 6:03 PM (GMT -7)   
   So from I understand most people are home within a week after surgery. I have a job where I can work from home when I need to. Any ideas on about how long after the surgery I might get cleared by the doc to do that?
 
   How about the surgery itself? I really have no idea what to expect. Will I have to get the tube in my nose or a cathiter? If so, will they knock me out before they do those things? When I went to the ER for the blockage they put a tube in my nose right away and it hurt pretty bad. I hate those things. How so they stitch you up? Do they use staples? How long before those come out?
 
   How about bm problems? I have read some that after the surgery sometimes it's more frequent. I've never had any problems with crohn's other than pain so I'm hoping frequent bm's doesn't become an issue after this.
 
   Does anyone know of any other questions I should ask when I see the surgeon? I am writing down a list for him/her now.
 
   See, I told y'all I would have a lot of questions. smilewinkgrin

Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 10/12/2008 9:55 PM (GMT -7)   
txguy,

Welcome, and good luck with your surgery. This forum is one of the best I have found. I've never had surgery for Crohn's, but I just wanted to say Hello and Welcome.
Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
 
                                              Margie11


lil-momma
Regular Member


Date Joined Feb 2008
Total Posts : 132
   Posted 10/13/2008 7:29 AM (GMT -7)   
Welcome! Sorry that you are here but since you are, you couldn't have found a better place. This forum has been my saving grace. My daughter is scheduled for surgery on Friday. The surgeon wanted to do it right away but said she needed to be off of prednisone prior to surgery. I don't know why that is, maybe since she is a child? Prednisone is nasty, nasty stuff and she has become dependent upon it. She is looking forward to surgery. She is sick of being sick and says if this surgery brings her any relief, she'll take it. I am scared to death about it. I hope all goes well for you and certainly hope you are feeling better soon! Much love and laughter to you!
Dx w/UC in 2001 - controlled by diet.
Mother to 15 yr old daughter dx w/CD 9/07-  she had surgery for abcesses 11/07.  She is taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa  500mg-x5, prednisone 10mg-x6, 6 mp 50mg-x3, Flagyl 250mg-x3


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/13/2008 9:12 AM (GMT -7)   
Hi Staples were in 10 days fo me and cathe.in prior to surgery,nasal tube inserted when sleeping, no BM problems for me now and no pain. I had my surgery 10 months ago.about 18 staples . Tell can tell you before you leave what you shold do about work. I took a book to read and read about half of it .Walking helps . lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 10/13/2008 3:28 PM (GMT -7)   

Hi, just wanted to say welcome. This is a great place. I had surgery in Feb.08. I had strictures removed also due to scar tissue. They removed terminal ileum, part of cecum, ileocecal valve and appendix. Where is your problem area? I had surgery 5 weeks after being told I needed it. I was in the hospital for 6 days. Catheter put in while awake, never had one before and it was no problem even when they took it out.

I also took a book, portable dvd player was the best, my own pillow and blanket and pajamas. Comforts from home was the best advice ever from here so I always pass that on. Lots of walking is so important after surgery to get things moving.

Going home I was alot more uncomfortable than I thought I would be. My surgery was done laproscopically, so less invasive. 3 incisions, one had 9 staples (belly button down) and 2 small other incisions 2 staples each. Staples removed after one week.

Recovery at home took a good 5-6 weeks before I was back to basic daily routines. Housework, cleaning, caring for 2 sons, stuff around the farm etc.  Take it easy at the begining for sure. Then I am sure working at home....I'm guessing its desk work etc....that should be ok to do sooner when your doctor says its ok.

I didn't have loose bowels for too long after surgery compared to most.  After about 2 weeks, "d" calmed down. I am so glad I had the surgery. No more blockage pain. Hopefully you will be fixed up soon and all of this will be behind you. But you are right this disease never goes away and we always have to be in tune with what our body is doing or telling us (diet and so on) it is depressing and annoying having to always be so aware of what we put in our mouths. It can get very mentally draining some times, but I try not to dwell on it. And  I have been able to eat alot more different things now since surgery so cheating sometimes is fun!!!  keep us posted .


  • 41 yr old farmwife!! and mom of boys 11 and 9
  • resection surgery Feb. 2008
  • Pentasa, Entocort (when needed), cipralex,probiotic,fibre supplement
 


txguy0419
Regular Member


Date Joined Oct 2008
Total Posts : 20
   Posted 10/13/2008 4:15 PM (GMT -7)   
   Thanks everyone for the advice and the encouraging words. You guys are really nice to help out like this.
 
   My problem area is right around the ileum I believe. I need to ask more questions next time I see my gastro doctor I guess. Like I've said, I'm not real educated on this yet because I tried to ignore it for a long time. Unfortunately, that treatment didn't seem to work all that good.
 
   Yes, when I work at home it's just at the computer so hopefully  the doc will allow me to do that pretty quick.
 
   They said they would try to do it laproscopically. So it takes 5-6 weeks to heal? Were you able to get out at all during that time or were you just too sore? I'll go crazy if I am stuck for that long.
 
   lil-momma, I hope everything goes good for your daughter.
 
Thanks,
 
 
 
  
 
 
  

smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 10/13/2008 8:26 PM (GMT -7)   
I was able to get out after about 2 weeks, but not able to drive for 4 weeks under dr. orders? Each day you get stronger and stronger. But you really do feel the fatigue after undergoing surgery, feel the affects for quite awhile.
  • 41 yr old farmwife!! and mom of boys 11 and 9
  • resection surgery Feb. 2008
  • Pentasa, Entocort (when needed), cipralex,probiotic,fibre supplement
 

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