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lil-momma
Regular Member


Date Joined Feb 2008
Total Posts : 132
   Posted 10/13/2008 5:54 PM (GMT -7)   
Sierra went for pre-op today. We were there for 2 hrs, ugghhh! Friday is the big day. She will have an ileocolecty/resection. They say she will be in the children's hospital for about a wk or so. I have mixed emotions. I am so hoping she will have some relief but I am scared to death! She is getting nervous but says she is quite anxious. We packed her bags today. I don't know how I will be able to leave her at the hospital?! I know that sounds stupid but she is my baby regardless of her age. I have 3 more kids at home that need me as well. Sorry, for pouting! I know that you all are the only ones that can relate and want you all to know how much I cherish this forum! I will keep ya's posted. Much love and laughter to all of you!
Dx w/UC in 2001 - controlled by diet.
Mother to 15 yr old daughter dx w/CD 9/07-  she had surgery for abcesses 11/07.  She is taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa  500mg-x5, prednisone 10mg-x6, 6 mp 50mg-x3, Flagyl 250mg-x3


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 10/13/2008 7:04 PM (GMT -7)   
When my daughter was in the hospital, I just could not leave her alone there. Fortunately, my son's were old enough to either fend for themselves or be away at college.

I am one of those mom's who has a hard time whenever her children are ill.

I am saying this to let you know that I understand your feelings. It must be hard to have 3 others at home. Everyone needs you and making time decisions are hard.

Your children know you mean well whatever your decision. Who knows, the others might tell you to go to the hospital due to their worries.

Hang in there mom. Whatever you do try to get some rest.

I hope your daughter receives a lot of relief from this surgery. No child should have to suffer from this illness.

Donnaeil

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/14/2008 4:16 AM (GMT -7)   
Hi Hope she has good results . Will you be able to make visits to the hospital to see her as it helps pass the time. I had a Aunt that dropped in perhaps there is someone in the family that can go in and see her. I know the waiting can make a person anxious, lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/14/2008 7:25 AM (GMT -7)   
Can another family member stay with the other kids? I know after my surgeries, it was really nice to have someone there for the first two days. It was nice to have someone who could get the nurses if I needed immediate help instead of waiting for them to answer the bell. Hopefully you can get someone to help with the other kids, I am sure in this case, it might be more beneficial for Sierra to have her lil-momma with her, at lease for the first night or two. Good luck and I hope this surgery leads her to a long long remission.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 10/14/2008 7:47 AM (GMT -7)   
I just wanted to wish you both luck. I'm sure in a month you will look back and be oh so happy that this is behind you and she will be well on her way to feeling back to herself. As far as being with her, or being at home, take your cues from Sierra. She may want to be left relatively alone so that she can just sleep. The pain meds pretty much knock you out so she may just want to rest in which case being home may make the most sense for the first day or two until she is up and moving and needs more care from you. Or she may want someone there to help get the nurses attention. But, I'm sure her siblings will be more than understanding if for the next week, Sierra takes their Mom's attention.

Keeping you in my thoughts,
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


lil-momma
Regular Member


Date Joined Feb 2008
Total Posts : 132
   Posted 10/14/2008 9:24 AM (GMT -7)   
Thanks to all of you! My husband and I are going to take shifts. We don't have family here and the few friends we have, have to work and such. It wouldn't be so hard but my youngest boys are 4 & 2. Between my husband and I, we will work it out so that one is home and one is with Sierra. Thanks for thinking of us and please continue to keep her in prayer. We continue to pray for all of you as well!
Dx w/UC in 2001 - controlled by diet.
Mother to 15 yr old daughter dx w/CD 9/07-  she had surgery for abcesses 11/07.  She is taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa  500mg-x5, prednisone 10mg-x6, 6 mp 50mg-x3, Flagyl 250mg-x3


kimberlayn
Regular Member


Date Joined Jul 2007
Total Posts : 239
   Posted 10/14/2008 9:36 AM (GMT -7)   
When my then 10 year old was in the hospital, he was fine being alone at night. The nurses were really good to him, they had an aide who went around and played video games with the kids. When he was getting something done by the nurses, he wanted me and his dad OUT!! My 15 year old was really good when he had surgery and he didn't really want mom hanging around all the time. I didn't want to leave him, but he wanted me too. At 15 your daughter might not want mom hanging around, she might want to be a big girl and deal with things herself. Just a thought! You might want to follow her lead in this! Good luck to her, I hope she finds relief in this, I did! And good luck to you mom, I think its harder on us parents than the kids!
diagnosed w/Crohn's 11/06. 34f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bentyl, entocort, vicodin as needed, metoprolol for orthostatic hypotension and heart palpitations. Bowel resection 9/07. Active disease back, darn it 8/08. 11 year old son with IBS-C, on Bentyl.


smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 10/14/2008 9:50 AM (GMT -7)   
Big hugs to you and daughter...........will be thinking of you this week :)  So hard as a parent to watch your kids go thru this, you would much rather do it for them. Take care

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/15/2008 4:59 AM (GMT -7)   
Hi Sounds like she has lots of support children don't seem to worry about things as much as adults. It will be great for her if this brings her into remission at a time when teens are starting to live busy lives. I packed a book and had a small TV. I napped off and on alot. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


hspenser
Veteran Member


Date Joined Dec 2005
Total Posts : 544
   Posted 10/15/2008 6:12 AM (GMT -7)   

When our now 26 years old and very healty son was 3 years old (almost 4) he had to have abdominal surgery...he was just old enough to know some of what was going on.

The hardest part for his mother and I was to see this little boy in a big full size bed with all the tubes and stuff...i would swear he had 1,000 tubes in him...but in real life it was only 2 or 3.  He looked so small...and I think we would have really lost it if not for a few things.....

we knew and convinced ourselves that every thing that looked horrible and made us feel bad was actually making him better.

we knew that in the scheme of things..time wise...this was just a small blip.  He barely remembers anything about his surgery or hospital stay...and I suspect any memory he does have is not real but is based on the telling and re-telling of the story over the years that followed.

The nurses were fantastic...we were at a childrens hospital in St. Petersburg, FL and they kept us informed and they used child friendly words with our son....never anything like shot...or this is going to hurt.  they listened to him and spent some time with him.

Lastly...we had another son at home...just an infant and we were needed there.  We knew that if we tried to be every where at all times and be everything to all concerned we would fail.  So we did the best we could...we took turns at the hospital and left at night when he fell asleep.  When he woke up one of us was already there or came in pretty soon after.  And every day we brought him a very inexpensive gift...a book...some markers....a magazine with lots of pictures...we also had our audio cassette player (remember those) there and we played his favorite tapes.

Time passed quickly...he went home...he healed...(he did need one more surgery after that)...and now 23 years later he is married and enjoying life.

It is tough to go through this I know....but it will all be worth it and years from now your daughter may even look at it as one of her defining moments of courage.  Good luck


dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
tried Naltrexone Jan. 19, 2007 Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose two shots every other week.
Crohns is currently active and has been since April of 2005
52 yrs old

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