I was so excited to read this post today. I have recently starting looking in to have a hysterectomy for this very reason. I have been discouraged in doing so, but while I was talking with my GI, and I mentioned that I know other women have this same problem because I read it here, (thank you all for helping me to think I am not crazy,) he said there is no medical research to link flares, or additional symptom complications with CD. Which I thought was so interesting because clearly there are more women out there that deal with this than not! I realize you can't get away from the hormone issue, you will always have that if you keep your ovaries, but if you bleed, have constant bowel movements, throw in a hemy or an anal fistula, and that is more than any one person should have to deal with on any given day. So if you can eliminate one of those issues, why not?
I would be interested in hearing others insights in to this, if being on remicade made a difference in dealing with your cycle and your disease at the same time, I am in the process of starting that medication. Just whatever you want to help me think of.
I so appreciate this forum, thank you all!
I HAD a hystorectomy at age 34 and no one could ever convice me that the two are NOT related (in some WICKED way), or one doesn't make the other worse. However, I could never get my GI or Gyn to agree.
Before anyone gets a hysterectomy, please talk to your GYN about Novasure http://novasure.com/
My GYN recommended this for me. My periods became worse every year. I didn't know if it was the period or CD causing the pain. Novasure is an outpatient proceedure and made a big difference in my quality of life. I haven't had a period in two years, but I still have my ovaries. The big difference is NO PAIN!
I hope this helps.