Lower back pain linked to...??

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Jessi21
Regular Member


Date Joined Sep 2008
Total Posts : 57
   Posted 10/13/2008 11:27 PM (GMT -7)   
Whats been of real concern to me lately is my lower back pain - it just won't go away no matter WHAT I do. The high doses of Pred I was on seemed to make it tolerable for a while but now that I'm on just 5mg, its defiantly back in high gear. I've been dealing with UC/Crohns for about 8 years now, and I've hardly ever dealt with LOWER back pain (I usually have had a lot of upper back pain when I'm dealing with flares). And when I'm on my menstrual cycle that pain a long with my EXTREME cramps (which btw NOTHING except STRONG painkillers has ever healped) makes me MISERABLE. It really dissables me when both hit me at once - a flare AND my monthly visitor. I'm not having a flare right now and I'm having lower back pains..mainly when I'm on my feet and moving around, which of course make it almost impossible to continue being on my my feet and moving around. eyes
I feel like I've tried everything - I did non-stop Chiropractic for almost 3 months and am doing specific excercises now for lower back. I've been trying so hard to find other ways besides painkillers to get rid of the pain.
I had my 3rd Remicade infusion ever since I started it up again on Friday and told my doc about the pain. She kept me at 5mg of Pred (no tappering) and told me to call her back at the end of the week to report how the pain is. So far its been worse since I've spoken to her even after the Remi. I'm just scared shes gona automatically blame the pain on the Remi not working when it might have nothing to do with that.
Any comments? confused
Jessi
Dx w/ UC 2000;
J-pouch surgeries in 2002 - colon removed except for last tiny part connected to rectum which keeps inflaming;
Currently in remission from August hospitalization and tappering off Pred. (now 7.5mg);
Remicade, Cymbalta, Prevacid, Famotadine, QVAR,
Auto-immune disorder, anxiety disorder, mild asthma (chronic bronch), & Crohns related arthritis.

Jessi


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/14/2008 3:41 AM (GMT -7)   
Hi Jessi Never heard of anyone daying they had lower back pain because of Rem. I know that we worry about alot of things here but I don't think it's the med. I had what was a burning and it didn't help me much with sleeping but seems better last 3 or 4 days. How is the Rem working for you? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


dreamer06
Regular Member


Date Joined Jun 2008
Total Posts : 221
   Posted 10/14/2008 7:09 AM (GMT -7)   
I had really bad lower back pain for a few months and really bad stomach cramps. Nothing was helping it either. All my test came back normal, my docs didnt know what to do. Finally they admitted me for more testing and found I had an ulcer. I would check to see if that is what you have. After being on meds for a few days I was begining to fell better. Hope this helps.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/14/2008 7:16 AM (GMT -7)   

Most lower back pain is caused by inflammation in the intestines.  Its usually referred to as referred pain. 

But....when I was last on Pred this past July, when I finally weaned down I had the worst lower back pain ever.  It felt like I had a impinged nerve or something, but got better after about 10 days.  It hurt so bad when I first stood up and would ease a little as I walked.  So maybe the Pred is causing the low back pain.

I don't think she is going to blame the Remicade.  I do worry though that she might hike the Pred back up.  Maybe you should try to get completely off the Pred and see if the pain improves within a week or so.  If not, maybe a referral to a Rheumy is called for.  Good luck!

Gail *Nanners*


Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Jeny
Regular Member


Date Joined Feb 2004
Total Posts : 437
   Posted 10/14/2008 8:56 AM (GMT -7)   
I would get an intense pain in my lower back during Remicade infusions and I was wrongly dx'ed with fibromyalgia because of all the joint pain Remicade caused. I would have such sever pain in my back that no one could touch it even slightly, I'd go through the roof! But, now that my CD is back and i'm flaring again...i have joint pain again, i'm not on Remi anymore. I do have lower back pain..mostly on the sides like kidney area. i blame it completely on the CD. the worse my CD gets the worse the joint pain is. My fingers, wrists and elbows hurt really bad today. I had went on Celebrex and Xanaflex for my problems back when I was on Remi...it seemed to help out.
Good Luck!
-Jeny

miguelblanco
Regular Member


Date Joined Dec 2007
Total Posts : 131
   Posted 10/14/2008 9:41 AM (GMT -7)   
I've had low back pain lately. Just had a CT scan and the colon is inflamed. The pain has been in the low right of my back. They said that's where the colon is, so it's causing the pain. I was freaking out that my kidney had a problem because it is in the same area. Knock on wood, that's OK for now at least. They put me on Entocort which seemed to help with that pain in my back, and even helped my joint pains and swelling for about a week and a half, but those are back with a vengeance now. mad
Type I Diabetes- 29 yrs. (MiniMed Insulin Pump)
Celiac Disease- 8 yrs.
Crohn's Disease- (Nov. '06)
No meds at this time. (Don't agree with me.)


Jessi21
Regular Member


Date Joined Sep 2008
Total Posts : 57
   Posted 10/14/2008 3:27 PM (GMT -7)   
..Don't have a colon..so cant be from that! :P And honestly I reeeally don't feel like I'm having a flare at all right now. Thats what makes this all strange - cause trust me, during flares, NOTHING seems strange - I have all sorts of pains!

..There is one more thing I left out though...: In the summer I got in a pretty bad car accident. No broken bones, just badly bruised and cut up (went to the ER that day) but my car was totalled and I was shaken up badly. Now comes the confusing part..try to keep up with me: At the time I had just stopped my Remi that I was getting once every 6 wks, cause I wanted to try other things and it seemed like it wasn't helping as much anymore. A month before I stopped it, my doc had put me on 6MP, then I stopped the Rem. Then, of course, EXACTLY on the 6th week when I was due for my usual remi infusion but wasn't gona get one cause I had decided to stop it, I get in the accident. Lol..so at the time nobody could figure out weather my pain (lower back pain had become extreme at that point) was from the 6mp not working, or the accident. My rhuemy just gave me a few months worth of Tylenol with coedine at the time, probably guessing it was from the accident.
But either way 2 months later I was hospitalized while being on the 6mp for a bad flare - which included swollen and dissabling joint pain along with having diarrhea and cramps. And although my back pain wasn't gone, I think it was under control with the Pred. But now that I'm moving around more, its back. My rhuemy hoped that the remi would/should make it go away.
Dx w/ UC 2000;
J-pouch surgeries in 2002 - colon removed except for last tiny part connected to rectum which keeps inflaming;
Currently in remission from August hospitalization and tappering off Pred. (now 7.5mg);
Remicade, Cymbalta, Prevacid, Famotadine, QVAR,
Auto-immune disorder, anxiety disorder, mild asthma (chronic bronch), & Crohns related arthritis.

Jessi


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/14/2008 3:49 PM (GMT -7)   
Hi Jessi Was wandering if you have felt around for any anal abcesses. I got a pimple and lump under skin which could be a abcess anyway my back pain started to ease up now that I am taking sit baths in the tub 3 times a day. May be just coincidence or maybe the baths are relaxing things .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 10/14/2008 6:00 PM (GMT -7)   
I think everyone here about covered it. I don't think you're Remicade has had time to kick in good yet. I'm on Humira and under pretty good control right now, however, the back pain comes and goes as it pleases. Freaky disease! Pain killers and a heat pad is all that saves me. I also keep a check on my temp when the aches come around. I usually discover I am running a low grade fever too. And yes, the monthly visitor is an absolute killer! I've found my anti-spasmotic (Nulev) helps me through that week also in addition to the pain killers.
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.


Jessi21
Regular Member


Date Joined Sep 2008
Total Posts : 57
   Posted 10/14/2008 8:30 PM (GMT -7)   
I think you're right broomhilda. I defiantly don't feel the Remi is into full gear yet cause I still have quite a bit of joint pain. But it has gotten a bit better, and the swelling has disapeared (although that was prob from the Pred). And the back pain does come and go..same relief stuff work for me as yours..but why does heat help I wonder?? Anyweher the AC is on I'm poppin a painkiller. And why do you think a fever is connected with the pain? Thanks btw for mentioning the Nulev..I'm going to look into that and ask about it riiiiight away (I'm just about ready to do ANYTHING for that)!
thanks guys!
anymore comments would be greatly appreciated :)
Jessi
Dx w/ UC 2000;
J-pouch surgeries in 2002 - colon removed except for last tiny part connected to rectum which keeps inflaming;
Currently in remission from August hospitalization and tappering off Pred. (now 7.5mg);
Remicade, Cymbalta, Prevacid, Famotadine, QVAR,
Auto-immune disorder, anxiety disorder, mild asthma (chronic bronch), & Crohns related arthritis.

Jessi

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