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savkelchr
Regular Member


Date Joined Sep 2008
Total Posts : 33
   Posted 10/14/2008 8:51 AM (GMT -7)   

Hi Randynoguts. I clicked on your link and read your story and history. May I say thank you for sharing this and the attitude you have kept thru all of this is really just awe inspiring. I have CD also since 91. Ive made a few post but mostly have been trying to learn accept all this business about Crohns. I thought I had a really aggressive disease simply I guess because my GI docs dont really know how to treat me either. They pass me from one GI to another to the point I gave up. So I have found myself at healing well trying to educate myself and hopefully my GI. I have learned quite a bit and was facing the humera treatment but after reading at healing well and thinking that with all the kidney problems and other health issues, I didnt think it would be suh a great idea. I brought this info to the attention of my GI and he agreed. I really disconcerted him in the fact that I would actually question his care. LOL! So now Im feeling pretty insecure of his treatment of me also. Anyway, I too have spent almost 1/2 my life in the hospital. I know no one else with this disease. I began to really dispare that things were so bad. But then as I read your story and others there at healingwell, I have come to realize that its not that bad after all. Time to get off the pity pot and get aggressive with care. I suffered sepsis like you in 2006 from kidney failure due to my CD being acctive. I dont understand the reason when my CD flairs it takes out my kidneys but I will eventually. Anyway, I just wanted to say thanks for the inspiration. May you find comfort and treatment for your current problems. I hope your well before the holidays.

Post Edited (savkelchr) : 10/14/2008 11:28:44 AM (GMT-6)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/14/2008 10:18 AM (GMT -7)   
wow that is hard to read, no offense meant just thought it might be a good idea to change to something a little easier to read like TNR...


Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


savkelchr
Regular Member


Date Joined Sep 2008
Total Posts : 33
   Posted 10/14/2008 10:22 AM (GMT -7)   
LOL. Sorry, I went to type this in another place and couldnt figure out how to do the email thing so I just copied and pasted it here. It helps if yu highlight it tho. Not much but some. Sorry. I figured out how to edit my post and redo the typing.

Post Edited (savkelchr) : 10/14/2008 11:30:16 AM (GMT-6)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/14/2008 11:26 AM (GMT -7)   
looks great now!
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 10/14/2008 1:43 PM (GMT -7)   
about the kidneys and flares - flares result in gut bacteria being killed by the immune system (or antibiotics) which results in the release of endotoxins. In a flare, your gut is much more permeable than normal and this allows the endotoxins to enter your blood. The kidneys normally are not damaged immediately from endotoxins, but repeated or prolonged exposure can result in damage. To reduce gut permeability, the supplements that I have found are: glutamine (normally the body has a store of glutamine, but it is depleted by inflammation); zinc citrate - 50 mg (also commonly deficient in Crohn's and helps gut permeability); Probiotics (lactobacillus bacteria - a mix of types is a good idea). You might want to ask your GI about using polymixin B to reduce the levels of endotoxin in the blood during a flare. Point out the kidney damage problem and suggest the endotoxin problem as a cause.
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