Marie-Claire Iron Infusions

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Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/14/2008 1:19 PM (GMT -7)   
You had your iron infusion done a week or two before I had mine (mine was done 10/6).  I was wondering how you are feeling now?  Have anymore energy?  I am 8 days out and still quite exhausted?  But the doctor did tell me it takes a couple of weeks for the iron to get into your bone marrow and start producing more blood. 
 
Also, was wondering if the iron infusion upset your stomach at all?  I had a pretty rough week lastweek, but am feeling much better this week.  Had alot of more frequent D (usually have more C) and some cramping, but things are better now.
 
Hope you are doing well.  Anyone else with any experience with iron infusions, I would appreciate your thoughts too.
 
Hugs,
Gail *Nanners*
 
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 10/14/2008 1:31 PM (GMT -7)   
I had 4 Venofer infusions in September. Unfortunately, they never do much for my energy though :(. They bring my hemoglobin up, but my ferritin levels always stay low.

Whenever I get my first infusion, I always have a reaction to it by that evening (chills, upset stomach, achy bones). It lasts for a few hours, then goes away. The second through forth infusions are fine though. This last time, they even gave me an anti-nausea injection to see if it would help, but by the evening, I still felt terrible.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/14/2008 1:36 PM (GMT -7)   
Thanks Spookyhurst! At least I know I am not alone with the iron making me sick. It wasn't horrible, but I still felt pretty yucky until this past Sunday. Funny thing is, I take nausea meds every morning and every night, and still it didn't help much. I did the Iron Dextran infusion. I am a little disappointed to hear you are not feeling much more energy though. I am so tired of taking naps before I go to bed! HA!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/15/2008 6:51 AM (GMT -7)   
Bump
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 10/15/2008 1:52 PM (GMT -7)   
I had 5 infusions last month and a follow-up infusion yesterday. I can't say that the venofer helped very much. Maybe a little but not a lot. I'm supposed to have an infusion monthly now.
lavender
 
diagnosed: Crohn's Aug 2005
 
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
 
drugs: Imuran, Remicade, Prednisone, Fentanyl, Warfarin, Flagyl, Cipro, Celexa, Ferrous Gluconate, Acidopholous


Chasity102304
Regular Member


Date Joined Nov 2007
Total Posts : 165
   Posted 10/15/2008 7:07 PM (GMT -7)   
I had my 4th of 8 venofer infusions today. I don't feel much better yet with the exception of the headaches lessening in strength. I'm glad about that because the headaches were awful..but I am still exhausted most of the time. And with a 5 week old baby and 3 year old, that sucks!! In the past it has taken a month or so after the infusion(s) for them to kick in so we'll see what happens in a few weeks.
Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 10/15/2008 9:04 PM (GMT -7)   
Word of warning Nanners,,,stay away from refrigerator magnets...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/16/2008 7:08 AM (GMT -7)   
Geesh that is disappointing to hear so many have not found any relief from the iron infusions. I was just hoping it would be like the doctor said and just take a few weeks for my body to make new blood. Oh well, I guess I will have to get used to taking my naps everyday before I go to bed:) And to stay away from the refrigerator magnets:)
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

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